Cancer Support and Caregivers Who Are Trail Blazers!

[pynkkameleon]

Originally Posted by clay

Good evening pynk:

Just checking in to see how you are doing?

Leave us an update when you can, pls...thinking of you....fondly...clay

You have such a beautiful heart Clay. Thank you for caring about and checking in on all of us.

I’m sad to learn that Bulldog has these challenges ahead. Please pass on my thoughts of comfort, healing and well wishes for a speedy recovery from surgery. It sounds like she has a great team of doctors behind her and that her spirit is strong. Please continue to keep us all posted.

I’m doing okay. I’ve been pretty fatigued lately and back to napping like I’m Rip Van Winkle **Zzzzz…** Two days ago I went in for my monthly checkup and infusion and found out that my I’m neutropenic and extra susceptible to infections. The Doc put me on a short break from the Ibrance in order to get my numbers back up. It explains why I’ve been so sleepy, sluggish and have been having issues with mouth and nose sores etc. Cancer truly is the gift that keeps on giving.. This Friday I have a brain MRI to rule out mets as the cause of my headaches. I’m not too concerned about that being the cause but it’ll be good to get a baseline.

Glad to hear that you’ll be seeing the Onco soon and that you’re getting in to see pain management. It sounds like you have a pretty spectacular relationship with your entire team of doctors. That doesn’t surprise me in the slightest. You have that way about you.

Nina- Hopefully your labs came back good and you can get your scans done soon.

Kätzchen And Canela- How are each of you doing?

How’s everyone else doing?

Sending big love and good juju out into the universe for each of you. Be good to you 💜

[BullDog]

Thank you for giving the update Clay! She has been amazing support for the entire time. I do have stage 4 uterine cancer which is serious. I had a hysterectomy, Fallopian tubes and other bits taken out, a colostomy, and an appendectomy.

I was so weak at first but now able to walk short distances. I talked to my doctor today. I am getting out of the hospital later today. I thought I was going to have to go to rehab for 2 weeks but I don’t. Also my colostomy is temporary. I am ecstatic with all this great news.

I do have to start chemo in 3-4 weeks so more to do. But I have an amazing doctor and incredible family and friends - many of whom are facing their own very serious challenges. Yet still they support me. I am so grateful and love them all very much.

I hope everyone is doing well. I want to hear how all of you are doing and let me know if I can do anything to help.

[clay]

[COLOR="Blue"]B]BULLY!!!!

DAMN that is awesome news!!! It makes my heart sing for your progress AND for your positive attitude!!!! That makes a HUGE difference!


We already talked, so you KNOW how happy I am!! I called my wife & we were both crying! She & I love you so very much, J!!!!

I love being here for you, dood!!!

Go gently, baby steps, do not over do!!!!

Originally Posted by BullDog

Thank you for giving the update Clay! She has been amazing support for the entire time. I do have stage 4 uterine cancer which is serious. I had a hysterectomy, Fallopian tubes and other bits taken out, a colostomy, and an appendectomy.

I was so weak at first but now able to walk short distances. I talked to my doctor today. I am getting out of the hospital later today. I thought I was going to have to go to rehab for 2 weeks but I don’t. Also my colostomy is temporary. I am ecstatic with all this great news.

I do have to start chemo in 3-4 weeks so more to do. But I have an amazing doctor and incredible family and friends - many of whom are facing their own very serious challenges. Yet still they support me. I am so grateful and love them all very much.

I hope everyone is doing well. I want to hear how all of you are doing and let me know if I can do anything to help.

[Kätzchen]

Thanks for asking about me, Pynk. We're in crisis mode at work and my health appts got pushed back until we solve our situation at work.

I'm doing okay. I hurt a lot, but my bones hurt the most. I'm in no big hurry but my medical providers are so helpful and encouraging me with alternative methods of treatment, which we talk about privately on our health care website -- almost daily -- we have a robust conversation about what we can do, once we get confirmation on the biopsy result.

Bulldog, your situation sounds entirely challenging. Please know that my partner and I send tons of positive energy your way.

And Pynk, we continue to keep you in our thoughts.


Sending wellness wishes to all,
~K.

[clay]

CT Chest scan.....no new nodules, no bigger growths.

See Doc again soon. I do have a large, calcified granuloma in lower right lobe. Usually benign, form after pneumonia, lung infections, inhalants, etc. I am happy about this!!

Off for a long 5 day with my wife, camping at Salt Springs....can hardly wait to get into those 72 degree salt springs!!!

Take care everyone. We have no internet nor cell service at the forest.

Mad love to all of us, facing challenges of varying degrees.

Bully...stay out of trouble, dood!!

[clay]

Hey V!!! Really glad to see this update, but sorry to hear of the issues related to Ibrance, etc. Have you tried any of the biotene drops for your mouth? They have a whole slew of products available. IF you can't find them, let me know & I will make sure you get some!!

My LTR partner had same issues as you are having, I found them, & she LOVED them.

Nystatin swish & swallow....she had thrush from her chemo wiping out immune system.

Big ole hugs...and you are making me blush. Your kind words are so appreciated, my dear friend.

I DO have an awesome rapport with my docs!!! They call me personally with any updates, concerns, etc!

Take care.....be gentle with you!!!

Originally Posted by pynkkameleon

You have such a beautiful heart Clay. Thank you for caring about and checking in on all of us.

I’m sad to learn that Bulldog has these challenges ahead. Please pass on my thoughts of comfort, healing and well wishes for a speedy recovery from surgery. It sounds like she has a great team of doctors behind her and that her spirit is strong. Please continue to keep us all posted.

I’m doing okay. I’ve been pretty fatigued lately and back to napping like I’m Rip Van Winkle **Zzzzz…** Two days ago I went in for my monthly checkup and infusion and found out that my I’m neutropenic and extra susceptible to infections. The Doc put me on a short break from the Ibrance in order to get my numbers back up. It explains why I’ve been so sleepy, sluggish and have been having issues with mouth and nose sores etc. Cancer truly is the gift that keeps on giving.. This Friday I have a brain MRI to rule out mets as the cause of my headaches. I’m not too concerned about that being the cause but it’ll be good to get a baseline.

Glad to hear that you’ll be seeing the Onco soon and that you’re getting in to see pain management. It sounds like you have a pretty spectacular relationship with your entire team of doctors. That doesn’t surprise me in the slightest. You have that way about you.

Nina- Hopefully your labs came back good and you can get your scans done soon.

Kätzchen And Canela- How are each of you doing?

How’s everyone else doing?

Sending big love and good juju out into the universe for each of you. Be good to you 💜