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Belle, I have no idea. Good idea to think about. :rose: |
there's so much i could write about how communication could go smoother between NT's/AT's, from my own ideas/observations- but if one party is unwilling to see there will be differences [both ways !]- in use of phraseologies/tone/timing/pacing of conversation/body language, what difference does it make ?
immediate judgments, & accusations- could possibly be avoided, and the issue[s] survivable if there's room for lots of patience, a willingness to go there and stay the course, and support- a space made for the person talking at the time to be fully heard, and respected for their feelings/thoughts -without immediately mowing the person down by connecting the words of the speaker to previous experiences, expectations, learned from wherever/whomever- but that's hard work. how does one unlearn decades of learning/being conditioned - or living sort of on your own island with AT wiring ? AT's can get stuck in a mode of thinking they are right just as easily as NT's; AT's could think of an NT in unfavourable light, as quickly as an NT could do the same- |
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I know in my case almost all of my socialization behaviors did not come naturally. I learned them from experience and observation. I am learning to be flexible with what I think I know, or have learned. But it is indeed hard work (exhausting). Expectations. The Dalai Lama says that to have true happyness we must give up expectations and how true this is. I do still want to be understood though. I keep hoping. |
More on thinking we are right.
I guess maybe everyone does to an extent? I wonder if my thoughts are reasonable to other people....easy to understand. It amazes me when I write post after post and someone reads it and reacts to 4 words I said which to me are not interconnected....and I wonder is it my inability to communicate, or is it their reading comprehension. Likely somewhere in the middle. :) |
I just wanted to take a moment to thank each of you for sharing on this thread. As the mom of an Aspie, it gives me a very unique perspective to read your thoughts from the "me" space that I have to work so hard to get from my son.
Your sharing always makes me take pause to reflect upon how I might better communicate with bratboy and I daresay its helped me be a better mom. As he reaches legal manhood, my heart gets all caught up in how he will be able to fare in the world. You all make me very hopeful that he will be most successful. Thank you. Much love, C |
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Actualy it is so difficult for me to separate what I think and what I feel and what the difference is and how to put it into words...especially in person. I still at my age and unclear as to what the difference in thoughts and feelings really is. My therapist is always trying to give me examples...but I still am all over the place. Your son is lucky to have you! xoxo |
Just wondering how a Neuro Pediatric Doctor could be so uneducated
I want to scream she isn't mentally challenged she's on the spectrum, but I remained calm, listened to the babble and lists of medications he will give her; then my reply you're more of an azz than most you can take your medication and shove it to the sun never shines again, i'll take my beautiful, talented, empathic child home where she is love and understood. sorry i needed to vent |
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This is one of the MOST frustrating parts of being the parent of my Aspie. Educating the educators, teaching the teachers, etc... I don't know if its a matter of uneducated or more a matter of "this is what I think and I am a doctor and I am GOD" situation. Depending on where you live, there are physicians/institutes specifically for autism/spectrum. Vanderbilt in Nashville has TRIAD and while I had dreamed of such a place when bratboy was young and Aspie's were relatively unheard of, I did use them once they came into existence and he loved, LOVED going to summer camp with other spectrum kids. It was pricey, but worth it. The only thing I know to tell you is to keep "doctor shopping" - you will eventually find one who makes you comfortable and confident. As an aside, I was yahoo'ing with bratboy last night. The conversation went like this: Him: "Mom, does anyone at your work know iPhones?" Me: "Yep. Why? Is yours broken? It has a warranty." Him: "Can you see if they know how to jailbreak one?" Me: (in my techy ignorance I wasnt about to let on that I didnt know what in the HELL he is talking about) "Sure, bugs. Turn on your yahoo when you get home from school tomorrow and I will let you know." Now, my IT fella explained it to me, but I still dont know why bratboy needs to do this to a $400 phone. Today's conversation went a lil like this: Me: "Why do you need this?" Him: "So I can turn it into a modem for my laptop" Me: "You have a wireless connection - why do you need a modem?" Him: "So I can have internet at school." Me: "You have access at school. Why do you need this?" Him: "Cause they block crap I am trying to look at like youtube and myspace." Me: :overreaction: These are the times when I call Jess and say, "Honey!! You aint gonna BE-LIEVE what YOUR son did now!" Poor Jess - not only inherited the bratboy, but now has to take ownership when the bratboy does some crackheaded crap! LOL |
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The boy is BRILLIANT! I say, BRILLIANT! and may need minor medical attention if he breaks that phone... jus sayin :furious: actually, I will introduce him to the groovy old school phone this summer.. two cans and a string.. jailbreak THAT schmart guy :rofl: |
no more of this: :snowballfight:
[except i'll toss them at andrew once in a while ;) = oxox ] now it's time for motorbikes! i hope you all have a safe and interesting weekend. |
Oh Belle, Love you can hit me with snowballs anytime! :hangloose: Love, Andrew oxoxox |
i am spending time away from the state of indiana, with an amazingly intelligent and beautiful little aspie girl of nine years :artist:
:heartbeat:[she walks on her toes too!!] :listening: |
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Two peas in a pod:deepthoughts::girleating::love1:love at first sight |
Just dropping by to say hello to everyone here. I hope you all are well, and enjoying your day! :danceparty: |
good afternoon
hallo to everyone from tennessee-
tomorrow, i will be leaving a beautiful family and state for home [indiana]. we have had a great time together, and being around another aspie girl- who is similar to me in some ways [exact in others!] is just the best. listening to people discuss how alike we are brings a big smile to our faces. oh! and she loves vegan fare :) hope you are all doing well, and have a peaceful week. andrew, i am looking for a snowball to toss your way ;) belle |
Belle, You can toss one anytime, day or night. If I am zzzz I am sure Mr. Dino will be ready to catch it and play catch with you. He is like that. Just a lovebug! Today is hard. I am struggling with words. I feel like I am in a void. Does anyone else feel like that? |
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I hope you feel better! |
Belle, how cool that you got to spend some time with yoru friends, it sounds perfect!
:cheer: |
A cooling unit - that is it perfectly. I just cannot stop it. What do you do? I have tried my migrain meds...nothing. I used my reading glasses...nope. I just have no clue. I tried to watch TV...it made it worse.
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13 years I was diagnosed with:
Hyperprolactinemia- an extremely low grade cancerous brain tumor of the pituitary. In my case, the hypothalamus is affected. No surgery for its removal. It was successfully shrunk down to micro size with synthetic dopamine, known as "Parlodel." I'll take this for the rest of my life. Before it was shrunk down, I experienced 3 grand mal seizures while on vacation. The seizure was in my left temporal lobe and the area right behind it,speech, was damanged. The ability to look at picture type instructions/perform with hand direction is also damaged. During the first year of the diagnoses, I experienced blinding migraines and was ultra sensitive to light and movement. I required a surgery immediately after the diagnoses to remove a grapefruit dermatoid cyst from my right ovary. It was peeled off as I refused to allow the remove of my ovary. I was also diagnosed with fibromyalgia that year. I take 10 medications a day to help my brain along. Most people have no idea anything is "wrong" with me. That's a blessing and curse depending upon the situation. I've had about 20 surgeries. I guess the bottom line is the little tumor leaves me with a compromised immune system, weak muscles, light memory loss, asthma, sensitivity to cold and light, light impared speech that worsens with fatigue, and nasty insomnia. Geesuz, I just accidently turned on my web cam while writing this. That was scary. My new laptop freaks me out sometimes. But I digress. If anyone has any questions about pit tumors, I'd be happy to try to answer them. Ditto with any of the other diagnoses. |
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I was wearing my MP3 player in public places that freak me out...like the grocery store and crowded airports...but my G/F says that is dangerous. So I don't know. |
So, does anyone have numbness in parts of their body other than hands?
There is a place on one of my thighs which goes numb or gets tingly sometimes and parts of my back. Sould I be concerned? |
on NT and AT people who are in relationships -
sent from a friend:
".. There are just relationships between two people -- two complex people -- and in some cases, some of these people have Asperger's. If a relationship fails between an AT and a NT, there are too many factors to say for sure that the cause was Aspergers. Of course, if Aspergers (or ADD or whatever is present), it's easy to point to that and claim (and really feel like) that's the cause. But you can't know that. In any relationship, both people have their problems. I'm sure that, even as an NT, you're not 100% easy to live with. Relationships work because both people are willing to work on, work through, solve, live with or overlook problems. An Aspie is no different. Aspies may have to work harder at certain things, but they can do the work if they choose to. So once again, it's not about Aspergers, it's about the individual. So the real question is, can you and your boyfriend/girlfriend -- two PEOPLE -- make it work? No one here can answer that for you. But even if you can't work it out, that says nothing about whether you could have a happy relationship with some other Aspie. It just says you can't have a happy relationship with your boyfriend/girlfriend..." - |
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acceptance-
liam,
yes. dating someone else who is on the spectrum/AT does seem [at first glance] to present fewer complications communication-wise. a lot of the time, i really believe that i can only make sense to the other person when we are no longer involved. here is something i've been considering of late, please- we are taught that honesty is the best policy ; psychology books, therapists, parents, friends, partners, siblings, et c- sugget that we 'say what's on our mind' and 'don't hold feelings/thoughts in for it's unhealthy to do so' . ohk. outside of times being 'light/happy' i've certainly known conflicts to arise whenever i do speak my truth, and am able to freely admit how i feel [all across the board], answer questions honestly, and communicate 'matter-of-fact' without a hidden agenda, why does it more often than not backfire ? ? several NT's have told me that AT's [by wiring] do try the right communicative efforts- [ironically, this comes from phrases and books mostly coined / written by NT's!]- yet, NT's are not 'used to it being so easy/uncomplicated/natural/open" and are expecting a host of unsavoury layers- because a lot of insecurities/triggers - already in place from ... ? much too much to wrap my head round. seems to make relationships set up for failure at the onset then. i would like to think that there are NT's out there who can have The More Serious-type of conversation [serious does not = Negative!!]. are there NT's who do not personalise to a huge extent ; are not defensive as hell ; and when things turn difficult, matters do not get made worse by adding stuff unrelated to 'issues', and honesty/vulnerability/trust/the relationship/people = can remain intact. is that asking for the moon? |
Cynthia and I are both on the Spectrum, but still we have huge differences in communication.
We both have to work hard to communicate and have to ask a lot of questions and be patient with each other. In a way I think AS helps, in that we are both so self absorbed we know more about ourselves than most people do? and can explain ourselves to each other. Great post Belle! Best of luck to you Liam, she is out there somewhere :) |
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I agree that I often get along better with my exes once we break up, beacsue then they can see that there is no hidden agenda. So, Cynthia and I, after a 5 year break up where we learned more about ourselves, decided to give it another shot becasue other than the attraction we share many interests, goals, morals, etc. I has been way hard work, but after 5 years back together this June I can say that we are happy and well suited. It's not perfect and we do have to work at communicating a lot, but we are closer than we have ever been. Every day is a learning experience. It was not like that from day one. We have had really rough patches, but we both are committed to do everything we can to make this work. |
noteworthy-
my aspie friends do not get so angry [with me or in general] . forgive quickly and have great bounce-back . see a glass half-full . appreciate the little things . acceptance is in abundance with aspies i've known .
it doesn't matter about looks, $, words tumbling out all wrong, being locked inside for a few moments, space-missions, holding someone's space in sitting with difficult emotions/thoughts is possible any hour!, and the kid at heart:playingcat: is ever-present <3 |
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I pretty much have eliminated anyone who does get angry with me a lot from my life. I have been way happier since. To forgive quickly is a virtue as is acceptance! :) and The ability to not take things personally when I am in meltdown. For me to be able to say I am freaked out and just leave or take some time to myself. |
I hope I'm not intruding, but I read over this thread regularly. I guess you would call me an NT - although I hate using the term 'normal' for anything. The reason for my post is that I just wanted ya'll to know how brave you are for putting yourselves out here like you do. I have learned a tremendous amount on this thread, and admire each and every one of you.
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talents & interests - what are yours, please?
i love to write [poetry/haiku/iambic pentameter/screenplay] , draw-pencil, ink , charcoal ,& india. photography is a huge passion . while i was in art school [photography], i decided that social commentary was my responsibility. documenting [image+story] chained dogs began years ago, and i use the photos today in order to better serve outside dogs [the ones we all notice who are 24/7 tethered miserably, and basically forgotten souls.] not glamourous work by any means, like portraiture/wedding photography, but connected are two of my main loves: dogs/photography.
i have so many interests from ants to zoological parks [scheduling lecture series!]. ha. i bet many of you are similar? :walking-poodle: |
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I've been known to have the earbuds in and the player off - it keeps the Momma in law from being chatty patty :dance2: I would be interested in how C perceives this to be a personal safety issue. |
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Thank you and I love the new screen name! :) Quote:
I like trains, history, maps, art, music, literature. I do write poetry too, and often rhyme even when I don't mean to. I like geeky stuff like what airlines are from which country, stops on train routes, history of man made lakes...information. What year a song came out, label and other info. Diseases. I drew all the time when I was little, I need to do more of that now. I love color. Quote:
I am not sure either, maybe that I won't be paying enough attention? or maybe that she herself is nto able to multitask, so she assumes I can't? Must ask. :) |
Thank you for the correction Liam, and my apologies to everyone.
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neurologist.turned.hedge.fund.mgr w/asperger syndrome predicted disaster-
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Special education Week
http://www.edweek.org/ew/index.html?intc=ml
Full of info regarding education needs and progress for "special needs". |
"Every human being is the author of his own health or disease." -Buddha |
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There are so amny times that things seem so obvious to us, when other people don't see. TU for posting! :) Quote:
I agree to an extent, except it is so simplified as to almost suggest blaming the victim. Yes, every thought we have influences us and our health and if we give up all expectations and devote ourselves to meditation and prayer and someone else is paying our bills so we can...then Yes, we will have less stress induced illness. |
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