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05-18-2010, 11:39 AM
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#1 |
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Timed Out
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BUMP de BUMP BUMP
How is everyone doing? Andrew  |
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05-18-2010, 10:38 PM
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#2 | |
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Infamous Member
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Married and Bound to Tommi's kaijira (Ts_kaijira )  Join Date: Nov 2009
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6 years and it gets Better N Better
Quote:
After a tough couple of months, and DustyBoy Kitty passing through on May 1st, I realized how time flies I celebrated 6 years of being cancer free on May 15. Endometrial cancer diagnosis shook my world and it felt like the air was sucked out of the universe. After radical total hysterectomy, and 16 lymph nodes removed, i did well UNTIL...I got a massive infection that almost killed me. I live every day to the fullest, and love like there is no tomorrow..Thanks for all the love and positive energy. Tommi |
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05-19-2010, 07:33 AM
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#3 | |
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Member
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Good 'n married. 
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Location: Eastern Canada. But if I make a wrong turn at the lights I get stopped by a border guard.
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Quote:
Prayers and hugs to all those fighting the fight. Sue 
__________________
"Compassion, in which all ethics must take root, can only attain its full breadth and depth if it embraces all living creatures and does not limit itself to mankind." -Albert Schweitzer |
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05-19-2010, 07:47 AM
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#4 | |
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Infamous Member
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cybersubee soon to be Two
Quote:
 for you.WOW..It is a good feeling to be know we will celebrate 2 for you soon. See, it has been fast. i remember you posting way back when. Plant a beautiful rose bush wherever you are, cybersubee. It is a good feeling to stop and touch the flowers. I am having some friends over, and I will plant my 6th in the front yard this weekend. I took huge roses from my yard to work on Monday. My private celebration, to stop and smell the roses. Love to all who carry the torch for those who no longer can. Tommi |
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05-19-2010, 09:30 AM
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#5 |
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Timed Out
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I go in the hospital next week for my surgery. Then I have to wait for the results. I think that is the hardest part. The surgeon told me that the results will be back by the time she is finishing up. So I will know when I wake up. Then in 3 days I will know the exact kind of cancer. She is treating me as if I do have cancer. With the history of cancer in my family, and having the symptoms I have, she is pretty sure it is cancer. The grade and kind is up for debate. I am feeling as if it isn't my time yet. I have alot of living to do yet.   Andrew |
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05-21-2010, 08:18 PM
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#6 | |
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BFP Angel
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Femme Relationship Status:
Yes I have a status. 
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Location: I ride a cowboy in Rodeo in the communist nation of the isle of cali.
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Quote:
I am now dealing strictly with hospice. I love it. I do have one problem though and that is I have lost wayyyyyy too much weight. People have suggested those protein shakes but that is even confusing. LOL Most of what I have looked at deal with weight loss, I can't seem to find one for weight gain. Any suggestions? sweetcali |
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05-21-2010, 08:35 PM
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#7 | |
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In Memory Of
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fierce femme grrl Preferred Pronoun?:
beautiful, pumpkin, princess, sweet pea, babygirl Relationship Status:
i don't think it's in the stars for me. 
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Quote:
carnation instant breakfasts or ensure are both something that can help get calories in you fast and come in a can ready to drink (use a straw if you aren't crazy about the flavor) milkshakes! a good granola to snack on even when not so hungry (bear naked is a delicious brand and they even have a high protein version) and maybe a joint to give you the munchies...
__________________
"and you can use my skin. to bury secret sins." |
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05-22-2010, 08:34 AM
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#8 | |
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Timed Out
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Going slow ...
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Quote:
Do you have appetite? how is your energy level? are you sleeping ok? are you trying to do the traditional three meals a day? what confused you about the protein shakes? is it hard to concentrate? Perhaps I should PM you ... that is how I usually communicate with people here. Is that ok with you? |
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05-21-2010, 08:39 PM
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#9 | |
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Timed Out
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Quote:
It is kind of unethical for a doctor to tell you that you have cancer before the biopsy results are in, don't you think? It is unconscionable to have you this stressed out withOUT results! That would worry me a LOT! I know everyone is praying for you to have a good outcome. We have to advocate for ourselves. I know that I always get a second opinion because one just never knows what a new set of eyes may see. If you don't like a doctor then don't go back. If a medical professional is cavalier with you? Step up to the plate for yourself! At the end of the day we are the only ones that know our bodies and what is really best. |
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05-22-2010, 07:07 AM
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#10 | |
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Infamous Member
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Our rights and lefts
Andrew, I wanted to say thanks for this thread. Thanks for a place we can come to and talk among those who understand this journey
And for those taking care of us, a place to seek and rest among friends. Any time of the day or night call out, someone is near by. sweetcali, My Mom loved peanut butter N jelly sandwiches, chased with coffee flavored milk shakes. They now have frozen,I think it's Smucker's Pnt btr and grape jelly..Wishing you well this Sat. AM from So Cal. If you were closer I'd bring you some stuffed French Toast from Mimi's. "and maybe fiercegrrl could bring you a joint to give you the munchies". Andrew, ride hard and be prepared. I know you have been here before dear friend..  Candles of hope for you and you are in my prayers....TommiQuote:
I canceled surgery a day before I was to scheduled for a total radical hyster for uterine cancer. I had done the autologinous blood transfusions for 6 weeks at the Red Cross and my blood was waiting at the hospital for me. I asked the Doc if she had the results from my CT Scan, because my one kidney looked enlarged on the ultrasound..She said no, but if I see anything when I'm in there, we'll take care of it!!!there is always a general surgeon in the OR. STOP>>>I asked if maybe an MRI should be done prior to surgery. She said no, we can "always" remove your kidney...ALWAYS...cause I have 2? Went to a Gyn/Onchologist, who did total workup on me, including the MRI, bone scan, liver scan, lung scan, etc , prior to OR..and saw I had some lymph nodes that were swollen, and 16 had to come out.BUT all was known, ahead of time. |
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05-15-2013, 03:05 AM
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#11 | |
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Infamous Member
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Happy Anniversary to ME :)
Quote:
I am now 9 years cancer free. I have learned and lived and loved alot. I highly recommend it. THAT annual appointment at 7AM with my Oncologist is looming, I can't sleep, so..this is a healthy place to hang out. Think I'll go make some hot chocolate and cinnamon toast. |
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05-15-2013, 11:52 PM
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#12 | |
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Member
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old school stonebutch, Queer TG butch, ranch hand Preferred Pronoun?:
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single, not looking Join Date: Mar 2011
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__________________
"Your outlook affects your outcome". John Paul Warren |
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05-16-2013, 07:07 PM
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#13 | |
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Infamous Member
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Rockin and rollin and boppin anda strollin
Quote:
I made my follow-up appointment for May 14, 2014, my 10 year Anniversary  All went well, always glad to see them under these circumstances. Exams, tests and "results will be in the mail". I took several days off work for R & R Now, back to living life to it's fullest. Where is that bull named Fumanchu |
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05-16-2013, 07:12 PM
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#14 | |
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Roadster Guy
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FTM, Stone Butch Preferred Pronoun?:
He 
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Quote:
 Congrats!
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-Dapper    Are you educated or indoctrinated? |
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05-16-2013, 07:30 PM
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#15 | |
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Infamous Member
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Quote:
Hey you...Thanks for the concern, and ...the smile at your post.  
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06-02-2013, 06:23 PM
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#16 | |
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Infamous Member
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The tests. The wait. The results. The re-test. The wait..and the beat goes on.
Quote:
The dreaded phone call came on Friday. "We need you to come back for a follow-up as the Pap results showed some atypical cells. Doc wants to do a Colposcopy" A what?? I can come in tomorrow, I mean Monday" "The first appointment we have available is on the 19th at 7:00AM, and in case he needs to do a biopsy it will be done at that time." ... What is a colposcopy anyway? ......as I am Googling it...Endometrial cancer, follow-ups for atypical cells, a magnifying light, acetic acid...oy vey* as the Nurse is saying ....These things are just routine, and negative 9 times out of 10, just a little burning, and uncomfortable cramps possibly for a day or two and..... as my mind wandered off to the beach. Who the hell can call this routine after 9 years of negative pap smears /post total radical hysterectomy with 16 lymph nodes donated to science***I thought it was "my prostate" surgery in the first place. I hate waiting. So, to wile away the team, so I gessoed a huge canvas...  Hmmm. either a peaceful landscape or a rolling stormy seascape 3 X 4 feet Last edited by Tommi; 06-02-2013 at 06:39 PM. |
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06-02-2013, 11:45 PM
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#17 | |
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Member
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__________________
"Your outlook affects your outcome". John Paul Warren |
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06-03-2013, 05:52 AM
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#18 | |
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Member
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her femme Preferred Pronoun?:
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Quote:
I am so sorry you got that call...you'll be in my thoughts and prayers everyday and I'll be waiting for the all clear on the 19th or whenever you find out the results. Big hugs to you. Keep on painting and creating, it is good for your soul. ((((Tommi)))) |
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06-03-2013, 08:24 PM
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#19 | |
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Senior Member
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Hopefully having you wait until the 19th means they don't have any concerns. Damn thats a long wait. Hugs to you!
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06-19-2013, 01:16 PM
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#20 | |
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Infamous Member
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Relief and release
Quote:
Thank you for the good karma and thoughts sent my way. . Home for the day. Out out brief spot. Biopsied "a spot" this AM. Sent out for tests. "We'll call you, or send you a card" . *CALL ME*** Now another Wait. Then recheck in either 3 or 6 mos. depending if it is atypical or...something else, worst case radiation. I found this on Google...and it left off alot of things on the lists of what-to-do while waiting. """"Awaiting Cancer Test Resluts? Ways to take control of your anxiety and not let it control you How much information do you need to feel comfortable? Are you the kind of person who feels better when you know every detail of every procedure and the information it will reveal? YES> If so, it’s a good idea to ask questions until you are satisfied. ll. Focus on the “what-nows," instead of the "what-ifs.” Keep your focus on the present: Look at the test as a valuable tool for your doctor to use in finding the best treatment for you. Other strategies for keeping your mind in the present while waiting for test results include: Exercising Listening to music Reading what you enjoy the most Doing hobbies that you enjoy the most Relaxing or meditating, such as lying down and slowly breathing in and out while focusing on the movement of your breath Talking about your feelings with family, close friends or a support group Reminding yourself of your spirituality, and whatever faith or belief that comforts you " What about Chocolate milkshakes, banana splits, mad wild monkey sex. My BFF's are willing to go sky diving with me. (take me there, but not jump) and go paint-balling when I am ready. I don't have any ice cream, or banana's, thus I think I will just check my phone list and find a monkey girl . For now, go make PenPal artist trading cards ,then , slamming the canvas---with paint..unless 
Last edited by Tommi; 06-19-2013 at 01:23 PM. |
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