Member
How Do You Identify?: femme-babygirl-brat
Preferred Pronoun?: She, her
Relationship Status: Justin's babygirl
Join Date: Feb 2012
Location: So Cal
Posts: 733
Thanks: 1,608
Thanked 3,254 Times in 646 Posts
Rep Power: 21474849
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Tired and sad
Last summer "Justin" my spouse was diagnosed with end stage liver failure considered terminal. We have spent the last 9 months learning how to live our new normal. I am doing my best to keep her alive, healthy as I can and keep her comfortable. She is doing better just battling serious weight loss and fluid buildup from the liver not working well which is causing severe pain. She also was diagnosed with kidney failure. I have developed lists for all appointments with all her updated info and any changes. I have become a fierce advocate and voice for her as some Drs like to ignore needed treatments or act like I haven't done extensive research. It's one of the hardest things I have ever experienced watching the one I love with everything slowly lose more and more of their independence, but also hopeful watching how hard she's fighting to keep somewhat of a normal life. She was able to return to work from home and that has helped her so much. Much love and support to all the caregivers out there. sorry for the rambling
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