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12-22-2011, 11:02 PM
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#1 | |
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Senior Member
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makes no diffrence,I know who I am. Relationship Status:
single,maybe looking if the right person comes along. 
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Fantastic,glad u r going home,tonight u will get the best sleep u have had iuna while in your own bed...nothing like being home.Take all the thime u need to get your strength back,we all will be hear when u want to post any thing. Country,thank u for all u have done,u r indeed a special person.. |
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12-23-2011, 12:31 PM
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#2 |
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Practically Lives Here
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hey peeps....just a quick note..I am up and about today...still weak, BUT al uphill from here on out..and Home Health will be here Monday to assess my needs, and PT will be coming as well...
I am still not real clear in the brain...BUT want to post so pardon all the typos...lol.. DAPPER: best I can tell between 35 and 45 lbs...in last 8 to 10 weeks....with MOST being last 3 to 4 weeks. I am getting some of the ensure drinks when we go to grocery store.. COUNTY: I heart you, darling!!! YOU have made this so much more pleasureable, been so selfless, and I know your back and hip suffered with that miserable "gaucho" sofa you endured for TWO WEEKS, and woke every time with a sweet smile...YOU simply ROCKKKKKKK.... I heart ALL of you.....Merry Christmas, I know I have the MOST amazing one in a few years now...thank, you....all your sweet messages, PM's, etc and calls...smiles.....later peeps... I made COUNTY go get a nap in...I am waiting for my baby dachsie to come home..I haven;t seen her in 2 weeks....whooohooo....I HEART YOU ALL>>..Clay
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To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault |
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12-23-2011, 12:48 PM
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#3 |
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Infamous Member
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Married and Bound to Tommi's kaijira (Ts_kaijira )  Join Date: Nov 2009
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Way to go claybaby.
Boost Plus and other Store Brand protein drinks available for variety until you can blend your own ~ CVS, Walgreens, etc. Kudo's to County and Caregivers . Jo, and julieisafemme thinking of you and your Mom's during this tough time and in a season of love and giving. 
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12-23-2011, 02:19 PM
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#4 |
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Infamous Member
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Follow your heart; it knows things your mind cannot explain. Join Date: Jan 2010
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Super fast update then I'm headed back to the ER....Mom's picc line was halfway out last night, so waiting and waiting to get it replaced today.
Struggling with pain meds....docs in FL don't prescribe but send to a separate pain management doc. Of course, they neglected to mention this (and mom neglects to mention that she's almost out) until we have difficulty getting a refill right before the holiday weekend. Nightmare. I'm kicking desks (figuratively speaking) and shouting at people (for real) ...and we have a short-term solution, an appointment with said pain mgmt specialist...and it'll all be okay...but it's taking a heck of a toll on me in the process. My research, thanks to all this, also makes me think that a lot of her dizziness, fatigue and lack of appetite may be in part due to the morphine she's been on since the spring.
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 I'm not tall enough to ride emotional roller coasters Last edited by JustJo; 12-23-2011 at 02:33 PM. Reason: clarification lol |
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12-23-2011, 04:49 PM
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#5 | |
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Married to the most beautiful girl in the world 
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Thinking of you and your mum during this difficult time. |
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12-24-2011, 09:41 AM
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#6 | ||
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Roadster Guy
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You didn't answer me about the chemo? Quote:
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12-24-2011, 09:51 AM
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#7 |
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Practically Lives Here
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You didn't answer me about the chemo?Hey DAPPER: I am so sorry....I did forget to asnwer you about the chemo ? NO...no chemo OR rad. for me..it was ALL gotten with surgery AND I am "officially CANCER FREE"...yayyyyyyy Hugs to you and TF from County & I...smiles
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To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault |
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12-24-2011, 09:58 AM
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#8 | |
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Roadster Guy
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WOO HOO [/SIZE]
CONGRATULATIONS!!!!!!
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-Dapper Are you educated or indoctrinated? |
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12-24-2011, 11:23 AM
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#9 |
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Hi everyone,
We got the picc line replaced yesterday....so long tiring day but all resolved at the end. I also browbeat a prescription for Lortab out of her NY doctor...so she's not completely out of pain meds for the long weekend....and we'll be seeing the pain management specialist early in the week. I'm more and more convinced that we need to get her off the morphine....simply standing up makes her so dizzy that she has to put her head down and hold onto something for a minute or two. Her weight is down a bit since the TPN is only 12 hours instead of 24 now....but she is eating a bit more. I figure I'm managing to get 800 to 1000 calories a day into her. Going off the morphine might help with her appetite and ability to eat. Not what it should be...but an improvement. The Pedialyte also seems to be helping her somewhat...so we're keeping that up. I know I annoy her, handing her food or drink every 2 hours, but she would go all day with virtually nothing if it was left up to her. My pushy broad side is getting a workout. Hugs to you all....glad to hear Clay and Julie's mom are home for the holiday and getting lots of support and care. Merry Christmas to you all! 
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I'm not tall enough to ride emotional roller coasters |
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12-28-2011, 08:55 AM
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#10 |
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Infamous Member
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Hello everyone,
Just a quick Mom update....she's actually doing a bit better. We got her off the morphine and on lortabs (think that's right) and it seems to have helped. The fatigue and dizziness is diminishing and her appetite is much improved. We mix her drinks with half Pedialyte, and the dehydration is also much improved as a result. She still gets (and needs) 12 hours of TPN each night, but we're managing to get about 1,000 - 1,200 calories of real food into her every day, and of a wide variety of things. The nausea is 90% gone....and she's very very slowly beginning to gain a little weight. She still could not live alone at this point (and probably never again), but she is far more comfortable than she was....which makes us both feel better. She actually got up this morning, made herself some hot chocolate, and was enjoying it out on the patio. 
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I'm not tall enough to ride emotional roller coasters |
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12-30-2011, 07:08 AM
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#11 |
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Infamous Member
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Good morning all
Sharing some good news....after over a year of having no interest in food and being unable to eat, Mom has turned a big corner. She actually woke up hungry in the middle of the night last night...enough to get up and get a snack. She woke up hungry again this morning....and was making herself peanut butter toast and orange juice while I was still pouring my first cup of coffee. She's slowing gaining weight....and she's eating a huge variety of food frequently through the day. Pretty amazing stuff. When I look at her now, as compared to when she arrived only about 3 weeks ago, her color is better...she is stronger...the dizziness is gone...she's eating all kinds of things throughout the day rather than 1 or maybe 2 cartons of yogurt only....and her dehydration problem is completely resolved (thank goodness for Pedialyte....that stuff is a miracle). Her mood has improved dramatically as a result, now that she is feeling more like herself....and she's talking about how she could do this with chemo every 3 weeks for quite some time....rather than planning and waiting for her death. She knows that the cancer isn't going to get cured....and we're only buying time....but now she's ready to buy it, and enjoy it....and that's good.
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I'm not tall enough to ride emotional roller coasters |
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12-23-2011, 07:47 PM
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#12 |
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So happy to hear that you are home and that Heidi will be with you soon! We've been praying and am so glad to hear you're doing well.
We have been so grateful to Countyfemme for her reports to us. Thanks you!!! |
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12-23-2011, 10:26 PM
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#13 |
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Hello All. Thank you very much for all the nice posts. My Mom is doing remarkably well. No nausea and no pain since going into the hospital. She saw the oncologist today and he said her blood work looks good, no temperature and her blood pressure is good. She has the ok to come for the family Christmas. That is a wonderful thing. She is still very tired but is getting up every day and doing things in the house. We are so blessed in that all four of her children live five minutes from her house. We have all skills to lend to her care. Add to that a good family friend who is a critical care nurse and her sister who is a nurse and we are set! I know she won't get better but it means so much that right now she is feeling good and not in pain.
Claybaby I am so happy you are home! I know my Mom is so much happier in her own bed without the nurses poking her all night! Many blessings to you all and happy holidays. |
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12-24-2011, 08:17 AM
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#14 |
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Practically Lives Here
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Julie:
Thanks so much for the well wishes...and yes it IS good to be in my own space again....smiles...we are catching up on some much needed sleep...I,too, am still having some bouts with the nausea BUT I am also on a very strong antibiotic...for 4 more days...yayyyyy....and I just take a Zofran disintegrtaing nausea pill and hold the nausea at bay...smiles.. Big hugs to you, to your mom, and all your family..enjoy every moment...smiles..Merry Christmas from my family to yours....Clay
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To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault |
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