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Old 11-17-2009, 10:35 PM   #1
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I'm raising my hand...I was diagnosed in the early 90's along with hypo thyroid disease. It was a pretty intense time before I was diagnosed. It was all very slow and progressive, I noticed the pain and sore spots but I stayed very active.

Earlier in my treatment I tried a lot of drugs at my Dr.s insistence ...Wrong thing for me. I just have not found much that does help other than some basic things...lots of rest, stay warm, stay active, eat right and take my muscle relaxers, do a toke at night. The "fog" is killing me though. The mental impact, especially when I am tired, can be intolerable at times. I'm learning things and doing things differently but there are days it takes everything that I have to make it thru. It has only been recently that I have had it this bad.

I see a rheumatologist every 5 years for Lupus testing and to keep an eye on my Fibro. I have an appt in Jan so I am anxious as to what will happen or ? Lupus runs in my family.

Lady Jewel..I'm sorry this is happening. If there is anything I can do just holler.
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Old 11-17-2009, 10:59 PM   #2
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Kim, Im so sorry that you are a part of our "elite" club . The fibro "fog" is tough. Especially for those around us that dont understand it. Ive been on Cymbalta since it came out, and while it does nothing for the fibro pain, it has helped with the "fog" a bit.

Im going to keep you in my thoughts and prayers that when January arrives, you will get nothing but positive news.

And thank you for your support. It means a lot.

Gentle hugs to all,
Jewel


Quote:
Originally Posted by Kimbo View Post
I'm raising my hand...I was diagnosed in the early 90's along with hypo thyroid disease. It was a pretty intense time before I was diagnosed. It was all very slow and progressive, I noticed the pain and sore spots but I stayed very active.

Earlier in my treatment I tried a lot of drugs at my Dr.s insistence ...Wrong thing for me. I just have not found much that does help other than some basic things...lots of rest, stay warm, stay active, eat right and take my muscle relaxers, do a toke at night. The "fog" is killing me though. The mental impact, especially when I am tired, can be intolerable at times. I'm learning things and doing things differently but there are days it takes everything that I have to make it thru. It has only been recently that I have had it this bad.

I see a rheumatologist every 5 years for Lupus testing and to keep an eye on my Fibro. I have an appt in Jan so I am anxious as to what will happen or ? Lupus runs in my family.

Lady Jewel..I'm sorry this is happening. If there is anything I can do just holler.
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Old 11-17-2009, 11:15 PM   #3
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Quote:
Originally Posted by Lady Jewel View Post
Kim, Im so sorry that you are a part of our "elite" club . The fibro "fog" is tough. Especially for those around us that dont understand it. Ive been on Cymbalta since it came out, and while it does nothing for the fibro pain, it has helped with the "fog" a bit.

Im going to keep you in my thoughts and prayers that when January arrives, you will get nothing but positive news.

And thank you for your support. It means a lot.

Gentle hugs to all,
Jewel
Thank you. I really have a hard time trusting all the new drugs, they are almost all still psychotropic, if not all. They send me through the roof with anxiety. I've very, very cautious of them. How long have you been on Cymbalta? I believe that I am more hormonally impacted--that is where I feel and know I need to keep the greatest balance.

One of the things I think I am going to do is to have a 24 hour saliva test done and analyzed. I've had such positive results with vitamin and diet changes that I wonder what more I can benefit from and at what cost.
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Old 11-17-2009, 11:33 PM   #4
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Default a little support :)

good evening. i do not have fibromyalgia, just wanted to say hi, after reading this thread, {{{{ kimbo }}}} and may you all have a gentle week

i overheard someone a few weeks ago make a comment that too much iron made her symptoms worse.

best,
belle
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Old 11-18-2009, 06:11 AM   #5
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Good Morning Everyone!
I'm about 90% certain I have Fibro~
I haven't been officially diagnosed by a physician, but from my understanding, they have no definitive test for it. I've researched and diagnosed myself. (I have no health insurance at the moment) I've decided to treat it with exercise and stress management.
I was taking way too much Tylenol and Ibuprofen. I quit taking that daily and now sometimes go a couple weeks without any. For me it's really about learning to live with the pain.
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Old 11-18-2009, 09:43 AM   #6
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Welcome to the club Mom <g>. The most important thing for us fbro suffererers is sleep. You must get as much sleep as possible. And do your research on Fibro, theres a lot of useful info online.

Jewel

Quote:
Originally Posted by DeviantMom View Post
Good Morning Everyone!
I'm about 90% certain I have Fibro~
I haven't been officially diagnosed by a physician, but from my understanding, they have no definitive test for it. I've researched and diagnosed myself. (I have no health insurance at the moment) I've decided to treat it with exercise and stress management.
I was taking way too much Tylenol and Ibuprofen. I quit taking that daily and now sometimes go a couple weeks without any. For me it's really about learning to live with the pain.
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Old 06-06-2010, 06:26 AM   #7
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We have really let this thread die!

Last week, I decided to give Savella a whirl. I have never had any success with antidepressants as pain management in regard to my fibro and I was very hesitant to walk this road again.

I'll keep updating after I titrate up to therapeutic dosing levels. So far (and I know its too early, but I am an immediate gratification kinda woman) nada. But - I remain hopeful!
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Old 03-23-2011, 09:17 PM   #8
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Has anyone tried Lyrica?
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