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Old 06-07-2010, 10:35 AM   #1
Soft*Silver
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Ihave been diagnosed with Akylosis Spondylitus. AS or AKA Bamboo back. My spinal column is actually fusing together. This also affects connective tissue, like ligaments and tendons. Inflammation of those can cause muscle soreness and pain. In other words, what they thought might have been fibro, could be just symptoms of AS. Its genetic too, so my family is all getting tested for it. And yes, many of them have been diagnosed with fibro.

I am currently on steroids, and cymbalta for this. I start injectables today. I am SO not wanting to do this. I am scared...

I also have shoulder spurs that have to be operated on. This is kicking up my Fibro/AS. But I need this done so I dont feel like a nail has been pounded in my shoulder top.

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Old 03-24-2011, 12:33 AM   #2
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Originally Posted by softness View Post
Ihave been diagnosed with Akylosis Spondylitus. AS or AKA Bamboo back. My spinal column is actually fusing together. This also affects connective tissue, like ligaments and tendons. Inflammation of those can cause muscle soreness and pain. In other words, what they thought might have been fibro, could be just symptoms of AS. Its genetic too, so my family is all getting tested for it. And yes, many of them have been diagnosed with fibro.

I am currently on steroids, and cymbalta for this. I start injectables today. I am SO not wanting to do this. I am scared...

I also have shoulder spurs that have to be operated on. This is kicking up my Fibro/AS. But I need this done so I dont feel like a nail has been pounded in my shoulder top.

I sure understand why you are scared, I would be too. Wishing you the best with this. I hope you have lots of support around you.

I have had bone spurs removed on my spine in the past and although it was a long surgery and recovery, I did have a good response.

Take good care! Let us know how you are doing.

I have fibro, but am now wit a new doc that is looking at other possibilities. Sucks!
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