Cancer Support and Caregivers Who Are Trail Blazers!

DapperButch · 09-03-2015, 04:16 PM

Hey, guys, I had a colonoscopy today, and I am in the clear!

Only one 3mm polyp, so the next one is in one year!

Daisy Chain · 09-03-2015, 04:22 PM

Thats WONDERFUL NEWS !!!!!!!!!!!

So So pleased for you !!

*big smiles* Daisy

Quote:

Originally Posted by DapperButch

Hey, guys, I had a colonoscopy today, and I am in the clear!

Only one 3mm polyp, so the next one is in one year!

clay · 09-03-2015, 06:31 PM

Quote:

Originally Posted by DapperButch

Hey, guys, I had a colonoscopy today, and I am in the clear!

Only one 3mm polyp, so the next one is in one year!

YAY! This is great news DB! Thanks for sharing!

Daisy Chain · 09-08-2015, 02:09 PM

Hello all, hope everyone is doing well and enjoying happy healthy days.

I went for my 4th antibody therapy treatment today, 4th of 12 every 2 months for 2 years, then I`m on my own !

Its usually given by drip which takes 4 hours to go through but its changed now to a 5 minute injection !!

Problem was I had to wait for the drug to arrive at daycare and it also took 40mins and several goes to get a canula in me as and I quote...`my veins are crap, theres just nothing there, they are so fine, they like to hide, oh its blown again and they dont even have any bounce !`....after heat packs, hot water hand washing and a few good slaps we got there ! If only I could have the pre meds, in tablet form I would be in and out.

Anyhow I`m not whining, just sharing. I still think I am privileged to live in a country where care is available, its not for some, and I can go home at the end of it, always a plus !

I would say this though, I`m always a little melancholy to go there, it takes me back to my `ill place` which I manage to keep on the sidelines of my life on the whole. And also brings thoughts of others whom I have sat alongside having treatment and who are no longer with us. Which in turn makes me value every day more.

Anyway, chin up buttercup !

Love to you all, Daisy

Tommi · 09-21-2015, 04:40 PM

Just checkin in. Reading everyone's posts. A valuable reminder, we are still here, and some, like Daisy Chain still doing the active battles.

That "place" we sometimes see but can't find on a map, can visit, but never want to stay. We can't take anyone with us, without road signs, posted limits, or directions.

Knowing that I am here, and find myself not visiting that place so often, and knowing every single day and every single person and smile is most important.

My Minds Book of Good Memories helps to keep me on the right road, and my plans for the future point to a map on my wall. Sierra Club world map is posted on my kitchen wall, with post it notes of today and tomorrow things to do, places to go. Next week Cleveland, November Galapagos.

Around me are happy pictures, we celebrated my first real tattoo at Benihana's (after my pelvic radiation dot tattoo's, I got Kanji Master script, on my arm, and in my signature below), Our 2nd year anniversary, which was almost two years to the day, after my re-diagnosis, and our Honeymoon Photo in May, also at Benihana's. That is our Friday night dinner place, we celebrate something on those nights, it is my way of marking the road behind, and knowing, that ahead there are Friday nights I will be celebrating my life. In the last two years we have celebrated life, Pictures of two beautiful couples that were married, and in whose wedding we were proud to be part of.

Roses and plumeria blooming all around the house, all year long, to remind me of the natural beauty and smells of this wonderful planet.

All this helps keep me in the place I want to be. Looking out the window, I see the need to refill the hummingbird feeder, so my cat can chatter through the glass, and the little birds can twitter about happy to have a drink in shade, in this horrible hundred degree heat.

I have places to go and things to do. I even forgot about, missed the 6 month follow-up oncologists appointment, now post-poned till mid Oct. and I didn't panic. Maybe because I was dealing with a broken foot, a trip to see the Steelers and my sister I hadn't seen in 25+ years. Taking the wife to meet my estranged family. What a hoot that was, and they welcomed her with open arms.

Since that "place" took me by such surprise, that May of 2004, I am happy to visit BFP and know we are still here, can keep coming back, and understand , those moments, those nights and days, and the life of those interrupted.

.

Love ,
Tommi

Genesis · 12-01-2015, 12:10 PM

Good day everyone...

I feel like I was out in a time warp and just got out of it...
My deepest condolences for those that have lost a loved one since I last was active on this thread... Also I am happy and excited for those of you who are
on remission and clean, and those of you still rolling up your sleeves and kicking toosh! As for me, I am doing ok... This year has been an uphill battle with a few wonderful restful stops that had magnificent views and then more climbing... This year is not over and neither are the opportunities for learning and growing... My Mama had been on remission from multiple myeloma for almost a year until probably two-three weeks ago... As of right now... She keeps fighting... and we are hanging on... It had been a while since I had to see her this way... I know it was unrealistic to think that she would not have another battle... another close call... I know it was a bit silly of me to think that she would just keep getting better.... I learned my lesson... duly noted... She is so strong... I just hope I can keep holding on as hard as she is fighting... I love you Mama...

Genesis · 12-14-2015, 05:38 PM

Hello everyone! I hope everyone is doing well or as good as you can given the current situation you each might be in.
My Mama is recuperating slowly and doing well. She is such a strong woman... Never seizes to amaze me... As for me I'm just keeping my eyes up to the sky and feeling gratitude in my heart for the interesting roller coaster we have been in the last few weeks. Wishing each of you to have wonderful holidays with your loved ones whom you call family.... Make each moment count...

clay · 12-14-2015, 08:02 PM

Quote:

Originally Posted by Genesis

Hello everyone! I hope everyone is doing well or as good as you can given the current situation you each might be in.
My Mama is recuperating slowly and doing well. She is such a strong woman... Never seizes to amaze me... As for me I'm just keeping my eyes up to the sky and feeling gratitude in my heart for the interesting roller coaster we have been in the last few weeks. Wishing each of you to have wonderful holidays with your loved ones whom you call family.... Make each moment count...

Sending gentle hugs & healing energies for Genesis & mama!
Hold on to her tight, my friend!!!
Keeping you both close in spirit!!!!

09-03-2015, 04:16 PM	#1
DapperButch Roadster Guy How Do You Identify?: FTM, Stone Butch Preferred Pronoun?: He Join Date: Nov 2009 Location: Northeast Posts: 7,745 My Photo Gallery Thanks: 26,545 Thanked 26,814 Times in 5,772 Posts Rep Power: 21474858	UPDATE Hey, guys, I had a colonoscopy today, and I am in the clear! Only one 3mm polyp, so the next one is in one year! __________________ -Dapper Are you educated or indoctrinated?

09-21-2015, 04:40 PM	#5
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,338 Times in 5,970 Posts Rep Power: 21474860	Melancholy Ville, just beyond... Just checkin in. Reading everyone's posts. A valuable reminder, we are still here, and some, like Daisy Chain still doing the active battles. That "place" we sometimes see but can't find on a map, can visit, but never want to stay. We can't take anyone with us, without road signs, posted limits, or directions. Knowing that I am here, and find myself not visiting that place so often, and knowing every single day and every single person and smile is most important. My Minds Book of Good Memories helps to keep me on the right road, and my plans for the future point to a map on my wall. Sierra Club world map is posted on my kitchen wall, with post it notes of today and tomorrow things to do, places to go. Next week Cleveland, November Galapagos. Around me are happy pictures, we celebrated my first real tattoo at Benihana's (after my pelvic radiation dot tattoo's, I got Kanji Master script, on my arm, and in my signature below), Our 2nd year anniversary, which was almost two years to the day, after my re-diagnosis, and our Honeymoon Photo in May, also at Benihana's. That is our Friday night dinner place, we celebrate something on those nights, it is my way of marking the road behind, and knowing, that ahead there are Friday nights I will be celebrating my life. In the last two years we have celebrated life, Pictures of two beautiful couples that were married, and in whose wedding we were proud to be part of. Roses and plumeria blooming all around the house, all year long, to remind me of the natural beauty and smells of this wonderful planet. All this helps keep me in the place I want to be. Looking out the window, I see the need to refill the hummingbird feeder, so my cat can chatter through the glass, and the little birds can twitter about happy to have a drink in shade, in this horrible hundred degree heat. I have places to go and things to do. I even forgot about, missed the 6 month follow-up oncologists appointment, now post-poned till mid Oct. and I didn't panic. Maybe because I was dealing with a broken foot, a trip to see the Steelers and my sister I hadn't seen in 25+ years. Taking the wife to meet my estranged family. What a hoot that was, and they welcomed her with open arms. Since that "place" took me by such surprise, that May of 2004, I am happy to visit BFP and know we are still here, can keep coming back, and understand , those moments, those nights and days, and the life of those interrupted.. Love , Tommi Last edited by Tommi; 09-21-2015 at 04:46 PM.

12-01-2015, 12:10 PM	#6
Genesis Infamous Member How Do You Identify?: Femme on a varied spectrum/babygirl Preferred Pronoun?: she/her/hers Relationship Status: Loved ლ ⚢ Join Date: May 2013 Location: Devenir un avec l'immatérialité des étoiles... Posts: 9,434 My Photo Gallery Thanks: 6,603 Thanked 14,668 Times in 6,298 Posts Rep Power: 21474858	Long time... Good day everyone... I feel like I was out in a time warp and just got out of it... My deepest condolences for those that have lost a loved one since I last was active on this thread... Also I am happy and excited for those of you who are on remission and clean, and those of you still rolling up your sleeves and kicking toosh! As for me, I am doing ok... This year has been an uphill battle with a few wonderful restful stops that had magnificent views and then more climbing... This year is not over and neither are the opportunities for learning and growing... My Mama had been on remission from multiple myeloma for almost a year until probably two-three weeks ago... As of right now... She keeps fighting... and we are hanging on... It had been a while since I had to see her this way... I know it was unrealistic to think that she would not have another battle... another close call... I know it was a bit silly of me to think that she would just keep getting better.... I learned my lesson... duly noted... She is so strong... I just hope I can keep holding on as hard as she is fighting... I love you Mama...

12-14-2015, 05:38 PM	#7
Genesis Infamous Member How Do You Identify?: Femme on a varied spectrum/babygirl Preferred Pronoun?: she/her/hers Relationship Status: Loved ლ ⚢ Join Date: May 2013 Location: Devenir un avec l'immatérialité des étoiles... Posts: 9,434 My Photo Gallery Thanks: 6,603 Thanked 14,668 Times in 6,298 Posts Rep Power: 21474858	Update Hello everyone! I hope everyone is doing well or as good as you can given the current situation you each might be in. My Mama is recuperating slowly and doing well. She is such a strong woman... Never seizes to amaze me... As for me I'm just keeping my eyes up to the sky and feeling gratitude in my heart for the interesting roller coaster we have been in the last few weeks. Wishing each of you to have wonderful holidays with your loved ones whom you call family.... Make each moment count...

09-08-2015, 02:09 PM	#4
Daisy Chain Member How Do You Identify?: Femme Preferred Pronoun?: she Relationship Status: Hy calls me Hys Kitten Join Date: May 2015 Location: 2nd star to the right and straight on til morning Posts: 729 My Photo Gallery Thanks: 1,814 Thanked 1,808 Times in 447 Posts Rep Power: 0	Hello all, hope everyone is doing well and enjoying happy healthy days. I went for my 4th antibody therapy treatment today, 4th of 12 every 2 months for 2 years, then I`m on my own ! Its usually given by drip which takes 4 hours to go through but its changed now to a 5 minute injection !! Problem was I had to wait for the drug to arrive at daycare and it also took 40mins and several goes to get a canula in me as and I quote...`my veins are crap, theres just nothing there, they are so fine, they like to hide, oh its blown again and they dont even have any bounce !`....after heat packs, hot water hand washing and a few good slaps we got there ! If only I could have the pre meds, in tablet form I would be in and out. Anyhow I`m not whining, just sharing. I still think I am privileged to live in a country where care is available, its not for some, and I can go home at the end of it, always a plus ! I would say this though, I`m always a little melancholy to go there, it takes me back to my `ill place` which I manage to keep on the sidelines of my life on the whole. And also brings thoughts of others whom I have sat alongside having treatment and who are no longer with us. Which in turn makes me value every day more. Anyway, chin up buttercup ! Love to you all, Daisy