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Tommi 06-27-2014 04:26 PM

Anya and D,
Glad to hear this part of the trip is over. Doc sounds nice n reasonable and willing to listen. That's so helpful.

Go do something fun. I suggest watching the sunset at the ocean, sitting in the car, talking and having some ice cold tea or lemonade. Waiting on path reports is never a fun time, so , I go into hyper mode and overdo activities, and..insomnia.
:moonstars:
Best wishes, and keep in touch.

mustangjeano 06-27-2014 11:20 PM

Quote:

Originally Posted by LeftWriteFemme (Post 917899)
http://www.markmallett.com/blog/wp-c...oo1719_000.jpg


The Warrior Waiting

Is there word
Is there word
The Warrior is waiting
Waiting to hear if there is further incursion
Waiting to know if cancer has again
Turned Hys body into a battlefield
Schrodinger’s cat sat in a box in anticipation
But caging a tiger is different
Is it war or is it peacetime
The pacing wears on the might
The waiting wears out days better spent
Rumination is for cows
Fights and freedoms are the business of heroes
Anticipation is its own test
The Warrior is waiting
Prepared whatever the word


6/27/14 7:35 am

I LOVE this. Thank you for posting it. Jeano

*Anya* 07-07-2014 09:05 PM

I was so anxious about having my squamous cell cancer removed because for the last few years, everything medically that could go wrong: has.

This time, it was no different.

By this past Friday, a week after it was removed, I knew the surgical site was infected.

I went back to the doctor Friday morning. She cultured it and started me on antibiotics.

I went back today and found out it had cultured MRSA. She changed my antibiotic.

Now, I am petrified of getting C-Dif again.

Tommi 07-09-2014 02:32 PM

Geeesh Anya, what a journey. Cancer is taken care of, but the side effects keep on comin~

Sure hope that new antibiotic kicks butt quickly, and C.diff stays out of the mix. Best regards, and I know you are drinking lots of water, getting lots of rest and ,well. ya know.

http://img4-2.myrecipes.timeinc.net/...dle-soup-l.jpg
Tommi

Tommi 07-09-2014 02:48 PM

Life on the line
 
I decided it was time to terminate the experiment called "Waiting". Vacation over, back home, and still no news, or phone message from my tests.

I had watched the mail, waited for the little post card long enough, the one with check boxes:

Waiting for it to read, "negative findings, normal biopsy" with the little happy face drawn on by the nurse/tech, or "Please call to make a follow-up appointment. "

It had been long enough. I picked up the line and called the cancer center, extolled to the person on the phone I had waited over 3 weeks, for something that for nine years took a week...except when there was a recurrence last year, and ...well it was over 3 weeks to find out, then had to have 3 months of treatment and radiation and ..well...I was pissed.

Wait on the line while she looks up your chart....

Then, "Oh, everything came back Okay. Sorry we didn't let you know!" We stopped mailing out the cards, and expected you to call for the results. OMFG.

SORRY, not being good enough I let her know my true feelings, as I am sure many cancer survivors have done before...hoping that this time, they will get it....a sigh of relief and , back to life and wanting

POPCORN :rrose:

clay 07-09-2014 04:10 PM

^5, Tommi!!!
 
YAY!!! Doing a happy dance for Tommi!



Enjoy that popcorn, bud!!!! Whoohooo.....:)


clay 08-13-2014 02:22 PM

YAY! My CEA levels are .7!!! My 3 year anniversary is Dec. 9 and I can go for 5 years (unless become symptomatic) before next colonoscopy!! Hip Hip Hooray!!!

I am doing really well and am thankful for that!!!

I did have a "suspicious flat, black spot removed by dermatologist today. I am confident it will be "benign"!!!

Leaving everyone here warm, gentle hugs. Have a great day!!! Much love...Clay

DapperButch 08-13-2014 05:23 PM

Quote:

Originally Posted by clay (Post 927403)
YAY! My CEA levels are .7!!! My 3 year anniversary is Dec. 9 and I can go for 5 years (unless become symptomatic) before next colonoscopy!! Hip Hip Hooray!!!

I am doing really well and am thankful for that!!!

I did have a "suspicious flat, black spot removed by dermatologist today. I am confident it will be "benign"!!!

Leaving everyone here warm, gentle hugs. Have a great day!!! Much love...Clay

Congrats, Clay! 5 years? Wow, that's the same schedule all adults over age 50 use, isn't it?

clay 08-13-2014 06:04 PM

Quote:

Originally Posted by DapperButch (Post 927468)
Congrats, Clay! 5 years? Wow, that's the same schedule all adults over age 50 use, isn't it?

Thanks, Dapper!!!

Don't know about that....my previous oncologist said every year for 5 years Post Hemicolectomy!

My newest oncologist follows a different guideline. It is individualized for the most part, I assume!

I am just happy with my progress each subsequent year!!!

LeftWriteFemme 08-25-2014 10:36 PM

The rubber met the road when my sponsee was going through the chemo......but with the radiation she seems to be laying the rubber down. She is wiped out and it's only day 5 of a 28 day sentence. I am wracking my brain to think of things to lift her spirits. She is taking the treatments during her lunch hour and then going back to work. She is walking 4 or 5 nights a week to keep her strength up, making plenty of meetings and eating really well. The only think I've thought of so far is to feed her juvenile sense of humor......I will post the clip I sent her today, but if anyone has anymore dignified suggestions please let me know......if you have less dignified suggestions....I'll take those too, I really want to help her stay chipper.



Tommi 08-26-2014 01:43 AM

LWF,
Sleep is nice.
Eat lotsa Banana popsicles, fudgesicles, save the sticks , tie them up and make little rafts to float down the street in the rain

Send her Something fun in the daily mail. A crayon a day with a blank piece of paper with a scribble on it. She has to turn the scribble into a picture.

Start a story about her journey, mail it to her, have her write a paragraph or page, and send it back to you, add to it, return it, etc.

Buy her 4 pairs of Funky socks.mix em up, send a mismatched pair one day, another mismatched pair the next week, then a match to one of them, etc.
Then her treatment will be over.

Wish her the best.

clay 08-26-2014 07:42 AM

Quote:

Originally Posted by clay (Post 927403)


I did have a "suspicious flat, black spot removed by dermatologist today. I am confident it will be "benign"!!!

Leaving everyone here warm, gentle hugs. Have a great day!!! Much love...Clay

It WAS benign. The spot itself is healing slower than I prefer! :(.......:eatinghersheybar:

Tommi 09-10-2014 02:31 PM

Caregivers deserve so much, and take so little.
 
For over a year, I have learned to really appreciate every single day, and the steadfastness of one hella- caretaker.

I went in for my 11 month post-radiation pelvic exam-follow-up exam at 7:30 AM. I found the 405 freeway roundtrip to be the most harrowing part of my day.

And, for my dear ones day to days. I have watched Alzheimer's steal the memories of the days and nights of her beloved Mom. The last few weeks getting more and more difficult with the daily routines of getting Mom to bathe, to dress and to eat. Her Dad in and out of the hospital over the last year for CHF and other ailments. Numerous agencies of daytime caregivers who come and go.

Evenings after work, and on weekends she cooks full meals, setting down together to eat, and the chit chat of what is seen and heard. Knowing her elderly parents living with her, are safe, at home, loved, and cared for is a journey of true love and devotion. You don't know from day to day where this life journey carries you, just that we are along for the ride, and hope to have both oars in the water, steering as best we can, and enjoying the scenery

:pirate-steer: :rubberducky:

DapperButch 09-10-2014 05:30 PM

Quote:

Originally Posted by clay (Post 930994)
It WAS benign. The spot itself is healing slower than I prefer! :(.......:eatinghersheybar:

I'm so glad to hear this, Clay, Congrats!!!

Tommi 09-22-2014 10:49 PM

This morning I called for results 12 days post tests.
 
I held my breath when the Gyneco-Oncologists nurse returned my call this afternoon.

"""Your test results from your Sept 10th tests all came back negative.""" Breathing again, I said thank you, and, see you in 6 months.

One year ago Today I was 1/2 way through radiation therapy for recurring endometrial cancer. �� which came back after a nine year absence. I had just met someone who stood by me night and day and It all okay.

2Nd time around, I feel privileged to call & not wait for that little note in the mail box. ��

I feel every day is a gift all wrapped up new and shiny.

my RickiRacer kitten Just brought me her curly pipe cleaner so I can toss it. She hockey pucks it across the hardwood floors, ricocheting and returning it for another toss. Life is good
Life is all good.

DapperButch 09-23-2014 05:38 AM

Quote:

Originally Posted by Tommi (Post 937469)
I held my breath when the Gyneco-Oncologists nurse returned my call this afternoon.

"""Your test results from your Sept 10th tests all came back negative.""" Breathing again, I said thank you, and, see you in 6 months.

One year ago Today I was 1/2 way through radiation therapy for recurring endometrial cancer. �� which came back after a nine year absence. I had just met someone who stood by me night and day and It all okay.

2Nd time around, I feel privileged to call & not wait for that little note in the mail box. ��

I feel every day is a gift all wrapped up new and shiny.

my RickiRacer kitten Just brought me her curly pipe cleaner so I can toss it. She hockey pucks it across the hardwood floors, ricocheting and returning it for another toss. Life is good
Life is all good.

Ah, Tommi, so glad to hear, so glad to hear. Congratulations!

I delayed for a couple of weeks in calling to schedule my colonoscopy (I received a note in the mail). Finally made the call on Friday, but haven't heard back. This thread is a good reminder. I think I will call them again.

We all continue to be in this together, so I am glad when someone comes back to update. Congrats again.

clay 09-23-2014 07:33 AM

Yay, Tommi!!! Thank you for the update.
My tests are coming up in December, when I will be 3 years post op cancer free!!!
As DB said, this thread is a reminder...for us all...we have come long journeys!!! And to keep those appointments! And to call..and ask! It is our privilege to know ASAP!





Quote:

Originally Posted by Tommi (Post 937469)
I held my breath when the Gyneco-Oncologists nurse returned my call this afternoon.

"""Your test results from your Sept 10th tests all came back negative.""" Breathing again, I said thank you, and, see you in 6 months.

One year ago Today I was 1/2 way through radiation therapy for recurring endometrial cancer. �� which came back after a nine year absence. I had just met someone who stood by me night and day and It all okay.

2Nd time around, I feel privileged to call & not wait for that little note in the mail box. ��

I feel every day is a gift all wrapped up new and shiny.

my RickiRacer kitten Just brought me her curly pipe cleaner so I can toss it. She hockey pucks it across the hardwood floors, ricocheting and returning it for another toss. Life is good
Life is all good.


Tommi 09-23-2014 02:53 PM

Quote:

Originally Posted by DapperButch (Post 937482)
Ah, Tommi, so glad to hear, so glad to hear. Congratulations!

I delayed for a couple of weeks in calling to schedule my colonoscopy (I received a note in the mail). Finally made the call on Friday, but haven't heard back. This thread is a good reminder. I think I will call them again.

We all continue to be in this together, so I am glad when someone comes back to update. Congrats again.

Quote:

Originally Posted by clay (Post 937499)
Yay, Tommi!!! Thank you for the update.
My tests are coming up in December, when I will be 3 years post op cancer free!!!
As DB said, this thread is a reminder...for us all...we have come long journeys!!! And to keep those appointments! And to call..and ask! It is our privilege to know ASAP!

Yes. Keep it up..
To ALL Survivors, Caretakers, Caring Family and Friends We can all walk the walk and talk the talk together. This kind of sharing is caring.

A favorite saying from a favorite meeting.."Keep coming back, it works if you work it and it won't if you don't "...

clay 10-06-2014 06:06 AM

Just saw my oncologist last Thursday. My CEA (tumor marker levels) are WNL (within normal limits).
Dec 9 is my 3 year anniversary of being diagnosed with Stage 1 Colon Cancer. I had major abdominal surgery to remove half my large intestine as well as a total hystero. I did not have to have any chemo or radiation, I was so very lucky!!

So now I can go to every 6 months testing CEA. I am so thrilled to be a survivor.....so many are not.

I like to say I kicked cancer's ass and made her my bitch! My GYN oncologist loved it!!! when I told her that! With such a diagnosis, I think our humor is wonderful medicine!

I know when I was having to drink so much of that nasty prep, the humor from friends here in this thread helped me get through! Thank you each and everyone for walking this journey with me. I <3 you all!

DapperButch 10-06-2014 07:45 AM

Quote:

Originally Posted by clay (Post 940395)
Just saw my oncologist last Thursday. My CEA (tumor marker levels) are WNL (within normal limits).
Dec 9 is my 3 year anniversary of being diagnosed with Stage 1 Colon Cancer. I had major abdominal surgery to remove half my large intestine as well as a total hystero. I did not have to have any chemo or radiation, I was so very lucky!!

So now I can go to every 6 months testing CEA. I am so thrilled to be a survivor.....so many are not.

I like to say I kicked cancer's ass and made her my bitch! My GYN oncologist loved it!!! when I told her that! With such a diagnosis, I think our humor is wonderful medicine!

I know when I was having to drink so much of that nasty prep, the humor from friends here in this thread helped me get through! Thank you each and everyone for walking this journey with me. I <3 you all!

Congrats on everything staying in the clear! :thumbsup:

Don't bring up drinking that prep, I have to do it next month! Ugh.

mustangjeano 10-07-2014 12:21 AM

Quote:

Originally Posted by clay (Post 940395)
Just saw my oncologist last Thursday. My CEA (tumor marker levels) are WNL (within normal limits).
Dec 9 is my 3 year anniversary of being diagnosed with Stage 1 Colon Cancer. I had major abdominal surgery to remove half my large intestine as well as a total hystero. I did not have to have any chemo or radiation, I was so very lucky!!

So now I can go to every 6 months testing CEA. I am so thrilled to be a survivor.....so many are not.

I like to say I kicked cancer's ass and made her my bitch! My GYN oncologist loved it!!! when I told her that! With such a diagnosis, I think our humor is wonderful medicine!

I know when I was having to drink so much of that nasty prep, the humor from friends here in this thread helped me get through! Thank you each and everyone for walking this journey with me. I <3 you all!

Hey Bro, It made my day to read your good news.

clay 10-07-2014 08:15 AM

Quote:

Originally Posted by mustangjeano (Post 940594)
Hey Bro, It made my day to read your good news.

Hey Jeano....thank you my friend!!! You are such an amazing ally & supportive friend. Your kind words always warm my heart! Thank you for being my friend!!!

clay 10-07-2014 08:23 AM

Quote:

Originally Posted by DapperButch (Post 940403)
Congrats on everything staying in the clear! :thumbsup:

Don't bring up drinking that prep, I have to do it next month! Ugh.

Hey Dapper:
Okay, I won't...lol. That is the worst part of the whole thing. I mixed my own pre (after searching for the recipe online) of Miralax into 64 oz. Gatorade....it is so much better tasting. I used the orange Gatorade.

Keep us posted my friend!! We are all on this journey together!!

pynkkameleon 11-27-2014 08:55 PM

Just a lil note to say how thankful I am for this safe place and for every one of you in it.


DapperButch 03-19-2015 05:43 PM

Quote:

Originally Posted by clay (Post 940630)
Hey Dapper:
Okay, I won't...lol. That is the worst part of the whole thing. I mixed my own pre (after searching for the recipe online) of Miralax into 64 oz. Gatorade....it is so much better tasting. I used the orange Gatorade.

Keep us posted my friend!! We are all on this journey together!!

I think that Miralex plus the original Gatorade is the ticket. The most important thing is to keep it cold. Personally, I like the original Lime for this event.

My process includes holding my nose while drinking, and after swallowing, take a drink of coffee immediately.

Everything was in the clear for me when I had my colonoscopy, by the way. Sorry I didn't follow up, guys!

Tommi 03-20-2015 01:43 PM

Cancer, care taking and 60 years of love, One Day at a Time
 
Hello Everyone, I hope you are all well, and enjoying the wonderfullness of spring around the corner.

staying busy, and healthy and happy takes energy. L) :moonstars:

March of 2004 was my first diagnosis of endometrial cancer, followed by total radical hysterectomy, oopherectomy, and 16 lymph nodes surgery. Normal paps for 9 years, then recurrence , months of external and internal radiation therapy,MRIs , etc. Oct. 2013. Now, pap smears every 3 months to watch ***

All in all , it is a good year so far. Doc sgugested I can go to 6 months exams...after the results from last Weds come back. (Just had my follow-up exam/s those nasty pelvic examS ) going from every 3 months to every 6 months, checking for recurrence would be nice

So, on the happy side of life, it just keeps getting better.
We went to a fabulous 3 day mini vacation in a log cabin in the mountains and communed with nature, light snow, birds squirrels. and wonderful fireplace.

Looking forward. Biz trips to Montreal next week, then to Phoenix, then San Diego. Then first week in April, to Tampa and going to introduce the fiance to the bio-famiy. Then in May we are getting married. More Biz trips, then BFP Reunion, and Nov. her bucket list trip to Galapagos Islands. WE ARE GOING TO VACATION ON OLIVIA CRUISE TO THE GALAPAGOS.

She works full time in a high tech, demanding professional career...And as her parents Caregiver for over 10 years. cares for her parents from Friday night to Monday morning, has a lady with them in the day time. then comes home cooks dinner and spends the evening with the folks. .

kaijira's Mom, has slipped into the final stages of Alzheimer's, her dad , just hanging on watches TV 12 hours a day watching his wife of 60 years disappear before our eyes. They still toddle off to bed together every night after TV. Celebrated 60 years anniversary, and soon the Mom's 81st birthday/

So, I know this is just the place that I can post what's going on, and you all get it, as we do so , every now and then.

One day at a time, sober and clean for over 30 + years, I get my high from living life to it's fullest.

.

clay 04-01-2015 11:53 AM

Have to get US of abdomen.......seems some blood levels are elevated! Of course, I am positive results will all be negative.....if not, I will don my gloves and make cancer my bitch should it rear its ugly head again! I got this! :praying:

clay 04-01-2015 12:02 PM

absolutely post here, Tommi! For yes. We do get it and understand it. Everyone here has had their own journey....united we stand...that is why I love this thread! I am very thankful for the support, encouragement, and kindness on my own journey 3 years ago.....countyfem was my hero during that time! She was such an amazing caregiver to me...a complete stranger and she is a lifelong friend! I just felt a shout out to her was warranted!

DapperButch 04-01-2015 06:25 PM

Quote:

Originally Posted by clay (Post 981387)
absolutely post here, Tommi! For yes. We do get it and understand it. Everyone here has had their own journey....united we stand...that is why I love this thread! I am very thankful for the support, encouragement, and kindness on my own journey 3 years ago.....countyfem was my hero during that time! She was such an amazing caregiver to me...a complete stranger and she is a lifelong friend! I just felt a shout out to her was warranted!

Yes, what happened to her? She like dropped off the face of the earth (BFP) after you got well.

mustangjeano 04-02-2015 12:08 AM

Quote:

Originally Posted by clay (Post 981386)
Have to get US of abdomen.......seems some blood levels are elevated! Of course, I am positive results will all be negative.....if not, I will don my gloves and make cancer my bitch should it rear its ugly head again! I got this! :praying:

Holding good thoughts for you and awaiting your news my friend. Jeano

DapperButch 04-02-2015 06:55 AM

Quote:

Originally Posted by clay (Post 981386)
Have to get US of abdomen.......seems some blood levels are elevated! Of course, I am positive results will all be negative.....if not, I will don my gloves and make cancer my bitch should it rear its ugly head again! I got this! :praying:

When are you getting this done?

clay 04-02-2015 08:10 AM

Quote:

Originally Posted by mustangjeano (Post 981465)
Holding good thoughts for you and awaiting your news my friend. Jeano

thank you jeano! You are wonderfully supportive!

Tommi 04-22-2015 02:29 PM

Touching base
 
sliding into 3rd...base...

and Clay , what's the latest Bro?

Anyway, the Oncologist has extended my every 3 month recurrence check up ( you know the kind) to every 6 months for a year,. So, that is good news. :) then after that it goes back to Stirrups once a year. :police:

I have been sick as a pup for weeks. IN BED--* ALONE****with some kind of nasty germ that took me down,.Upper respiratory infection that was so bad I went to the doctor about it. Couldn't breathe , swallow, ribs felt like they were broken, coughed till , well, it was nasty.

Doc said, you probably caught some kind of virus while traveling ( flights to Montreal, Toronto, all over USA .MY BRAIN...screamed EBOLA...nope, just bronchial pneumonia kind of thing. and guess my immune system isn't what it used to be.

Hummingbirds chirping about their feeder, colorful landscape, , looking out the front window at my beautiful spring garden in bloom.

Wish you all well.

clay 04-22-2015 04:15 PM

Quote:

Originally Posted by Tommi (Post 985171)
sliding into 3rd...base...

and Clay , what's the latest Bro?

Anyway, the Oncologist has extended my every 3 month recurrence check up ( you know the kind) to every 6 months for a year,. So, that is good news. :) then after that it goes back to Stirrups once a year. :police:

I have been sick as a pup for weeks. IN BED--* ALONE****with some kind of nasty germ that took me down,.Upper respiratory infection that was so bad I went to the doctor about it. Couldn't breathe , swallow, ribs felt like they were broken, coughed till , well, it was nasty.

Doc said, you probably caught some kind of virus while traveling ( flights to Montreal, Toronto, all over USA .MY BRAIN...screamed EBOLA...nope, just bronchial pneumonia kind of thing. and guess my immune system isn't what it used to be.

Hummingbirds chirping about their feeder, colorful landscape, , looking out the front window at my beautiful spring garden in bloom.

Wish you all well.

Hey Tommi......my US was all clear! Thanks for asking. Take care....

DapperButch 07-11-2015 11:22 AM

Checking in
 
Hey,guys.

Looks like I never updated you. In Jan 2015, I got my colonoscopy (I suppose it had been a year out since the last one), and I had a pretty big polyp. It was benign, but he was concerned how big it had gotten so fast. He said I needed to get another in six months. Sooo, guess what time it is? Yep, 6 months later. Fun. I am playing phone tag right now with scheduling

It is also time for my CAT scan so that is scheduled for the end of July.

I will keep you all updated.

I hope that everyone is healthy.

Daisy Chain 07-11-2015 02:19 PM

Hello to all,

I am thankful for being directed to this thread.

I have spent some time reading back learning of other peoples journeys and the support you offer each other.

I was very very happy to hear so many of you coming out the other side and living full, happy and healthy lives.

I will share a little of my own story later.

Wishing you all gentle days.

Daisy :bouquet:

clay 07-11-2015 02:34 PM

:bunchflowers: Welcome Ms. daisy! Glad you came in to post! Everyone here has made journeys! The folks here are so warm & kind! You will receive a very warm welcome! Feel free to post as little or as much as you want! We are great listeners and give wonderful hugs! I am thankful to be meeting you...and offer a hand of friendship....any time! Sending you gentlest of hugs....take care beautiful friend! I am so happy you are here! Clay....:goodluck: next week!
Quote:

Originally Posted by Daisy Chain (Post 999729)
Hello to all,

I am thankful for being directed to this thread.

I have spent some time reading back learning of other peoples journeys and the support you offer each other.

I was very very happy to hear so many of you coming out the other side and living full, happy and healthy lives.

I will share a little of my own story later.

Wishing you all gentle days.

Daisy :bouquet:


clay 07-11-2015 02:37 PM

Quote:

Originally Posted by DapperButch (Post 999718)
Hey,guys.

Looks like I never updated you. In Jan 2015, I got my colonoscopy (I suppose it had been a year out since the last one), and I had a pretty big polyp. It was benign, but he was concerned how big it had gotten so fast. He said I needed to get another in six months. Sooo, guess what time it is? Yep, 6 months later. Fun. I am playing phone tag right now with scheduling

It is also time for my CAT scan so that is scheduled for the end of July.

I will keep you all updated.

I hope that everyone is healthy.

hey Dapper! Good luck with your colonoscopy and CT scan! I have to get one soon also! Let us know my friend...hugs! Clay

TruTexan 07-12-2015 01:57 AM

Hello all, I wish each and everyone of you a healthy happy journey.

Tommi 07-13-2015 01:45 PM

Cancer has to get dropped into the ocean bottom. I am too busy.
 
Wheeeee:pirate-steer: Life goes on.

We got married May 2, 2015. . No time for cancer. Time for each other, time to travel, time for her folks who are in the sunset of their lives. Time to blend 2 pet families, and households of furniture. What a wonderful woman, what an amazing two years since we met.

No time for thinking about that recurrence the month we met. Enjoying the sexiest apron clad cook that feeds me healthy stuff, and waits on me hand and foot, without even realizing how wonderful she is. I want for nothing but time, lots more time. :firetruck::fireman::fireman::fireman::fireman:


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