Stem Cell/ Bone Marrow Donation

Spirit Dancer · 05-24-2010, 03:06 PM

Have you ever considered becoming a donor?
Think of the life you could save, so many people need donors
and are unable to find a match, what if you were a match?
http://www.marrow.org/JOIN/Join_Now/join_now.html

Andrew, Jr. · 05-24-2010, 03:09 PM

Thank you Spirit Dancer for this. It is so needed. Very much so.

Andrew, Jr. · 05-25-2010, 08:00 PM

A cheek sample is all that is needed to do this.

IttyBittyFem · 05-25-2010, 08:17 PM

My "Cheek Sample" is on the waiting list. It was a piece of cake!

Spirit Dancer · 05-25-2010, 09:12 PM

Quote:

Originally Posted by Andrew, Jr.

A cheek sample is all that is needed to do this.

Quote:

Originally Posted by IttyBittyFem

My "Cheek Sample" is on the waiting list. It was a piece of cake!

Bless you both, people still believe that it's extremely painful
however it is just a cheek swab. If you match it's as simple as 4 injections and an IV to harvest the cells.
Thank you both for taking time to post.

Spirit Dancer · 06-04-2010, 04:02 PM

Bump just because it needs to be repeated

Spirit Dancer · 08-30-2012, 10:02 AM

Have you ever considered becoming a donor?
Think of the life you could save, so many people need donors
and are unable to find a match, what if you were a match?
http://www.marrow.org/JOIN/Join_Now/join_now.html

WolfyOne · 08-30-2012, 01:36 PM

I have been on the bone marrow registry for quite some time now and last week was contacted that I may be a match for someone. Sadly after I told them my IBS has been flaring up and they needed to know that before we went any further, I was told that I have to be free of flare ups for at least a year. I don't see where this is ever going to be possible because I have some really bad flare ups a few times a year. I wonder why they never said that to me when I first signed up and sent my info to them. I'm really bummed that I could have helped someone and they won't let me

aishah · 08-30-2012, 01:40 PM

i would love to be a donor but am excluded due to my medical conditions (i am listed as an organ donor though). i definitely encourage others who can to donate. i wish i could.

firegal · 08-30-2012, 01:46 PM

Been on the registry for years,was a partial match for lil sis, And for unk person.

Wished i was a complete match.

CherylNYC · 08-30-2012, 04:29 PM

Quote:

Originally Posted by WolfyOne

I have been on the bone marrow registry for quite some time now and last week was contacted that I may be a match for someone. Sadly after I told them my IBS has been flaring up and they needed to know that before we went any further, I was told that I have to be free of flare ups for at least a year. I don't see where this is ever going to be possible because I have some really bad flare ups a few times a year. I wonder why they never said that to me when I first signed up and sent my info to them. I'm really bummed that I could have helped someone and they won't let me

Really?! IBS disqualifies a person from becoming a donor? I had considered signing up to become a donor, but I'm constantly affected by IBS. What's the justification for excluding those of us with this condition?

WolfyOne · 08-30-2012, 06:10 PM

Quote:

Originally Posted by CherylNYC

Really?! IBS disqualifies a person from becoming a donor? I had considered signing up to become a donor, but I'm constantly affected by IBS. What's the justification for excluding those of us with this condition?

The email didn't say what the justification was. just said I need to be flare up free for a year.

This as those who have IBS, know that, that isn't possible.

thedivahrrrself · 08-30-2012, 06:30 PM

Funny I should run across this thread today. Over the weekend, I found a pack of bandaids at the pharmacy that included a kit for sending in a sample of your blood (when you've cut yourself anyway) to see if you might be a match for someone for a bone marrow donor.

I'd never considered, but I think if I was a match to someone, I'd definitely donate. So, hit up your local walgreens/cvs. they're only like $3, or mine was on sale for 99 cents.

aishah · 08-30-2012, 06:30 PM

Quote:

Originally Posted by CherylNYC

Really?! IBS disqualifies a person from becoming a donor? I had considered signing up to become a donor, but I'm constantly affected by IBS. What's the justification for excluding those of us with this condition?

they have a huge list on their websites of conditions, disabilities, or life choices that exclude someone from donating (i'm like 3 for 3 i think, LOL). many of them don't seem (to me at least) to make a lot of sense. they don't have to give any justification, though.

Spirit Dancer · 08-31-2012, 06:46 AM

Quote:

Originally Posted by CherylNYC

Really?! IBS disqualifies a person from becoming a donor? I had considered signing up to become a donor, but I'm constantly affected by IBS. What's the justification for excluding those of us with this condition?

Quote:

Originally Posted by WolfyOne

I have been on the bone marrow registry for quite some time now and last week was contacted that I may be a match for someone. Sadly after I told them my IBS has been flaring up and they needed to know that before we went any further, I was told that I have to be free of flare ups for at least a year. I don't see where this is ever going to be possible because I have some really bad flare ups a few times a year. I wonder why they never said that to me when I first signed up and sent my info to them. I'm really bummed that I could have helped someone and they won't let me

Wolfy and Cheryl
Eagle Spirit has chemo today, so i'll ask what the reason is and they let you know. It might have to do with the injections to produce more stem cells as it can cause discomfort and possibly bowel distubance for a few days. At any rate we and others appreciate that you even tried to donate.

Spirit Dancer · 08-31-2012, 07:27 PM

We spoke to the hematology oncologist today regarding the stem cell donations and the pre exsisting condition policy, as for the IBS issue it's as i thought the neupogen injections that are given to produce excessive stem cells can also cause some bowel disturbance if you're in a flare up the pain can be worse hence the year free of IBS. Again we all appreciate that those who were so willing to be tested

Tommi · 08-31-2012, 07:36 PM

Quote:

Originally Posted by Spirit Dancer

We spoke to the hematology oncologist today regarding the stem cell donations and the pre exsisting condition policy, as for the IBS issue it's as i thought the neupogen injections that are given to produce excessive stem cells can also cause some bowel disturbance if you're in a flare up the pain can be worse hence the year free of IBS. Again we all appreciate that those who were so willing to be tested

Thanks for the update. I didn't qualify.....
I had one of the cancer's not acceptable, even though it's been 8 years.
.

05-24-2010, 03:06 PM	#1
Spirit Dancer Senior Member How Do You Identify?: Complex but Tender Preferred Pronoun?: ~Ma`am~ Relationship Status: Shotgun Rider Join Date: Nov 2009 Location: Following the red road Posts: 4,519 My Photo Gallery Thanks: 9,304 Thanked 12,913 Times in 3,466 Posts Rep Power: 21474856	Stem Cell/ Bone Marrow Donation Have you ever considered becoming a donor? Think of the life you could save, so many people need donors and are unable to find a match, what if you were a match? http://www.marrow.org/JOIN/Join_Now/join_now.html __________________ “For it was not into my ear you whispered, but into my heart. It was not my lips you kissed, but my soul.” Judy Garland

06-04-2010, 04:02 PM	#6
Spirit Dancer Senior Member How Do You Identify?: Complex but Tender Preferred Pronoun?: ~Ma`am~ Relationship Status: Shotgun Rider Join Date: Nov 2009 Location: Following the red road Posts: 4,519 My Photo Gallery Thanks: 9,304 Thanked 12,913 Times in 3,466 Posts Rep Power: 21474856	*Bump just because it needs to be repeated* __________________ “For it was not into my ear you whispered, but into my heart. It was not my lips you kissed, but my soul.” Judy Garland

08-30-2012, 10:02 AM	#7
Spirit Dancer Senior Member How Do You Identify?: Complex but Tender Preferred Pronoun?: ~Ma`am~ Relationship Status: Shotgun Rider Join Date: Nov 2009 Location: Following the red road Posts: 4,519 My Photo Gallery Thanks: 9,304 Thanked 12,913 Times in 3,466 Posts Rep Power: 21474856	Have you ever considered becoming a donor? Think of the life you could save, so many people need donors and are unable to find a match, what if you were a match? http://www.marrow.org/JOIN/Join_Now/join_now.html __________________ “For it was not into my ear you whispered, but into my heart. It was not my lips you kissed, but my soul.” Judy Garland

08-30-2012, 01:36 PM	#8
WolfyOne Magically Delicious How Do You Identify?: Gentle Butch Relationship Status: Single and content Join Date: Nov 2009 Location: Minnesota Posts: 6,558 My Photo Gallery Thanks: 22,052 Thanked 15,397 Times in 4,140 Posts Rep Power: 21474858	I have been on the bone marrow registry for quite some time now and last week was contacted that I may be a match for someone. Sadly after I told them my IBS has been flaring up and they needed to know that before we went any further, I was told that I have to be free of flare ups for at least a year. I don't see where this is ever going to be possible because I have some really bad flare ups a few times a year. I wonder why they never said that to me when I first signed up and sent my info to them. I'm really bummed that I could have helped someone and they won't let me __________________ Being deeply loved by someone gives you strength; loving someone deeply gives you courage --- Lao Tzo

08-30-2012, 06:30 PM	#13
thedivahrrrself Senior Member How Do You Identify?: Queer Sapiosexual Femme Relationship Status: Mrs. Grumpy Cat Tournaments Won: 4 Join Date: Oct 2011 Location: 8,660 feet high in the Andes Posts: 2,640 My Photo Gallery Thanks: 10,519 Thanked 11,658 Times in 2,292 Posts Rep Power: 21474852	Funny I should run across this thread today. Over the weekend, I found a pack of bandaids at the pharmacy that included a kit for sending in a sample of your blood (when you've cut yourself anyway) to see if you might be a match for someone for a bone marrow donor. I'd never considered, but I think if I was a match to someone, I'd definitely donate. So, hit up your local walgreens/cvs. they're only like $3, or mine was on sale for 99 cents. __________________ Small business owners around the world use microfinance to help expand their businesses and provide for their families. You can help! Click here to learn about Kiva.

05-24-2010, 03:09 PM	#2
Andrew, Jr. Timed Out How Do You Identify?: Me Preferred Pronoun?: He Relationship Status: Unavailable Join Date: Nov 2009 Location: Over the Rainbow in a House Posts: 5,072 My Photo Gallery Thanks: 16,004 Thanked 5,249 Times in 2,216 Posts Rep Power: 0	Thank you Spirit Dancer for this. It is so needed. Very much so.

05-25-2010, 08:00 PM	#3
Andrew, Jr. Timed Out How Do You Identify?: Me Preferred Pronoun?: He Relationship Status: Unavailable Join Date: Nov 2009 Location: Over the Rainbow in a House Posts: 5,072 My Photo Gallery Thanks: 16,004 Thanked 5,249 Times in 2,216 Posts Rep Power: 0	A cheek sample is all that is needed to do this.

05-25-2010, 08:17 PM	#4
IttyBittyFem Member How Do You Identify?: Femme Preferred Pronoun?: Lady Relationship Status: No thank you. Join Date: Nov 2009 Location: New Jersey Posts: 290 My Photo Gallery Thanks: 448 Thanked 310 Times in 118 Posts Rep Power: 186762	My "Cheek Sample" is on the waiting list. It was a piece of cake!

08-30-2012, 01:40 PM	#9
aishah Member How Do You Identify?: queer stone femme shark baby girl Preferred Pronoun?: she, her, little one Relationship Status: dating myself. Join Date: Jan 2012 Location: dallas, tx Posts: 1,495 My Photo Gallery Thanks: 13,823 Thanked 6,442 Times in 1,288 Posts Rep Power: 21474851	i would love to be a donor but am excluded due to my medical conditions (i am listed as an organ donor though). i definitely encourage others who can to donate. i wish i could.

08-30-2012, 01:46 PM	#10
firegal Senior Member How Do You Identify?: Butch Preferred Pronoun?: Don't let the gal part of my screen name fool ya I,m ALL butch! Join Date: Jan 2011 Location: Tacoma,Washington Posts: 2,907 My Photo Gallery Thanks: 15,853 Thanked 11,706 Times in 2,469 Posts Rep Power: 21474853	Been on the registry for years,was a partial match for lil sis, And for unk person. Wished i was a complete match.

08-31-2012, 07:27 PM	#16
Spirit Dancer Senior Member How Do You Identify?: Complex but Tender Preferred Pronoun?: ~Ma`am~ Relationship Status: Shotgun Rider Join Date: Nov 2009 Location: Following the red road Posts: 4,519 My Photo Gallery Thanks: 9,304 Thanked 12,913 Times in 3,466 Posts Rep Power: 21474856	We spoke to the hematology oncologist today regarding the stem cell donations and the pre exsisting condition policy, as for the IBS issue it's as i thought the neupogen injections that are given to produce excessive stem cells can also cause some bowel disturbance if you're in a flare up the pain can be worse hence the year free of IBS. Again we all appreciate that those who were so willing to be tested __________________ “For it was not into my ear you whispered, but into my heart. It was not my lips you kissed, but my soul.” Judy Garland