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Old 09-21-2013, 02:55 AM   #34
PoeticSilence
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Having become recently disabled (lymphedema, fibromyalgia, anxiety, depression) I've had to learn some new things. The main things I have to be careful of is knowing my limits, not being able to walk further than ten to fifteen feet (assisted, i.e. with a walker or cane) and unable to stand in place for more than five minutes.

I do a lot of exercises in bed since I'm in bed a lot of the time during the day.

I have a shower chair (backless) that I can sit on and do all of my stretching, which I do three times a day.

The wife cooks for me and I'm not a big eater. My snacks are the problem, I will eat a whole can of wasabi flavoured pistachios, or a whole can of mixed nuts, etc. She has to limit my snacks (not too hard, just put them where I can't get them) She also buys weight watchers ice cream bars for snacks.

I used to have a fluid issue regarding my intake of fluids, I haven't had that trouble in a few years, but for a long time I was drinking double what most people did and would still be thirsty. Nope..NOT diabetic.

I gave up smoking, not even an issue. I have oxygen added to my bipap machine that is supposed to help with healing in my legs, seems to help me with alertness.

I don't meditate per se, but I do practice thoughtfulness. I pick a few subjects and I give them a lot of thought. If it's pain, then that's what I think about, different ways to approach it, how it affects me, how it makes me feel, how I let it affect me outwardly, etc.

I don't plan to have this forever. I know it's spreading, and it is incurable, and it never "goes away" but I wasn't expecting it, and it doesn't fit into my future plans, so I'm not planning on having this illness forever.
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Last edited by PoeticSilence; 09-21-2013 at 02:59 AM. Reason: added identifiers
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