Spinal Cord Stimulation

ravfem · 11-30-2010, 09:48 AM

Just got home from a visit with a neurosurgeon regarding my chronic lower back & hip pain.

He suggests a trial run with SCS, and i would love to get opinions from those of you who have experience with this. Pros, cons, suggestions....anything.

Thanks!

katsarecool · 11-30-2010, 11:08 AM

I had this device implanted August of 2004 to block the pain of a badly damaged nerve. It was successful. Although it took much longer to recover from the sugery than the doctor predicted. 6 months rather than six weeks. The trauma of the surgery brought about fibromyalgia. In hindsight if I had to do it over again I would not. But that is just me. Every patient is different. Good luck what ever you decide. If you have any other questions please feel free to PM me.

DomnNC · 11-30-2010, 11:46 AM

Hi rav,

My pain management Dr wanted me to try this, however they consider a 40% reduction in pain a success. He couldn't even guarantee a 40% reduction at that. To me, personally, it wasn't worth going thru the surgery, being sliced almost all the way down my spine, then a diagonal slice from between my shoulder blades, down and around to my stomach to where he wanted to implant the device (he said I didn't have enough ass to put it there, lol) and then a surgery every 9 years to replace the battery. It just wasn't worth it to me. I told him when he could guarantee a 80% or better reduction in pain then we'd talk about it, til then, no slicing me up for that.

I'm kinda surprised a neurosurgeon is talking to you about that, in Charlotte it's the pain management Dr's that handle that.

katsarecool · 11-30-2010, 11:51 AM

I forgot all about that we saw the same pain mgmt group in Charlotte. You are right about the percentage though. I was fortunate that I got a 95% pain coverage. Dr. B over there wanted to make me a poster person for the SCS. Then I wanted to kill him for the fibro! J/K!!!

DomnNC · 11-30-2010, 11:54 AM

Quote:

Originally Posted by katsarecool

I forgot all about that we saw the same pain mgmt group in Charlotte. You are right about the percentage though. I was fortunate that I got a 95% pain coverage. Dr. B over there wanted to make me a poster person for the SCS. Then I wanted to kill him for the fibro! J/K!!!

Lol, that's right! I'm sure you indeed wanted to do that as well. That's about like when I woke up from my last back surgery in pain unlike nothing I've ever felt and when my neurosurgeon came to see me in my room and I crooked my finger at him to come closer. He refused, lol, cuz he knew I wanted to belt him a good one, lol.

katsarecool · 11-30-2010, 12:02 PM

Quote:

Originally Posted by DomnNC

Lol, that's right! I'm sure you indeed wanted to do that as well. That's about like when I woke up from my last back surgery in pain unlike nothing I've ever felt and when my neurosurgeon came to see me in my room and I crooked my finger at him to come closer. He refused, lol, cuz he knew I wanted to belt him a good one, lol.

My first laugh of the day; a deep throated giggle!!!

Corkey · 11-30-2010, 06:31 PM

I have one and it works well when I have it on, which is anytime my wife comes close to the battery with her bracelet that has a magnet. Now that being said, everyone is different and every outcome is different. Your mileage will vary. Sometimes it helps sometimes it doesn't. I've had mine since 2002 and had the battery recharged in a doctors office without being sliced open again. It all depends on which unit your surgeon puts in.
Do your research on the companies as well as recalls happen for all kinds of reasons. Mine is anchored to my spine in 3 places and only 2 small scars, which healed just fine. Up and moving the very next day and back to my normal differently abled self in 2 weeks.

Be advised you will if traveling by air no longer use the metal detector, or go thru any magnetized environment like your library, certain stores that use magnets as they're shoplifting deterrent. You also will never have another MRI, and can only have CT scans.

Your outcome will vary. Good luck and I hope you feel better.

Hack · 11-30-2010, 06:55 PM

I've put this on a very far back burner when suggested by my pain management doctor. I know someone who had one, had if shift on her when she lost some weight and it created all kinds of problems.

Do you have a pain management doctor? I highly recommend finding a reputable pain management center near you (most major hospitals have one) and finding a doctor there who can help manage not only your pain, but pain meds and any treatment or procedures. My pain doc is a godsend.

Jake

katsarecool · 11-30-2010, 07:27 PM

Quote:

Originally Posted by Corkey

I have one and it works well when I have it on, which is anytime my wife comes close to the battery with her bracelet that has a magnet. Now that being said, everyone is different and every outcome is different. Your mileage will vary. Sometimes it helps sometimes it doesn't. I've had mine since 2002 and had the battery recharged in a doctors office without being sliced open again. It all depends on which unit your surgeon puts in.
Do your research on the companies as well as recalls happen for all kinds of reasons. Mine is anchored to my spine in 3 places and only 2 small scars, which healed just fine. Up and moving the very next day and back to my normal differently abled self in 2 weeks.

Be advised you will if traveling by air no longer use the metal detector, or go thru any magnetized environment like your library, certain stores that use magnets as they're shoplifting deterrent. You also will never have another MRI, and can only have CT scans.

Your outcome will vary. Good luck and I hope you feel better.

Absolutely the down side not being able to have an MRI!!! I recently had a breast cancer scare and was unable to have an MRI and had to undergo a painful and invasive breast biopsy instead.

As far as going through metal detectors turning the device to Off is adviseable. Or one could get a nasty little jolt. It is also unadviseble to having it turned on while driving. Sudden sharp movement of our bodies can cause a jolt and that does not need to happen while driving 65 mph.

Overall when I use mine I get a good relief. Again good luck!!!

Corkey · 11-30-2010, 07:30 PM

Even in the off position the magnets can effect the leads. One should not go thru any device which is magnetized. That's why one gets a card that they must show to TSA etc....

katsarecool · 11-30-2010, 07:33 PM

I have never had a single problem with my device and I always walk through the detectors. But like you said every patient is different. And these are the questions patients should ask the surgeon before having this surgery.

The maker of my device is Medtronic. The rep was actually in the room when I had the surgery sitting on a stool looking up and talking me through the process.

Corkey · 11-30-2010, 07:36 PM

The very same, and yes every one is different but the leads are made of a very fine material that exposed to the effects of magnets will break and cause one to have to have them replaced. I'm not taking any chances.

ravfem · 11-30-2010, 10:15 PM

i appreciate all the input, thanks y'all.

i do have a pain management team, and have had chronic issues for well over a decade that are now getting pretty bad pretty quickly.

If i did the SCS, my pain mgt dr would do the temporary one and the neurosurgeon would do the permanent one.

i'm still thinking and reading and weighing everything, but i do appreciate everyone sharing!

katsarecool · 11-30-2010, 11:22 PM

Wishing you all the best!!!! Chronic pain sucks!!!

11-30-2010, 09:48 AM	#1
ravfem Senior Member How Do You Identify?: i'm a girl Relationship Status: negative Join Date: Feb 2010 Location: Georgia Posts: 1,811 My Photo Gallery Thanks: 9,239 Thanked 3,126 Times in 1,269 Posts Rep Power: 1969285	Spinal Cord Stimulation Just got home from a visit with a neurosurgeon regarding my chronic lower back & hip pain. He suggests a trial run with SCS, and i would love to get opinions from those of you who have experience with this. Pros, cons, suggestions....anything. Thanks! __________________

11-30-2010, 11:08 AM	#2
katsarecool Member How Do You Identify?: Femme Preferred Pronoun?: She, Her, Woman Relationship Status: Single Join Date: Oct 2010 Location: Between Athens and Atlanta, Georgia Posts: 1,236 My Photo Gallery Thanks: 3,849 Thanked 1,765 Times in 734 Posts Rep Power: 323365	I had this device implanted August of 2004 to block the pain of a badly damaged nerve. It was successful. Although it took much longer to recover from the sugery than the doctor predicted. 6 months rather than six weeks. The trauma of the surgery brought about fibromyalgia. In hindsight if I had to do it over again I would not. But that is just me. Every patient is different. Good luck what ever you decide. If you have any other questions please feel free to PM me. __________________

11-30-2010, 11:51 AM	#4
katsarecool Member How Do You Identify?: Femme Preferred Pronoun?: She, Her, Woman Relationship Status: Single Join Date: Oct 2010 Location: Between Athens and Atlanta, Georgia Posts: 1,236 My Photo Gallery Thanks: 3,849 Thanked 1,765 Times in 734 Posts Rep Power: 323365	I forgot all about that we saw the same pain mgmt group in Charlotte. You are right about the percentage though. I was fortunate that I got a 95% pain coverage. Dr. B over there wanted to make me a poster person for the SCS. Then I wanted to kill him for the fibro! J/K!!! __________________

11-30-2010, 06:31 PM	#7
Corkey Infamous Member How Do You Identify?: Human Preferred Pronoun?: He Relationship Status: Very Married Join Date: Dec 2009 Location: Where I want to be Posts: 8,155 My Photo Gallery Thanks: 47,491 Thanked 29,299 Times in 6,640 Posts Rep Power: 21474859	I have one and it works well when I have it on, which is anytime my wife comes close to the battery with her bracelet that has a magnet. Now that being said, everyone is different and every outcome is different. Your mileage will vary. Sometimes it helps sometimes it doesn't. I've had mine since 2002 and had the battery recharged in a doctors office without being sliced open again. It all depends on which unit your surgeon puts in. Do your research on the companies as well as recalls happen for all kinds of reasons. Mine is anchored to my spine in 3 places and only 2 small scars, which healed just fine. Up and moving the very next day and back to my normal differently abled self in 2 weeks. Be advised you will if traveling by air no longer use the metal detector, or go thru any magnetized environment like your library, certain stores that use magnets as they're shoplifting deterrent. You also will never have another MRI, and can only have CT scans. Your outcome will vary. Good luck and I hope you feel better. __________________ "Many proposals have been made to us to adopt your laws, your religion, your manners and your customs. We would be better pleased with beholding the good effects of these doctrines in your own practices, than with hearing you talk about them". ~Old Tassel, Chief of the Tsalagi (Cherokee)

11-30-2010, 07:30 PM	#10
Corkey Infamous Member How Do You Identify?: Human Preferred Pronoun?: He Relationship Status: Very Married Join Date: Dec 2009 Location: Where I want to be Posts: 8,155 My Photo Gallery Thanks: 47,491 Thanked 29,299 Times in 6,640 Posts Rep Power: 21474859	Even in the off position the magnets can effect the leads. One should not go thru any device which is magnetized. That's why one gets a card that they must show to TSA etc.... __________________ "Many proposals have been made to us to adopt your laws, your religion, your manners and your customs. We would be better pleased with beholding the good effects of these doctrines in your own practices, than with hearing you talk about them". ~Old Tassel, Chief of the Tsalagi (Cherokee)

11-30-2010, 11:46 AM	#3
DomnNC Timed Out How Do You Identify?: Male Preferred Pronoun?: He/Him Relationship Status: Widow Join Date: Sep 2010 Location: Permanently Banned 11/15/2011 Posts: 1,223 My Photo Gallery Thanks: 2,618 Thanked 2,582 Times in 837 Posts Rep Power: 0	Hi rav, My pain management Dr wanted me to try this, however they consider a 40% reduction in pain a success. He couldn't even guarantee a 40% reduction at that. To me, personally, it wasn't worth going thru the surgery, being sliced almost all the way down my spine, then a diagonal slice from between my shoulder blades, down and around to my stomach to where he wanted to implant the device (he said I didn't have enough ass to put it there, lol) and then a surgery every 9 years to replace the battery. It just wasn't worth it to me. I told him when he could guarantee a 80% or better reduction in pain then we'd talk about it, til then, no slicing me up for that. I'm kinda surprised a neurosurgeon is talking to you about that, in Charlotte it's the pain management Dr's that handle that.

11-30-2010, 06:55 PM	#8
Hack Just a guy. How Do You Identify?: Just a guy Preferred Pronoun?: male Relationship Status: Sparkle's consort Join Date: Nov 2009 Location: MA Posts: 1,458 My Photo Gallery Thanks: 807 Thanked 3,783 Times in 960 Posts Rep Power: 21474852	I've put this on a very far back burner when suggested by my pain management doctor. I know someone who had one, had if shift on her when she lost some weight and it created all kinds of problems. Do you have a pain management doctor? I highly recommend finding a reputable pain management center near you (most major hospitals have one) and finding a doctor there who can help manage not only your pain, but pain meds and any treatment or procedures. My pain doc is a godsend. Jake

11-30-2010, 07:33 PM	#11
katsarecool Member How Do You Identify?: Femme Preferred Pronoun?: She, Her, Woman Relationship Status: Single Join Date: Oct 2010 Location: Between Athens and Atlanta, Georgia Posts: 1,236 My Photo Gallery Thanks: 3,849 Thanked 1,765 Times in 734 Posts Rep Power: 323365	I have never had a single problem with my device and I always walk through the detectors. But like you said every patient is different. And these are the questions patients should ask the surgeon before having this surgery. The maker of my device is Medtronic. The rep was actually in the room when I had the surgery sitting on a stool looking up and talking me through the process. __________________

11-30-2010, 07:36 PM	#12
Corkey Infamous Member How Do You Identify?: Human Preferred Pronoun?: He Relationship Status: Very Married Join Date: Dec 2009 Location: Where I want to be Posts: 8,155 My Photo Gallery Thanks: 47,491 Thanked 29,299 Times in 6,640 Posts Rep Power: 21474859	The very same, and yes every one is different but the leads are made of a very fine material that exposed to the effects of magnets will break and cause one to have to have them replaced. I'm not taking any chances. __________________ "Many proposals have been made to us to adopt your laws, your religion, your manners and your customs. We would be better pleased with beholding the good effects of these doctrines in your own practices, than with hearing you talk about them". ~Old Tassel, Chief of the Tsalagi (Cherokee)

11-30-2010, 10:15 PM	#13
ravfem Senior Member How Do You Identify?: i'm a girl Relationship Status: negative Join Date: Feb 2010 Location: Georgia Posts: 1,811 My Photo Gallery Thanks: 9,239 Thanked 3,126 Times in 1,269 Posts Rep Power: 1969285	i appreciate all the input, thanks y'all. i do have a pain management team, and have had chronic issues for well over a decade that are now getting pretty bad pretty quickly. If i did the SCS, my pain mgt dr would do the temporary one and the neurosurgeon would do the permanent one. i'm still thinking and reading and weighing everything, but i do appreciate everyone sharing! __________________

11-30-2010, 11:22 PM	#14
katsarecool Member How Do You Identify?: Femme Preferred Pronoun?: She, Her, Woman Relationship Status: Single Join Date: Oct 2010 Location: Between Athens and Atlanta, Georgia Posts: 1,236 My Photo Gallery Thanks: 3,849 Thanked 1,765 Times in 734 Posts Rep Power: 323365	Wishing you all the best!!!! Chronic pain sucks!!! __________________