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Old 07-13-2010, 11:38 AM   #27
SuperFemme
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Snow, thanks for your amazing post, and I'll be back to address that in a moment.

I hope that I am conveying what I want to in this thread, and from the responses so far? I think I am...

Do I think the people in my world/life should know what TBI looks like? Yes. I do because we care about and love each other. So understanding each other is super important.

I do think it's up to me (in large part) to educate those in my immediate world. In a very honest way. That way when I tell people that I love 17 times in a half hour conversation that a dog chased me down the street today they don't light themselves on fire. Instead, they steer me somewhere else.

I made Snowy and Plato NUTS when balloon boy happened. I couldn't stop talking about it, being angry about it and looking for new information about it. I don't know how to stop myself when I perseverate. Which is awful.

Definition?: perseverate - psychology: repeat a response after the cessation of the original stimulus; "The subjects in this study perseverated"

Now, when I start to perseverate they grab me and say "Balloon Boy". Which is my cue that I'm doing my thing again. It's up to me to stop it though, otherwise I find myself alone while everyone else goes out and does something fun that does not involve "Balloon Boy".

I suffered seizures for a long time, but haven't had one in about a year now. Certain foods and activities brought seizures on. I didn't want anyone policing me and walking around next to me with a pillow just in case I went down. Over time I learned how to really work at NOT doing things that caused seizures.

So why am I sharing all this personal stuff? Because believe me, it puts me in a very vulnerable place. I know how mean people can be, and how sometimes things are funny. That aren't.

I just really want people who are NOT differently-abled to know that their love and empathy is appreciated. Knowing that people care is the best feeling in the world. Caveat? Letting me do things over and over again and feeling sorry for me harms me. It does not help me.

I understand the intentions behind feeling protective of someone with a different-ability, and I think it's great. What I find problematic is not holding us accountable for ourselves. It is disempowering to suggest a differently abled person cannot learn to self moderate.

I guess I don't want to be read differently. If that means giving someone who makes an asswipe statement the same consideration that you'd give a person with a different ability then so be it. That just means we're spreading the same amount of compassion around to everyone. Which is never a bad thing, right?

But I don't want special consideration. Because I have to live in the same world as the rest of you. With the same rules and laws. If I make a mistake, a police officer isn't going to give me special consideration. I'm going to get in the same kind of trouble as everyone else.

So to give the false security that rules do NOT apply to me is truly in the end, something that disables me further.
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