Fibromyalgia

Lady Jewel · 11-11-2009, 01:12 AM

I know there has to be other Fibro sufferers here. Its such an insidious and painful disease. Would be nice to have a place where we can share stories, support one another, discuss new medications and therapies that might help us.

Jewel

Lady Jewel · 11-12-2009, 06:15 PM

Bump...I cant be the only one here with Fibro.

NikiNik · 11-12-2009, 06:22 PM

I have it too.. Though in the last year or so it hasn't bothered me as much as it use to. I firmly belive that my aches and pains are not nearly as bad because my head is in a better place than it use to be. Actually a lot of my health problems are a lot better.

Lady Jewel · 11-12-2009, 06:28 PM

Yes, your emotional state DOES have a big effect on Fibro.

Genlte hugs,
Jewel

Quote:

Originally Posted by NikiNik

I have it too.. Though in the last year or so it hasn't bothered me as much as it use to. I firmly belive that my aches and pains are not nearly as bad because my head is in a better place than it use to be. Actually a lot of my health problems are a lot better.

christie · 11-12-2009, 07:28 PM

*raising hand*

I am in what is probably my worst fibro flare in over 10 years.

Not a happy camper,
C

NikiNik · 11-12-2009, 07:35 PM

Quote:

Originally Posted by christie0918

*raising hand*

I am in what is probably my worst fibro flare in over 10 years.

Not a happy camper,
C

Sorry to hear that sweetie.. I feel your pain and hope that you get to feeling better soon.

Rook · 11-12-2009, 08:48 PM

My mother was diagnosed with Fibro in the early 90s when they were still saying it wasn't a Sure thing type disease....
They're suspecting I have it, from time to time I get 'flares' that closely resemble the symptoms....
'specially when I'm stressed, or the weather's not optimal
But then, I try hard not to let things stress me too much because then I trigger asthma, and Cluster headaches, depending how bad the stress level is....

There's a medication out for Fibromyalgia, but when the commercial reads all the side effects, it's unreal...
The "cure" is worse than the sickness....

Lady Jewel · 11-12-2009, 10:22 PM

Awww honey, Im so sorry. Sleep is the single most important thing for us fibro sufferers. And please be kind to yourself my friend. I know its not easy. Has anyone tried Cymbalta? Ive been on it since it came out. It doesnt help the pain, but it helps the fibro fog and some other symptoms that I have.

I need to unburden my soul about something that I am very very scared about. I had some labwork done a few weeks ago and got the results today. I tested postive for an autoimmune disease that require further labwork and tests. It could be lupus. Who knows. Im scared to death. Those of you who know me, know I have already been put thru the ringer these past 7 years healthwise. I know that I will get thru this just like I have everything else. But Im scared. And tired. Ive had my fill. I try and have a positive attitude and not complain. So Im sorry if it comes off like that.

Im glad we started this thread and can support each other.

Gentle hugs,
Jewel

Quote:

Originally Posted by christie0918

*raising hand*

I am in what is probably my worst fibro flare in over 10 years.

Not a happy camper,
C

Soft*Silver · 11-13-2009, 03:03 AM

I was diagnosed with Fibro in 1989. I had it mastered until 2007 when I was hit by a semi..twice. After herniating four back discs, it flared up my fibro. I just spent this year trying and succeeding getting the fibro to a point where I could tell the difference between it and the pain from my back injury. I am so well, in fact, I am going back to work. Rest, water therapy, muscle relaxers, a change in diet...did I say rest>? These were my tools...

Lady Jewel · 11-13-2009, 01:09 PM

Good for you softness. I wish you continued success in the Fibro battle. Nice to see you again btw.

Quote:

Originally Posted by softness

I was diagnosed with Fibro in 1989. I had it mastered until 2007 when I was hit by a semi..twice. After herniating four back discs, it flared up my fibro. I just spent this year trying and succeeding getting the fibro to a point where I could tell the difference between it and the pain from my back injury. I am so well, in fact, I am going back to work. Rest, water therapy, muscle relaxers, a change in diet...did I say rest>? These were my tools...

Soft*Silver · 11-13-2009, 05:09 PM

Quote:

Originally Posted by Lady Jewel

Good for you softness. I wish you continued success in the Fibro battle. Nice to see you again btw.

good to see you, too, Jewel, and so many others! It actually feels like a community here...

Lady Jewel · 11-17-2009, 12:54 AM

Trying to keep this thread alive for all of us Fibro folk.

Gentle hugs,
Jewel

Lady Jewel · 11-17-2009, 01:50 AM

I got a PM asking me what Fibro is, so I am quoting a very short definition from the National Fibromyalgia Associations website:

Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause.

Fibromyalgia, which has also been referred to as fibromyalgia syndrome, fibromyositis and fibrositis, is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities.

Whether you have been diagnosed with fibromyalgia or suffer from its symptoms, or have a family member or friend with the disorder, this section is designed to provide you with a better understanding of this chronic pain disorder that affects millions of people worldwide.

T D · 11-17-2009, 09:30 PM

Quote:

Originally Posted by softness

I was diagnosed with Fibro in 1989. I had it mastered until 2007 when I was hit by a semi..twice. After herniating four back discs, it flared up my fibro. I just spent this year trying and succeeding getting the fibro to a point where I could tell the difference between it and the pain from my back injury. I am so well, in fact, I am going back to work. Rest, water therapy, muscle relaxers, a change in diet...did I say rest>? These were my tools...

Personally I have found that rest is ESSENTIAL! There's just no gettin around it, lots of rest. I finally reached a point where I figured out the signs of an oncoming flareup. I then discovered if I slept as much as my body wanted to sleep that I could at times keep it at bay. I would sometimes sleep 4 hours in the afternoon/evening, get up for a few hours and then go back to bed and sleep all night. The more I did this the less often a flare up would rear it's ugly head.

I wasn't diagnosed until around 2003, but now that I "know" I can see the symptoms going as far back as the early 80's. I lived with progressing pain for at least 20 years until it reached a point that I just couldn't tolerate it any longer. I was missing work because I could barely walk, my hands hurt so bad I could barely use a computer, etc. etc. Pain is an odd thing, it will sneak up on you and the next thing you know you think it's "normal", when in reality it's anything but.

Kimbo · 11-17-2009, 10:35 PM

I'm raising my hand...I was diagnosed in the early 90's along with hypo thyroid disease. It was a pretty intense time before I was diagnosed. It was all very slow and progressive, I noticed the pain and sore spots but I stayed very active.

Earlier in my treatment I tried a lot of drugs at my Dr.s insistence ...Wrong thing for me. I just have not found much that does help other than some basic things...lots of rest, stay warm, stay active, eat right and take my muscle relaxers, do a toke at night. The "fog" is killing me though. The mental impact, especially when I am tired, can be intolerable at times. I'm learning things and doing things differently but there are days it takes everything that I have to make it thru. It has only been recently that I have had it this bad.

I see a rheumatologist every 5 years for Lupus testing and to keep an eye on my Fibro. I have an appt in Jan so I am anxious as to what will happen or ? Lupus runs in my family.

Lady Jewel..I'm sorry this is happening. If there is anything I can do just holler.

Lady Jewel · 11-17-2009, 10:59 PM

Kim, Im so sorry that you are a part of our "elite" club

. The fibro "fog" is tough. Especially for those around us that dont understand it. Ive been on Cymbalta since it came out, and while it does nothing for the fibro pain, it has helped with the "fog" a bit.

Im going to keep you in my thoughts and prayers that when January arrives, you will get nothing but positive news.

And thank you for your support. It means a lot.

Gentle hugs to all,
Jewel

Quote:

Originally Posted by Kimbo

I'm raising my hand...I was diagnosed in the early 90's along with hypo thyroid disease. It was a pretty intense time before I was diagnosed. It was all very slow and progressive, I noticed the pain and sore spots but I stayed very active.

Earlier in my treatment I tried a lot of drugs at my Dr.s insistence ...Wrong thing for me. I just have not found much that does help other than some basic things...lots of rest, stay warm, stay active, eat right and take my muscle relaxers, do a toke at night. The "fog" is killing me though. The mental impact, especially when I am tired, can be intolerable at times. I'm learning things and doing things differently but there are days it takes everything that I have to make it thru. It has only been recently that I have had it this bad.

I see a rheumatologist every 5 years for Lupus testing and to keep an eye on my Fibro. I have an appt in Jan so I am anxious as to what will happen or ? Lupus runs in my family.

Lady Jewel..I'm sorry this is happening. If there is anything I can do just holler.

Kimbo · 11-17-2009, 11:15 PM

Quote:

Originally Posted by Lady Jewel

Kim, Im so sorry that you are a part of our "elite" club

. The fibro "fog" is tough. Especially for those around us that dont understand it. Ive been on Cymbalta since it came out, and while it does nothing for the fibro pain, it has helped with the "fog" a bit.

Im going to keep you in my thoughts and prayers that when January arrives, you will get nothing but positive news.

And thank you for your support. It means a lot.

Gentle hugs to all,
Jewel

Thank you. I really have a hard time trusting all the new drugs, they are almost all still psychotropic, if not all. They send me through the roof with anxiety. I've very, very cautious of them. How long have you been on Cymbalta? I believe that I am more hormonally impacted--that is where I feel and know I need to keep the greatest balance.

One of the things I think I am going to do is to have a 24 hour saliva test done and analyzed. I've had such positive results with vitamin and diet changes that I wonder what more I can benefit from and at what cost.

violaine · 11-17-2009, 11:33 PM

good evening. i do not have fibromyalgia, just wanted to say hi, after reading this thread, {{{{ kimbo }}}} and may you all have a gentle week

i overheard someone a few weeks ago make a comment that too much iron made her symptoms worse.

best,
belle

Stacy · 11-18-2009, 06:11 AM

Good Morning Everyone!
I'm about 90% certain I have Fibro~
I haven't been officially diagnosed by a physician, but from my understanding, they have no definitive test for it. I've researched and diagnosed myself. (I have no health insurance at the moment) I've decided to treat it with exercise and stress management.
I was taking way too much Tylenol and Ibuprofen. I quit taking that daily and now sometimes go a couple weeks without any. For me it's really about learning to live with the pain.

Lady Jewel · 11-18-2009, 09:43 AM

Welcome to the club Mom <g>. The most important thing for us fbro suffererers is sleep. You must get as much sleep as possible. And do your research on Fibro, theres a lot of useful info online.

Jewel

Quote:

Originally Posted by DeviantMom

Good Morning Everyone!
I'm about 90% certain I have Fibro~
I haven't been officially diagnosed by a physician, but from my understanding, they have no definitive test for it. I've researched and diagnosed myself. (I have no health insurance at the moment) I've decided to treat it with exercise and stress management.
I was taking way too much Tylenol and Ibuprofen. I quit taking that daily and now sometimes go a couple weeks without any. For me it's really about learning to live with the pain.

11-11-2009, 01:12 AM	#1
Lady Jewel Member How Do You Identify?: * Preferred Pronoun?: * Relationship Status: * Join Date: Nov 2009 Location: * Posts: 298 My Photo Gallery Thanks: 120 Thanked 322 Times in 124 Posts Rep Power: 791	Fibromyalgia I know there has to be other Fibro sufferers here. Its such an insidious and painful disease. Would be nice to have a place where we can share stories, support one another, discuss new medications and therapies that might help us. Jewel

11-12-2009, 08:48 PM	#7
Rook Senior Member How Do You Identify?: A.G - Stone Butch - GenderFuck Preferred Pronoun?: Hym, Hyz...or, just b respectable, it's not that hard.. Join Date: Nov 2009 Location: Columbus Posts: 2,280 My Photo Gallery Thanks: 2,227 Thanked 3,182 Times in 1,287 Posts Rep Power: 21474854	My mother was diagnosed with Fibro in the early 90s when they were still saying it wasn't a Sure thing type disease.... They're suspecting I have it, from time to time I get 'flares' that closely resemble the symptoms.... 'specially when I'm stressed, or the weather's not optimal But then, I try hard not to let things stress me too much because then I trigger asthma, and Cluster headaches, depending how bad the stress level is.... There's a medication out for Fibromyalgia, but when the commercial reads all the side effects, it's unreal... The "cure" is worse than the sickness.... __________________

11-13-2009, 03:03 AM	#9
SoftSilver Infamous Member How Do You Identify?: femme Preferred Pronoun?: she Relationship Status: Married Join Date: Nov 2009 Location: rose cottage Posts: 5,592 My Photo Gallery Thanks: 8,948 Thanked 15,908 Times in 4,062 Posts Rep Power*: 21474857	I was diagnosed with Fibro in 1989. I had it mastered until 2007 when I was hit by a semi..twice. After herniating four back discs, it flared up my fibro. I just spent this year trying and succeeding getting the fibro to a point where I could tell the difference between it and the pain from my back injury. I am so well, in fact, I am going back to work. Rest, water therapy, muscle relaxers, a change in diet...did I say rest>? These were my tools... __________________ Pole bachit, a lis chuye. The field sees, the forest hears

11-17-2009, 11:33 PM	#18
violaine Timed Out How Do You Identify?: atypical Preferred Pronoun?: plague words and phrases Relationship Status: love wise guys of the avian world Join Date: Nov 2009 Location: wekiva springs basin Posts: 3,236 My Photo Gallery Thanks: 9,934 Thanked 3,293 Times in 1,301 Posts Rep Power: 0	a little support :) good evening. i do not have fibromyalgia, just wanted to say hi, after reading this thread, {{{{ kimbo }}}} and may you all have a gentle week i overheard someone a few weeks ago make a comment that too much iron made her symptoms worse. best, belle

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11-12-2009, 06:15 PM	#2
Lady Jewel Member How Do You Identify?: * Preferred Pronoun?: * Relationship Status: * Join Date: Nov 2009 Location: * Posts: 298 My Photo Gallery Thanks: 120 Thanked 322 Times in 124 Posts Rep Power: 791	Bump...I cant be the only one here with Fibro.

11-12-2009, 06:22 PM	#3
NikiNik Junior Member How Do You Identify?: Femme Relationship Status: In a relationship. Join Date: Nov 2009 Location: The OC Posts: 17 My Photo Gallery Thanks: 1 Thanked 5 Times in 4 Posts Rep Power: 16	I have it too.. Though in the last year or so it hasn't bothered me as much as it use to. I firmly belive that my aches and pains are not nearly as bad because my head is in a better place than it use to be. Actually a lot of my health problems are a lot better.

11-12-2009, 07:28 PM	#5
christie Member How Do You Identify?: A Force with which to be reckoned Preferred Pronoun?: just be nice... Relationship Status: I call her Mine Join Date: Nov 2009 Location: Transplanted to the PNW Posts: 1,246 My Photo Gallery Thanks: 2,552 Thanked 2,476 Times in 706 Posts Rep Power: 14753262	raising hand I am in what is probably my worst fibro flare in over 10 years. Not a happy camper, C

11-17-2009, 12:54 AM	#12
Lady Jewel Member How Do You Identify?: * Preferred Pronoun?: * Relationship Status: * Join Date: Nov 2009 Location: * Posts: 298 My Photo Gallery Thanks: 120 Thanked 322 Times in 124 Posts Rep Power: 791	Trying to keep this thread alive for all of us Fibro folk. Gentle hugs, Jewel

11-17-2009, 01:50 AM	#13
Lady Jewel Member How Do You Identify?: * Preferred Pronoun?: * Relationship Status: * Join Date: Nov 2009 Location: * Posts: 298 My Photo Gallery Thanks: 120 Thanked 322 Times in 124 Posts Rep Power: 791	I got a PM asking me what Fibro is, so I am quoting a very short definition from the National Fibromyalgia Associations website: Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause. Fibromyalgia, which has also been referred to as fibromyalgia syndrome, fibromyositis and fibrositis, is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities. Whether you have been diagnosed with fibromyalgia or suffer from its symptoms, or have a family member or friend with the disorder, this section is designed to provide you with a better understanding of this chronic pain disorder that affects millions of people worldwide.

11-17-2009, 10:35 PM	#15
Kimbo Member How Do You Identify?: Butch Relationship Status: Eligible Butchelor Join Date: Nov 2009 Location: Seattle Posts: 591 My Photo Gallery Thanks: 432 Thanked 551 Times in 257 Posts Rep Power: 119	I'm raising my hand...I was diagnosed in the early 90's along with hypo thyroid disease. It was a pretty intense time before I was diagnosed. It was all very slow and progressive, I noticed the pain and sore spots but I stayed very active. Earlier in my treatment I tried a lot of drugs at my Dr.s insistence ...Wrong thing for me. I just have not found much that does help other than some basic things...lots of rest, stay warm, stay active, eat right and take my muscle relaxers, do a toke at night. The "fog" is killing me though. The mental impact, especially when I am tired, can be intolerable at times. I'm learning things and doing things differently but there are days it takes everything that I have to make it thru. It has only been recently that I have had it this bad. I see a rheumatologist every 5 years for Lupus testing and to keep an eye on my Fibro. I have an appt in Jan so I am anxious as to what will happen or ? Lupus runs in my family. Lady Jewel..I'm sorry this is happening. If there is anything I can do just holler.

11-18-2009, 06:11 AM	#19
Stacy Member How Do You Identify?: Queer Join Date: Nov 2009 Location: Minnesota Posts: 475 My Photo Gallery Thanks: 396 Thanked 920 Times in 225 Posts Rep Power: 8450334	Good Morning Everyone! I'm about 90% certain I have Fibro~ I haven't been officially diagnosed by a physician, but from my understanding, they have no definitive test for it. I've researched and diagnosed myself. (I have no health insurance at the moment) I've decided to treat it with exercise and stress management. I was taking way too much Tylenol and Ibuprofen. I quit taking that daily and now sometimes go a couple weeks without any. For me it's really about learning to live with the pain.