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Chained Daisy 03-29-2018 11:35 AM
Quote:
Originally Posted by rustedrims (Post 1203118)
I am home now with my cats. It feels good. I get my MRI on the 16th to check things out in my head. I feel ok and getting a few things cleaned up around here. I left Moms on my own. She just wouldn't let up. I couldnt even put the blanket on the bed right. Had enough. When I was there she took very good care of me and I was very comfortable. I believe I over stayed my welcome. She also had a very hard time seeing me with that stuff and not being well. I do love my Mom very much. Its just been hard on all of us. I could eat as much as 3 horses and now I am eating barely enough to keep a mouse alive. Getting better with my appetite. 17 hits of radiation doesn't help either. Seeing the Dr. on the 20th to look at the MRI pictures. As long as things look good I am going to ask for 2 more weeks off then back to work. If things don't work out at work I will be able to retire comfortably. I want to work another year to teach that cancer that it didn't win. I did !

My heart goes out to us all. We will fight the fight and win !
Thank you for reading and caring the way you all do.

Sheila
Hi Shelia, Home with my cats is my favourite place to be ! Hoping your appetite comes back and you can build your strength to get back to work, I get how you feel you want to be able to return. Wishing you gentle days,

Daisy

easygoingfemme 03-29-2018 03:25 PM
Quote:
Originally Posted by rustedrims (Post 1203118)
I am home now with my cats. It feels good. I get my MRI on the 16th to check things out in my head. I feel ok and getting a few things cleaned up around here. I left Moms on my own. She just wouldn't let up. I couldnt even put the blanket on the bed right. Had enough. When I was there she took very good care of me and I was very comfortable. I believe I over stayed my welcome. She also had a very hard time seeing me with that stuff and not being well. I do love my Mom very much. Its just been hard on all of us. I could eat as much as 3 horses and now I am eating barely enough to keep a mouse alive. Getting better with my appetite. 17 hits of radiation doesn't help either. Seeing the Dr. on the 20th to look at the MRI pictures. As long as things look good I am going to ask for 2 more weeks off then back to work. If things don't work out at work I will be able to retire comfortably. I want to work another year to teach that cancer that it didn't win. I did !



My heart goes out to us all. We will fight the fight and win !
Thank you for reading and caring the way you all do.

Sheila
I'm glad you're home. That radiation buildup can be hard. When I was in it it was even harder than chemo sometimes and the lasting effects on my skin and muscle in the area that was hit is permanently changed. Hoping for a quick easy MRI, positive results, and a smooth transition back into your new normal.

easygoingfemme 03-29-2018 03:26 PM
Quote:
Originally Posted by Gayandgray (Post 1203442)
My spouse’s oldest daughter who lives in Indiana had told us she has liver cancer. We were waiting for all her tests to come back. Today she called and said it’s stage 4 and they are giving her maybe a year. My spouse is heartbroken and is not taking this well at all. Her daughter and her husband are flying out here a week after Easter to see us all one last time. I feel so helpless.
I am so very sorry to hear this. My heart goes out to your whole family...

Wrang1er 04-10-2018 12:55 PM
Mom got her CT scan today. We'll know next Tuesday if the cancer is gone. If it's gone I will be throwing her a "Kicked Cancer's Ass" party!

clay 04-10-2018 04:06 PM
Quote:
Originally Posted by Wrang1er (Post 1205164)
Mom got her CT scan today. We'll know next Tuesday if the cancer is gone. If it's gone I will be throwing her a "Kicked Cancer's Ass" party!
Sending you both gentle hugs & positive energies for an "all clean" report! Know you are in my thoughts always my friend!

Wrang1er 04-10-2018 07:11 PM
Quote:
Originally Posted by clay (Post 1205184)
Sending you both gentle hugs & positive energies for an "all clean" report! Know you are in my thoughts always my friend!
Thank you, Clay. It is much appreciated. Everyone here has been super supportive. :)

JDeere 04-10-2018 07:49 PM
Good vibes sent to all caregivers and kudos for doing what yall do.

My birth mother had hospice care along with one of my sisters helping her last 2 months of life. I have a ton of appreciation for how yall handle and do what yall do.

clay 04-13-2018 06:58 AM
My yearly CEA levels are great!! My tumor marker levels are <.5...so I am really happy about that! Dec 2017 was my 6th year cancer free!

My other labs were not so great. The extensive colon resection causes periods of being anemic. Now is one of those. Extremely so!
Pending , I start IV Infusion therapy in 2 weeks for 10 weeks and my monthly B12 shots will go to every other week during that time.

I have been extremely fatigued, having cardiac arrhythmias, and just stay sleepy all the time, have to get frequent naps in....my appetite sucks....:(.

BUT, I will bounce back, I just want to sit & rest ALL the time! I have little energy to do most anything ATM.

Thanks for listening......love to you all....:rrose:

Wrang1er 04-17-2018 07:09 AM
Today we find out if my mom's cancer is gone. I am nervous. I am sure she's is a wreck. I had to come to school to study but I am finding it hard to focus.

clay 04-17-2018 07:21 AM
Quote:
Originally Posted by Wrang1er (Post 1206499)
Today we find out if my mom's cancer is gone. I am nervous. I am sure she's is a wreck. I had to come to school to study but I am finding it hard to focus.
Sending positive energies & good juju, wrang!

clay 04-17-2018 07:23 AM
Quote:
Originally Posted by clay (Post 1205590)
My yearly CEA levels are great!! My tumor marker levels are <.5...so I am really happy about that! Dec 2017 was my 6th year cancer free!

My other labs were not so great. The extensive colon resection causes periods of being anemic. Now is one of those. Extremely so!
Pending , I start IV Infusion therapy in 2 weeks for 10 weeks and my monthly B12 shots will go to every other week during that time.

I have been extremely fatigued, having cardiac arrhythmias, and just stay sleepy all the time, have to get frequent naps in....my appetite sucks....:(.

BUT, I will bounce back, I just want to sit & rest ALL the time! I have little energy to do most anything ATM.

Thanks for listening......love to you all....:rrose:
Damn this anemia...last night was an hour & 15 min of an arrhythmia.......siggghh...come insurance company...let's get going here.....low hgb makes for low iron in cells & blood which plays havoc with the ole ticker!

Wrang1er 04-17-2018 07:26 AM
Quote:
Originally Posted by clay (Post 1206505)
Sending positive energies & good juju, wrang!


Thanks for always being supportive, Clay. It's much appreciated. I am sending good juju right back to you! :)

clay 04-17-2018 07:32 AM
Quote:
Originally Posted by Wrang1er (Post 1206507)
Thanks for always being supportive, Clay. It's much appreciated. I am sending good juju right back to you! :)
YVW my friend! Thank you as well...you are indeed a very warm, compassionate friend to me as well!

Wrang1er 04-17-2018 02:33 PM
Good news and bad news. The spots are still there and she has two more months of chemo. The good news is the spots are smaller. Her CA125 is within normal range. After chemo they will just monitor her through weekly labs.

Needless to say she's extremely disappointed. :(

clay 04-17-2018 06:36 PM
Quote:
Originally Posted by Wrang1er (Post 1206593)
Good news and bad news. The spots are still there and she has two more months of chemo. The good news is the spots are smaller. Her CA125 is within normal range. After chemo they will just monitor her through weekly labs.

Needless to say she's extremely disappointed. :(
Glad to hear CA 125 is now "wnl". I am sorry to hear more chemo. Hang in there my friend!!

Know you both are in my thoughts & prayers buddy!!

Wrang1er 06-05-2018 06:00 AM
Hopefully today is mom's last chemo (I know I've said this before). She was unable to get it last week because she had neutropenia. Her neutrophils (WBCs) were dangerously low. Hopefully she's within a range that will allow her to get it. We shall see.

Chained Daisy 06-05-2018 06:16 AM
Quote:
Originally Posted by Wrang1er (Post 1213642)
Hopefully today is mom's last chemo (I know I've said this before). She was unable to get it last week because she had neutropenia. Her neutrophils (WBCs) were dangerously low. Hopefully she's within a range that will allow her to get it. We shall see.
Fingers crossed she can get this last one done with, best of luck
:bunchflowers:

clay 06-05-2018 06:51 AM
Quote:
Originally Posted by Wrang1er (Post 1213642)
Hopefully today is mom's last chemo (I know I've said this before). She was unable to get it last week because she had neutropenia. Her neutrophils (WBCs) were dangerously low. Hopefully she's within a range that will allow her to get it. We shall see.
Hey wrang...sending mom & you gentle hugs! Hey, no worries...life does happen sometimes, so things have to be changed. I will be keeping you both close in thoughts & sending positive light your way. Wishing all the best possible outcomes for her, wrang!

clay 06-05-2018 06:57 AM
UPDATE: Tomorrow should be my last IV infusion at the oncologists...:). I am feeling a bit better with the 8 I have gotten. I am now back to monthly B12 injections (I give those to myself). My hemoglobin is up to 11, so will recheck tomorrow. My ferritin levels have come back up greatly...were down to 8. Am hopeful my RBC's will be in much better range this next lab draw, hopefully! I will be seeing the oncologist every 4 months instead of yearly.
Overall I am feeling a bit more energized now..:). Thank you all for continually supporting me & keeping me in some good juju! Wishing us all brighter days to come.

Chained Daisy 06-05-2018 09:32 AM
Quote:
Originally Posted by clay (Post 1213653)
UPDATE: Tomorrow should be my last IV infusion at the oncologists...:). I am feeling a bit better with the 8 I have gotten. I am now back to monthly B12 injections (I give those to myself). My hemoglobin is up to 11, so will recheck tomorrow. My ferritin levels have come back up greatly...were down to 8. Am hopeful my RBC's will be in much better range this next lab draw, hopefully! I will be seeing the oncologist every 4 months instead of yearly.
Overall I am feeling a bit more energized now..:). Thank you all for continually supporting me & keeping me in some good juju! Wishing us all brighter days to come.
So you are winning some battles there ! Good !! Sending lots of positivity that things will continue to improve my friend.

Wrang1er 06-05-2018 09:43 AM
Quote:
Originally Posted by Chained Daisy (Post 1213645)
Fingers crossed she can get this last one done with, best of luck
:bunchflowers:
Quote:
Originally Posted by clay (Post 1213651)
Hey wrang...sending mom & you gentle hugs! Hey, no worries...life does happen sometimes, so things have to be changed. I will be keeping you both close in thoughts & sending positive light your way. Wishing all the best possible outcomes for her, wrang!
Thank you to you both! She is getting her chemo now. The next step is a CT on the 25th and then an appointment with her oncologist on the 26th to go over the results. She's been feeling pretty poorly lately so I am hoping all this goes in her favor.

I appreciate your kind words and support. I wish you both the best and I am sending you positive vibes!

~W

P.S. I am super proud of myself. This is the first time I ever quoted multiple messages.

clay 06-06-2018 06:28 AM
Quote:
Originally Posted by Chained Daisy (Post 1213674)
So you are winning some battles there ! Good !! Sending lots of positivity that things will continue to improve my friend.
Yes on all fronts! Thank you so much for your valued friendship here! Sending good juju to you as well! Keep up that courage & strength, my friend! Have a wonderful day!! Gentle hugs!

clay 06-06-2018 06:32 AM
Good job on multiquotes, wrang!! I can't even do THAT! I even forgot how to post a pic to someone's page...:(.
Anyway, still sending good energy & strength to you & your mom. I will not remember these dates but do let me know how things go, please?
Hugs you both...

Thank YOU for your friendship & support always wrang!!

Quote:
Originally Posted by Wrang1er (Post 1213677)
Thank you to you both! She is getting her chemo now. The next step is a CT on the 25th and then an appointment with her oncologist on the 26th to go over the results. She's been feeling pretty poorly lately so I am hoping all this goes in her favor.

I appreciate your kind words and support. I wish you both the best and I am sending you positive vibes!

~W

P.S. I am super proud of myself. This is the first time I ever quoted multiple messages.

Wrang1er 06-06-2018 07:55 AM
Quote:
Originally Posted by clay (Post 1213794)
Good job on multiquotes, wrang!! I can't even do THAT! I even forgot how to post a pic to someone's page...:(.
Anyway, still sending good energy & strength to you & your mom. I will not remember these dates but do let me know how things go, please?
Hugs you both...

Thank YOU for your friendship & support always wrang!!
Always, Clay!

Wrang1er 07-03-2018 08:34 AM
Last Monday I took mom for a CT scan. On Friday we went to the oncologist. The 2 spots are still there. However, they don't know if they are cancer or not. They said it could be treated cancer. They have stopped chemo treatments for two months because they said her body can't handle any more at this time. Her body needs time to rest and heal. Her CA125 is within normal range. We'll go back in August to check those numbers again. Hopefully, they stay the same.

Chad 07-03-2018 09:25 AM
Quote:
Originally Posted by Wrang1er (Post 1217397)
Last Monday I took mom for a CT scan. On Friday we went to the oncologist. The 2 spots are still there. However, they don't know if they are cancer or not. They said it could be treated cancer. They have stopped chemo treatments for two months because they said her body can't handle any more at this time. Her body needs time to rest and heal. Her CA125 is within normal range. We'll go back in August to check those numbers again. Hopefully, they stay the same.
Normal range sounds hopefull. I am keeping you and your mom in my thoughts. I wish you my best and I hope that your mom recovers.

Chad

Wrang1er 07-03-2018 10:51 AM
Quote:
Originally Posted by Chad (Post 1217412)
Normal range sounds hopefull. I am keeping you and your mom in my thoughts. I wish you my best and I hope that your mom recovers.

Chad
Thank you, Chad. Overall she is doing well. She walks every day, goes to the YMCA a few times a week to swim and walk. She does things outside like working in the flower beds and various other activities. She just gets tired very quickly but doesn't sleep well. Plus, she's much weaker than she was.

She's also doing things like backing the car into the flower bed. Then she went to the store but forgot a few things on her list so I had to run back over there. I think the chemo has caused her to become a little foggy. Hoping that fog lifts during the chemo break.

I hope you and your mom are doing well. The addition sounds nice. Maybe you could add another wing for weary butches.

Thanks again!

Chad 07-03-2018 12:28 PM
Quote:
Originally Posted by Wrang1er (Post 1217421)
Thank you, Chad. Overall she is doing well. She walks every day, goes to the YMCA a few times a week to swim and walk. She does things outside like working in the flower beds and various other activities. She just gets tired very quickly but doesn't sleep well. Plus, she's much weaker than she was.

She's also doing things like backing the car into the flower bed. Then she went to the store but forgot a few things on her list so I had to run back over there. I think the chemo has caused her to become a little foggy. Hoping that fog lifts during the chemo break.

I hope you and your mom are doing well. The addition sounds nice. Maybe you could add another wing for weary butches.

Thanks again!
Yep, I think you and I will chat a lot as time goes by. Mom can still take care of herself but I am worried about the times that she may need a lady around.

Best wishes your friend,
Chad

clay 07-03-2018 08:26 PM
Quote:
Originally Posted by Wrang1er (Post 1217397)
Last Monday I took mom for a CT scan. On Friday we went to the oncologist. The 2 spots are still there. However, they don't know if they are cancer or not. They said it could be treated cancer. They have stopped chemo treatments for two months because they said her body can't handle any more at this time. Her body needs time to rest and heal. Her CA125 is within normal range. We'll go back in August to check those numbers again. Hopefully, they stay the same.
This is hopeful news, wrang! I have been sending some really positive energies to the universe for your mom. Every.Single.Day!

Will continue that. Know you are always in my heart & thoughts my friend. Contact me anytime, and I am sincere!

Wrang1er 07-03-2018 08:30 PM
Quote:
Originally Posted by clay (Post 1217479)
This is hopeful news, wrang! I have been sending some really positive energies to the universe for your mom. Every.Single.Day!

Will continue that. Know you are always in my heart & thoughts my friend. Contact me anytime, and I am sincere!
Thanks so much, Clay. Your continued kindess and positive thoughts mean a lot to me!

You rock!

~W

Chained Daisy 07-04-2018 03:17 PM
Quote:
Originally Posted by Wrang1er (Post 1217397)
Last Monday I took mom for a CT scan. On Friday we went to the oncologist. The 2 spots are still there. However, they don't know if they are cancer or not. They said it could be treated cancer. They have stopped chemo treatments for two months because they said her body can't handle any more at this time. Her body needs time to rest and heal. Her CA125 is within normal range. We'll go back in August to check those numbers again. Hopefully, they stay the same.
Thats sounding pretty positive to me Wrangler, I`m so glad for both of you.

Wrang1er 07-04-2018 06:49 PM
Thank you, Ms. Daisy! :)

clay 07-22-2018 10:45 AM
Had an EGD & colonoscopy Wednesday...first one in 2.5 yrs.

Doc did a biopsy of "suspicious spot" in my stomach, so awaiting that biopsy report. Had some oozing post biopsy, so she had to keep pressure on that area for a bit. I was back under anesthesia for 1.5 hrs instead of usual 45 min or so.

I am having paroxysmal pain in the ascending colon, just at splenic flexure ...so not sure what is going on. Doesn't require any pain meds. I am not worried, leaving it all in the Goddess's hands!

Have a beautiful Sunday everyone. Keep fighting & know I send you all positive energies & gentle hugs.

Chained Daisy 07-22-2018 03:26 PM
Quote:
Originally Posted by clay (Post 1219678)
Had an EGD & colonoscopy Wednesday...first one in 2.5 yrs.

Doc did a biopsy of "suspicious spot" in my stomach, so awaiting that biopsy report. Had some oozing post biopsy, so she had to keep pressure on that area for a bit. I was back under anesthesia for 1.5 hrs instead of usual 45 min or so.

I am having paroxysmal pain in the ascending colon, just at splenic flexure ...so not sure what is going on. Doesn't require any pain meds. I am not worried, leaving it all in the Goddess's hands!

Have a beautiful Sunday everyone. Keep fighting & know I send you all positive energies & gentle hugs.
Clay, sending lots of positive thoughts and healing energy your way. :rrose:

I like the sentiment `leaving it all in the Goddess`s hands` that has been my mantra of late.

clay 07-22-2018 06:16 PM
Quote:
Originally Posted by Chained Daisy (Post 1219710)
Clay, sending lots of positive thoughts and healing energy your way. :rrose:

I like the sentiment `leaving it all in the Goddess`s hands` that has been my mantra of late.
This is a sweet note! I appreciate your support, my friend! It is all going to be good! Hugs you back.....(((((((((((((CD)))))))))))))

clay 07-24-2018 01:45 PM
The path report was benign! Whewww...been a long week!
I am still having pains in area of top of stomach/intestine area, so we will talk on the appointment the 15th of what to do next, investigatively. 1. To find why I am so anemic, 2. To find out source of pain....and a course of action. She said I may have to swallow a camera pill, so we can see all the way thru the GI tract! This procedure is a bit of a danger for me, due to a really large ventral hernia that if said camera were to get hung up, that is open abd surg...:(.

So, again, we "wait & see"....

Chained Daisy 07-24-2018 03:28 PM
Quote:
Originally Posted by clay (Post 1219949)
The path report was benign! Whewww...been a long week!
I am still having pains in area of top of stomach/intestine area, so we will talk on the appointment the 15th of what to do next, investigatively. 1. To find why I am so anemic, 2. To find out source of pain....and a course of action. She said I may have to swallow a camera pill, so we can see all the way thru the GI tract! This procedure is a bit of a danger for me, due to a really large ventral hernia that if said camera were to get hung up, that is open abd surg...:(.

So, again, we "wait & see"....
Pheww indeed. What a relief ! I know you still have a way to go, more concerns and issues to resolve but benign is a wonderful update. Stay strong my friend :rrose:

Wrang1er 08-22-2018 12:11 PM
It looks like it is back to chemo for my mom. We went in June and her CA125 was 15 and yesterday it was at 39. Next Wednesday they will do another CT scan and then we'll discuss what to do next. She has been on a break because they said she couldn't handle any more chemo. Yesterday they said because her cancer came back once before it will most likely be recurring. The oncologist said that just like some people take medicine for high blood pressure she will need chemo to treat cancer most likely until the end of her life. After leaving the hospital my mom said that it will probably kill her.

I just don't know anymore. I don't know what it means for either of us. Just when you think it's gone it rears it's ugly head and punches you right in the gut.

clay 08-22-2018 12:18 PM
(((((((((((((((((((((((((((((((((((Wrang & Mom)))))))))))))))))))

Sometimes, it is just deciding when "enough is enough". When they have a fighting spirit & a will to live, then they will fight hard! When they are just tired & want to have quality vs quantity, then decisions have to be made.

Neither is an easy choice, and I do not relish that for either of you.

I DO know that I will be sending as much white light & positive energies as I can. Know that someone is there for you both......my friend.....gentle hugs....


Quote:
Originally Posted by Wrang1er (Post 1222937)
It looks like it is back to chemo for my mom. We went in June and her CA125 was 15 and yesterday it was at 39. Next Wednesday they will do another CT scan and then we'll discuss what to do next. She has been on a break because they said she couldn't handle any more chemo. Yesterday they said because her cancer came back once before it will most likely be recurring. The oncologist said that just like some people take medicine for high blood pressure she will need chemo to treat cancer most likely until the end of her life. After leaving the hospital my mom said that it will probably kill her.

I just don't know anymore. I don't know what it means for either of us. Just when you think it's gone it rears it's ugly head and punches you right in the gut.

Chained Daisy 08-22-2018 01:20 PM
Quote:
Originally Posted by Wrang1er (Post 1222937)
It looks like it is back to chemo for my mom. We went in June and her CA125 was 15 and yesterday it was at 39. Next Wednesday they will do another CT scan and then we'll discuss what to do next. She has been on a break because they said she couldn't handle any more chemo. Yesterday they said because her cancer came back once before it will most likely be recurring. The oncologist said that just like some people take medicine for high blood pressure she will need chemo to treat cancer most likely until the end of her life. After leaving the hospital my mom said that it will probably kill her.

I just don't know anymore. I don't know what it means for either of us. Just when you think it's gone it rears it's ugly head and punches you right in the gut.
Quote:
Originally Posted by clay (Post 1222940)
(((((((((((((((((((((((((((((((((((Wrang & Mom)))))))))))))))))))

Sometimes, it is just deciding when "enough is enough". When they have a fighting spirit & a will to live, then they will fight hard! When they are just tired & want to have quality vs quantity, then decisions have to be made.

Neither is an easy choice, and I do not relish that for either of you.

I DO know that I will be sending as much white light & positive energies as I can. Know that someone is there for you both......my friend.....gentle hugs....
Wrangler, I dont think I could of said it any better than our friend Clay. It really is about how much more of this fight she can handle. You and your Mom both must be very weary. This is hard to hear after the chemo break. Sending you love and light as you process this latest news. :rrose:


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