Cancer Support and Caregivers Who Are Trail Blazers!

Spirit Dancer · 05-23-2010, 08:36 AM

Quote:

Originally Posted by sweetcali

I have Stage 4 non-small cell lung cancer and am currently under the care of hospice. I have found this to be a seriously bizarre journey. What I have found most bizarre is that people already have me dead.

They will ask Mike how I am doing but they don't ask me. There were only 2 people that would call and check in on me when I was going through chemo the rest got angry because apparently I wasn't communicating enough. The whole journey is just weird. I find it really odd that they got angry with me when I was undergoing chemo treatment and I couldn't put 2 words together let alone type. Yet they were angry with me for not communicating.

Ummmm...hello.....you try having every cell in your body killed off, drugs shoved into your body, swell up like a balloon and then then try to act as if everything is just fine. LOL It ain't gonna happen.

The whole thing is just bizarre.

sweetcali

Sweet Cali
I highlighted in red, exactly what we are going through, My heart goes out to you and all the others who are suffering and fighting this battle. At times it seems as if the loved one and caregiver are fighting alone. Its tough when your friends cannot fathom how very taxing Chemo and Steroids are on you.
It takes only a minute to phone and say I thought of you today.
So today I want you to know I thought of you and the others who grace this thread and silently said a prayer.

fiercegrrl · 05-23-2010, 08:22 PM

i am having surgery this week as well. another massive incision and a few days in the hospital.
this time around there is not going to be the constant help of my mom. not since she decided it was ok to steal most off my pain killers, anxiety and sleeping meds.
so my poor brain that's like swiss cheese these days is trying to play a strategic game of who can come be with me in the hospital and when and for how many hours. it's surprising to me that my friends are actually saying they can't help because they have already made plans. everyone always tells me to let them know when i need help. and when i finally work myself up to actually asking for it i hear no. and people wonder why i resist asking for help.
and to top off the fun of surgery my next round of chemo will be probably be administered while im in the hospital. that's just adding insult to injury.

when all this is done i want a fucking vacation. i want a hotel room with 1000 thread count sheets, a chocolate on my pillow every night, and a view of the ocean.

*sigh*

05-23-2010, 08:22 PM	#2
fiercegrrl In Memory Of How Do You Identify?: fierce femme grrl Preferred Pronoun?: beautiful, pumpkin, princess, sweet pea, babygirl Relationship Status: i don't think it's in the stars for me. Join Date: Nov 2009 Location: washington DC Posts: 133 My Photo Gallery Thanks: 34 Thanked 292 Times in 83 Posts Rep Power: 2486279	i am having surgery this week as well. another massive incision and a few days in the hospital. this time around there is not going to be the constant help of my mom. not since she decided it was ok to steal most off my pain killers, anxiety and sleeping meds. so my poor brain that's like swiss cheese these days is trying to play a strategic game of who can come be with me in the hospital and when and for how many hours. it's surprising to me that my friends are actually saying they can't help because they have already made plans. everyone always tells me to let them know when i need help. and when i finally work myself up to actually asking for it i hear no. and people wonder why i resist asking for help. and to top off the fun of surgery my next round of chemo will be probably be administered while im in the hospital. that's just adding insult to injury. when all this is done i want a fucking vacation. i want a hotel room with 1000 thread count sheets, a chocolate on my pillow every night, and a view of the ocean. sigh __________________ "and you can use my skin. to bury secret sins."