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Old 06-25-2010, 08:51 AM   #1
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Bumping this thread up
not ever patient can donate their own stem cells
and even when they do there is still a chance
they will NOT go into remission.
Donors are desperately needed to save their lives.
Again it only takes a cheek swab
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Old 06-25-2010, 09:22 AM   #2
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Soo much can be done with stem cells. I really believe that stem cells kept my sister alive for 3 years after being diagnosed with skin cancer, melanoma. Most die within a year of diagnosis. It was a blessing.

A ton of research is being done at NIH with new stem cells and other various cancers. In fact, there is new thinking about a breast cancer vaccine that Yale & Duke are working on.

It also helps if you have a family history of cancer, and you participate in a swab. It really will benefit so many in the end. I look at it like cord blood from newborns. Just amazing technology nowadays. We just have to look outside the box.
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Old 06-25-2010, 09:29 AM   #3
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i would be happy to donate anything that will help
i am also signed up for organ donation on my license
and i give blood as often as possible.



i just registered
be looking for my kit in the mail
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Old 06-25-2010, 01:59 PM   #4
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i would be happy to donate anything that will help
i am also signed up for organ donation on my license
and i give blood as often as possible.



i just registered
be looking for my kit in the mail

Chef
I'm so glad that you are awaiting your kit,
what a wonderful gift you are doing.
In saving another and aiding in a cure.
So I say thank you for your gift.
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Old 06-25-2010, 02:06 PM   #5
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i think it's amazing that you started this thread.
lives will be saved.

now i just wish i could get a spare liver.
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Old 06-25-2010, 02:11 PM   #6
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Originally Posted by SuperFemme View Post
i think it's amazing that you started this thread.
lives will be saved.

now i just wish i could get a spare liver.
W/we are keeping you in light and healing
and know there are those who can be tested to
donate partial liver to you.
Do you need people to be tested?? let's send out an SOS
http://www.emedicinehealth.com/liver...article_em.htm
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Old 06-25-2010, 02:42 PM   #7
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Quote:
Originally Posted by Spirit Dancer View Post
W/we are keeping you in light and healing
and know there are those who can be tested to
donate partial liver to you.
Do you need people to be tested?? let's send out an SOS
http://www.emedicinehealth.com/liver...article_em.htm
I was JUST having this conversation with my eldest.
I had no idea a partial liver would do.
I see the dr. this afternoon and should have a better idea of where
things stand when test results are given today.

I just might need that SOS.
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Old 06-26-2010, 02:28 PM   #8
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Quote:
Originally Posted by Spirit Dancer View Post
W/we are keeping you in light and healing
and know there are those who can be tested to
donate partial liver to you.
Do you need people to be tested?? let's send out an SOS
http://www.emedicinehealth.com/liver...article_em.htm
Saw the Dr. and partial liver donations will not be an option.
He said that it will be an all or nothing situation but he doesn't
think I will be approved due to the leukemia.

So I asked if it was basically a race to the finish line.

He said yes, and I am fine with that.

Still, there are so many people who can be helped. I have probably been a tiny bit sanctimonious about the subject because it means so much to me me me. That is not fair and I did not intend to sound like people who do not want to donate are somehow bad or wrong. I'm so sorry if I came off like that.

What Cancer Cannot Do
Author: Unknown
Cancer is so limited...
It cannot cripple love.
It cannot shatter hope.
It cannot corrode faith.
It cannot eat away peace.
It cannot destroy confidence.
It cannot kill friendship.
It cannot shut out memories.
It cannot silence courage.
It cannot reduce eternal life.
It cannot quench the Spirit.
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Old 06-25-2010, 02:41 PM   #9
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Quote:
Originally Posted by SuperFemme View Post
i think it's amazing that you started this thread.
lives will be saved.

now i just wish i could get a spare liver.
if you and i get a match you are welcome to part of mine
i have been pretty good to it, for the most part.

ps..... masturbating doesn't harm the liver does it?????????/
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Old 06-25-2010, 02:43 PM   #10
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Quote:
Originally Posted by chefhmboyrd View Post
if you and i get a match you are welcome to part of mine
i have been pretty good to it, for the most part.

ps..... masturbating doesn't harm the liver does it?????????/
awww. thanks.
and i wonder if i get part of your liver if i will become a chronic masturbater too?
oh. wait.....
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Old 06-26-2010, 06:50 PM   #11
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i think it's amazing that you started this thread.
lives will be saved.

now i just wish i could get a spare liver.

I'd offer up any part of me that would save you........I loves you my friend
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Old 06-25-2010, 02:32 PM   #12
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Originally Posted by Spirit Dancer View Post
Bumping this thread up
not ever patient can donate their own stem cells
and even when they do there is still a chance
they will NOT go into remission.
Donors are desperately needed to save their lives.
Again it only takes a cheek swab
When I'm able to I'll certainly be putting my name on the registry. Three more years.

So, in the interest of full disclosure: folks who are interested should read the information on the link Spirit Dancer provided. All it takes to REGISTER is a cheek swab. From that they can determine if you're a match to anyone on the waiting list. Donation is a different procedure if you should be a suitable match. But it sure is worth it if you end up saving a life!
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Old 06-25-2010, 03:08 PM   #13
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When I'm able to I'll certainly be putting my name on the registry. Three more years.

So, in the interest of full disclosure: folks who are interested should read the information on the link Spirit Dancer provided. All it takes to REGISTER is a cheek swab. From that they can determine if you're a match to anyone on the waiting list. Donation is a different procedure if you should be a suitable match. But it sure is worth it if you end up saving a life!
Afternoon Cynbersuebee
The donation is actually very easy too, it only requires four daily injections to produce those wonderful little stem cells, then you're hooked up to an IV and they harvest them, it's about as painful as donating blood and is done in the same fashion as blood donation.
Now if they need the bone marrow donation that is a bit painful as they harvest from the iliac crest and it requires more. The plus side is around 95% are now done through IV harvesting. Yay for you on alomst the 3 yr mark
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Old 06-25-2010, 03:32 PM   #14
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Quote:
Originally Posted by Spirit Dancer View Post
Afternoon Cynbersuebee
The donation is actually very easy too, it only requires four daily injections to produce those wonderful little stem cells, then you're hooked up to an IV and they harvest them, it's about as painful as donating blood and is done in the same fashion as blood donation.
Now if they need the bone marrow donation that is a bit painful as they harvest from the iliac crest and it requires more. The plus side is around 95% are now done through IV harvesting. Yay for you on alomst the 3 yr mark
One afternoon or a few days of discomfort vs. saving a life?
That's not a hard decision to make.
Now that I know the pain that goes with the big "C"?
Even a needle in the hip bone to save somebody from that cannot compare.
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Old 06-25-2010, 04:17 PM   #15
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Yes, it's just a cheek swab to determine your HLA typing, however if you are a match it can be a very different story depending on whether it's bone marrow or peripheral blood stem cells (this comes from the FAQ of marrow.org website):

Q: How are bone marrow and peripheral blood stem cell (PBSC) donation different?

A: Donating bone marrow is a surgical procedure done under general or regional anesthesia in a hospital. While a donor receives anesthesia, doctors use needles to withdraw liquid marrow from the back of the pelvic bone.

PBSC donation is a non-surgical procedure done in an outpatient clinic. PBSC donors receive daily injections of a drug called filgrastim for five days, to increase the number of blood-forming cells in the bloodstream. Then, through a process called apheresis, a donor's blood is removed through a needle in one arm and passed through a machine that separates out the blood-forming cells. The remaining blood is returned to the donor through the other arm.
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Old 06-25-2010, 04:31 PM   #16
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if i had pure marrow i would do it in a second.
but then, i am no stranger to bone marrow aspirations so it doesn't frighten me.
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Old 06-25-2010, 05:51 PM   #17
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Thank you Spirit Dancer for posting this thread. I went to work this morning. I talked with my CEO and she sent out a e-mail to everyone in our facility. I was so happy to see the response! We will be having a drive Tuesday. And at this very moment we have 64 people signed up to get there cheek swab, and yes, I had to explain to a few of our fellow employees that it's not the cheek that there originally thinking about
Finally our hospital has something to be excited about besides donating blood. Once again, what a wonderful Idea Spirit Dancer, now if I can get the other 39 associates to swab away!
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Old 06-26-2010, 11:08 AM   #18
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Link for Peripheral blood stem cell donation
http://www.stjude.org/SJFile/stem_ce...c_donation.pdf

One more important fact
Q: Who pays for the donation process?
A: Donors never pay for donating, and are never paid to donate.

All medical costs for the donation procedure are covered by the National Marrow Donor Program (NMDP), which operates the Be The Match Registry, or by the patient's medical insurance, as are travel expenses and other non-medical costs. The only costs to the donor might be time taken off from work.
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Old 06-26-2010, 11:16 AM   #19
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So we all know the facts from myth


Myths & Facts about Bone Marrow Donation
Learn the facts about bone marrow donation to help you make an informed decision about joining the Be The Match Registry®.

MYTH:
All bone marrow donations involve surgery.

FACT:
The majority of donations do not involve surgery. Today, the patient's doctor most often requests a peripheral blood stem cell (PBSC) donation, which is non-surgical.

The second way of donating is marrow donation, which is a surgical procedure.

In each case, donors typically go home the same day they donate.

MYTH:
Donating is painful and involves a long recovery.

FACT:
There can be uncomfortable but short-lived side effects of donating PBSC. Due to taking a drug called filgrastim for five days leading up to donation, PBSC donors may have headaches, joint or muscle aches, or fatigue. PBSC donors are typically back to their normal routine in one to two days.

Those donating marrow receive general or regional anesthesia, so they feel no pain during donation. Marrow donors can expect to feel some soreness in their lower back for one to two weeks afterward. Most marrow donors are back to their normal activities in two to seven days.

MYTH:
Donating is dangerous and weakens the donor.

FACT:
Though no medical procedure is without risk, there are rarely any long-term side effects. Be The Match® carefully prescreens all donors to ensure they are healthy and the procedure is safe for them. We also provide support and information every step of the way.

Because only five percent or less of a donor's marrow is needed to save the patient's life, the donor's immune system stays strong and the cells replace themselves within four to six weeks.

MYTH:
In bone marrow donation, pieces of bone are removed from the donor.

FACT:
No pieces of bone are taken during marrow donation. Only the liquid marrow found inside the pelvic bone is needed to save the patient's life.
http://www.marrow.org/JOIN/Myths_&_F...Don/index.html
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Old 06-30-2010, 08:03 AM   #20
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