being disabled....

deb_U_taunt · 05-23-2011, 05:05 PM

I feel blessed with wonderful and loving people in my life.
Didn't know how many people cared, until I was down.

iamkeri1 · 06-13-2011, 12:23 PM

How is everyone doing this week? The heat here is incredible. Of course it's always hot here in the summer, but it is a little early this year. I moved fo Florida for the heat, and I have certainly not been denied it, LOL.

Hope y'all are doing well, Pop in and say a word or two.
Smooches,
Keri

Hollylane · 06-13-2011, 01:27 PM

Hello All,
I'll pop in and say a word or two..Though I'm well known for using a whole lot more then one or two!

I have gastroparesis. I miss a lot of work due to pain, nausea and vomiting. As I've mentioned recently in other posts, I recently had a pyloroplasty to hopefully relieve some of my symptoms(but added another nasty one that I won't burden all of you with knowing). The medications I take for pain and nausea are debilitating and make it impossible for me to report to work fit for duty when I am on them. The only medication that would likely help the most is the green stuff. My employer would not support this as a treatment option, and probably couldn't legally if they wanted to.

At work, there is a lot of water cooler talk about my attendance, and because I do not have a visible disability, it is mostly assumed that I am a dead beat employee. As a workaholic/over achiever, this is distressing to me.

I really miss being up and able enough to do the things I really enjoy in life, and I really miss being the star employee!

That's all I have for now. Hope everyone is having a great day!

deb_U_taunt · 06-17-2011, 08:30 PM

Considering smoking for chemo side effects. I haven't smoked pot in years. The meds for the side effects have some shit side effects.

T D · 06-17-2011, 08:37 PM

Quote:

Originally Posted by Debby

Considering smoking for chemo side effects. I haven't smoked pot in years. The meds for the side effects have some shit side effects.

Have you thought about cooking with canna-butter? just a thought. I made some and use it for cooking and occasional consumption. I'm not big on pot, but it does help with my Fibro some. I especially notice it the next morning (after having some at bedtime), my entire body seems more relaxed.

Just a thought.

Best of luck to you.

Soft*Silver · 07-17-2011, 09:46 PM

I hate the way pot makes me feel in my head but I love the way it helps my body. On very rare occassions when the pain was too much for me to endure and the damn PCP wouldnt give me pain meds, I resorted to pot. I havent had to do that for a few months since the gastric surgery because i had a long script for vicodine but thats almost out. So now I have to use pot or find a new PCP...which I wanted to do anyway.

I hate the feeling of being high. I am also in recovery and have an ethical delimma about using pot, even if it is to alleviate pain. Because I loathe it so much, i dont consider it a break in my sobriety. Its also no different than the vicodine. Its for the pain. There have been times it kept me from chewing my fingers down to the knuckles.

DressyFemme · 02-10-2017, 11:49 AM

I have Adult ADHD (why I lost my job of 9 years... just came up after my total hysterectomy). I also was diagnosed with major depression, generalized anxiety disorder... and am in recovery from binge eating disorder and diabetes type 2. Recovery is going well but I had a complex surgery recently for endometriosis in my pelvis and colon and am going in again Thursday for herniated disc surgery on my lower back. Thank God for the end of pain being in sight...

I find I now have to work part time vs full time because I need to take care of me. Seeing my treatment team regularly takes time! Plus there are days where I just don't want to do anything although not many as of late. But I have to have "me" time for exercise and social activities and recovery.

I'm also a caregiver. My partner also has BED and diabetes, and is on disability retirement after an injury at work worsened into foot ulcers and an experimental treatment caused a foot deformity. She gets SSD and is semi-ambulatory and needs assistance with long distance walking and walking on untreated surfaces. (Snow, ice). It's been a huge adjustment for both of us as we were both active beforehand. Some days we just stay home; others I get out of the house and assist with shopping, picking up meds, and acting as her POA and health care proxy. (Really glad we set up that paperwork when we did).

I'm in process of going back to work after surgery. I'm worried about my partner being alone while I'm at work and wish I was financially independent but life hands you what you can deal with I guess.

Any other disabled caregivers here? I salute you for your love and dedication.

07-17-2011, 09:46 PM	#6
SoftSilver Infamous Member How Do You Identify?: femme Preferred Pronoun?: she Relationship Status: Married Join Date: Nov 2009 Location: rose cottage Posts: 5,592 My Photo Gallery Thanks: 8,948 Thanked 15,903 Times in 4,062 Posts Rep Power*: 21474857	I hate the way pot makes me feel in my head but I love the way it helps my body. On very rare occassions when the pain was too much for me to endure and the damn PCP wouldnt give me pain meds, I resorted to pot. I havent had to do that for a few months since the gastric surgery because i had a long script for vicodine but thats almost out. So now I have to use pot or find a new PCP...which I wanted to do anyway. I hate the feeling of being high. I am also in recovery and have an ethical delimma about using pot, even if it is to alleviate pain. Because I loathe it so much, i dont consider it a break in my sobriety. Its also no different than the vicodine. Its for the pain. There have been times it kept me from chewing my fingers down to the knuckles. __________________ Pole bachit, a lis chuye. The field sees, the forest hears

02-10-2017, 11:49 AM	#7
DressyFemme Junior Member How Do You Identify?: FEMME Relationship Status: MARRIED :) Join Date: Feb 2010 Location: Rochester, NY Posts: 36 My Photo Gallery Thanks: 15 Thanked 90 Times in 26 Posts Rep Power: 1208582	Being disabled....and a caregiver at the same time I have Adult ADHD (why I lost my job of 9 years... just came up after my total hysterectomy). I also was diagnosed with major depression, generalized anxiety disorder... and am in recovery from binge eating disorder and diabetes type 2. Recovery is going well but I had a complex surgery recently for endometriosis in my pelvis and colon and am going in again Thursday for herniated disc surgery on my lower back. Thank God for the end of pain being in sight... I find I now have to work part time vs full time because I need to take care of me. Seeing my treatment team regularly takes time! Plus there are days where I just don't want to do anything although not many as of late. But I have to have "me" time for exercise and social activities and recovery. I'm also a caregiver. My partner also has BED and diabetes, and is on disability retirement after an injury at work worsened into foot ulcers and an experimental treatment caused a foot deformity. She gets SSD and is semi-ambulatory and needs assistance with long distance walking and walking on untreated surfaces. (Snow, ice). It's been a huge adjustment for both of us as we were both active beforehand. Some days we just stay home; others I get out of the house and assist with shopping, picking up meds, and acting as her POA and health care proxy. (Really glad we set up that paperwork when we did). I'm in process of going back to work after surgery. I'm worried about my partner being alone while I'm at work and wish I was financially independent but life hands you what you can deal with I guess. Any other disabled caregivers here? I salute you for your love and dedication.

05-23-2011, 05:05 PM	#1
deb_U_taunt Senior Member How Do You Identify?: ........ Join Date: May 2011 Location: ....... Posts: 1,748 My Photo Gallery Thanks: 5,324 Thanked 5,255 Times in 1,361 Posts Rep Power: 21474852	I feel blessed with wonderful and loving people in my life. Didn't know how many people cared, until I was down.

06-13-2011, 12:23 PM	#2
iamkeri1 Member How Do You Identify?: femme woman Preferred Pronoun?: she Relationship Status: solo Join Date: Nov 2009 Location: Central Florida Posts: 905 My Photo Gallery Thanks: 302 Thanked 2,153 Times in 659 Posts Rep Power: 16642920	How is everyone doing this week? The heat here is incredible. Of course it's always hot here in the summer, but it is a little early this year. I moved fo Florida for the heat, and I have certainly not been denied it, LOL. Hope y'all are doing well, Pop in and say a word or two. Smooches, Keri

06-13-2011, 01:27 PM	#3
Hollylane Practically Lives Here How Do You Identify?: . Preferred Pronoun?: . Relationship Status: . Join Date: Jun 2011 Location: . Posts: 11,495 My Photo Gallery Thanks: 34,694 Thanked 26,362 Times in 5,875 Posts Rep Power: 21474862	Hello All, I'll pop in and say a word or two..Though I'm well known for using a whole lot more then one or two! I have gastroparesis. I miss a lot of work due to pain, nausea and vomiting. As I've mentioned recently in other posts, I recently had a pyloroplasty to hopefully relieve some of my symptoms(but added another nasty one that I won't burden all of you with knowing). The medications I take for pain and nausea are debilitating and make it impossible for me to report to work fit for duty when I am on them. The only medication that would likely help the most is the green stuff. My employer would not support this as a treatment option, and probably couldn't legally if they wanted to. At work, there is a lot of water cooler talk about my attendance, and because I do not have a visible disability, it is mostly assumed that I am a dead beat employee. As a workaholic/over achiever, this is distressing to me. I really miss being up and able enough to do the things I really enjoy in life, and I really miss being the star employee! That's all I have for now. Hope everyone is having a great day!

06-17-2011, 08:30 PM	#4
deb_U_taunt Senior Member How Do You Identify?: ........ Join Date: May 2011 Location: ....... Posts: 1,748 My Photo Gallery Thanks: 5,324 Thanked 5,255 Times in 1,361 Posts Rep Power: 21474852	Considering smoking for chemo side effects. I haven't smoked pot in years. The meds for the side effects have some shit side effects.