Cancer Support and Caregivers Who Are Trail Blazers!

fiercegrrl · 01-22-2010, 07:31 AM

i'm 26 and over the past few days i've found out that i most likely have ovarian cancer. i meet with an oncologist team in a couple of days. and i know that major surgery will be happening as soon as possible. until they get the tumor(s) out i won't know if it's cancer. but i'll be losing my reproductive organs and possible part of my intestines in the process.
i'm so scared and nervous.

Andrew, Jr. · 01-22-2010, 08:19 AM

Dear Fiercegirrl,

I understand your fears, pain, and everything else. I have been thru this twice with my late sister, Jo, and my Godfather. Cancer sucks. I also had cervical cancer, but no doctor would do anything until I was opened up. Then all hell broke loose. Everything I said made sense - finally. Sometimes you have to talk and talk and talk, and get 2nd, 3rd, and 4th opinions until you can slay that dragon.

If I can be of any support, please let me know.

You are in my prayers.

Love,
Andrew

Daryn · 01-29-2010, 04:28 PM

My latest results are back and this test is normal. I am so thankful.

Andrew, Jr. · 01-29-2010, 10:32 PM

Daryn,

WOOHOO!!

CONGRATULATIONS!

Andrew, Jr. · 02-06-2010, 08:01 PM

Dear Fiercegirrl,

I am so happy with the results. Please rest. All in time. We will chat later on.

Love,
Andrew

IttyBittyFem · 02-19-2010, 01:08 AM

Quote:

Originally Posted by Daryn

My latest results are back and this test is normal. I am so thankful.

Just WONDERFUL news Daryn. . Congratulations! . Thanks for sharing with us.

sweetcali · 02-19-2010, 01:32 AM

I have Stage 4 non-small cell lung cancer and am currently under the care of hospice. I have found this to be a seriously bizarre journey. What I have found most bizarre is that people already have me dead.

They will ask Mike how I am doing but they don't ask me. There were only 2 people that would call and check in on me when I was going through chemo the rest got angry because apparently I wasn't communicating enough. The whole journey is just weird. I find it really odd that they got angry with me when I was undergoing chemo treatment and I couldn't put 2 words together let alone type. Yet they were angry with me for not communicating.

Ummmm...hello.....you try having every cell in your body killed off, drugs shoved into your body, swell up like a balloon and then then try to act as if everything is just fine. LOL It ain't gonna happen.

The whole thing is just bizarre.

sweetcali

Spirit Dancer · 02-19-2010, 02:03 AM

All i can say is that is so wrong (((((((((cali)))))))))))and it happens entierly too much.

Quote:

Originally Posted by sweetcali

I have Stage 4 non-small cell lung cancer and am currently under the care of hospice. I have found this to be a seriously bizarre journey. What I have found most bizarre is that people already have me dead.

They will ask Mike how I am doing but they don't ask me. There were only 2 people that would call and check in on me when I was going through chemo the rest got angry because apparently I wasn't communicating enough. The whole journey is just weird. I find it really odd that they got angry with me when I was undergoing chemo treatment and I couldn't put 2 words together let alone type. Yet they were angry with me for not communicating.

Ummmm...hello.....you try having every cell in your body killed off, drugs shoved into your body, swell up like a balloon and then then try to act as if everything is just fine. LOL It ain't gonna happen.

The whole thing is just bizarre.

sweetcali

Andrew, Jr. · 02-19-2010, 07:59 AM

I think the problem is fear. Alot of people just don't know what to say or do around those who have cancer. You get alot of talk, but no action. Some well-meaning people really do want to do something but are so afraid. The cancer scares them. It changes everything about your life.

I did receive a note from Fiercefemme. The news is not good. She has a rare form of cancer. It has spread. She is starting on chemo. She asks for everyone to pray for her, and her family. I told her I would pass the word on.

I wish everyone peace.

Namaste,
Andrew

Tommi · 05-22-2010, 07:27 AM

Quote:

Originally Posted by sweetcali

I have Stage 4 non-small cell lung cancer and am currently under the care of hospice. I have found this to be a seriously bizarre journey. What I have found most bizarre is that people already have me dead.

They will ask Mike how I am doing but they don't ask me. There were only 2 people that would call and check in on me when I was going through chemo the rest got angry because apparently I wasn't communicating enough. The whole journey is just weird. I find it really odd that they got angry with me when I was undergoing chemo treatment and I couldn't put 2 words together let alone type. Yet they were angry with me for not communicating.

Ummmm...hello.....you try having every cell in your body killed off, drugs shoved into your body, swell up like a balloon and then then try to act as if everything is just fine. LOL It ain't gonna happen.

The whole thing is just bizarre.

sweetcali

Post chemo
Get 2 paper plates. Glue a tongue depressor, or a couple of banana popsicle sticks. on each. Put a happy face on one side, and a sleepy face on the other. Trace your fist with middle finger extended on the other plate, and a bigger smile on the other side..
banana popsicles always make me feel better

PearlsNLace · 05-22-2010, 08:15 AM

Andrew, is there anything that we can do for you, here on the Planet, to help you through this time?

When I had my lump removed a couple years back, it was humor that kept me going, and a whole lot of PMs.

THinking of you today, and this week.

PnL

Spirit Dancer · 05-23-2010, 08:36 AM

Quote:

Originally Posted by sweetcali

I have Stage 4 non-small cell lung cancer and am currently under the care of hospice. I have found this to be a seriously bizarre journey. What I have found most bizarre is that people already have me dead.

They will ask Mike how I am doing but they don't ask me. There were only 2 people that would call and check in on me when I was going through chemo the rest got angry because apparently I wasn't communicating enough. The whole journey is just weird. I find it really odd that they got angry with me when I was undergoing chemo treatment and I couldn't put 2 words together let alone type. Yet they were angry with me for not communicating.

Ummmm...hello.....you try having every cell in your body killed off, drugs shoved into your body, swell up like a balloon and then then try to act as if everything is just fine. LOL It ain't gonna happen.

The whole thing is just bizarre.

sweetcali

Sweet Cali
I highlighted in red, exactly what we are going through, My heart goes out to you and all the others who are suffering and fighting this battle. At times it seems as if the loved one and caregiver are fighting alone. Its tough when your friends cannot fathom how very taxing Chemo and Steroids are on you.
It takes only a minute to phone and say I thought of you today.
So today I want you to know I thought of you and the others who grace this thread and silently said a prayer.

fiercegrrl · 05-23-2010, 08:22 PM

i am having surgery this week as well. another massive incision and a few days in the hospital.
this time around there is not going to be the constant help of my mom. not since she decided it was ok to steal most off my pain killers, anxiety and sleeping meds.
so my poor brain that's like swiss cheese these days is trying to play a strategic game of who can come be with me in the hospital and when and for how many hours. it's surprising to me that my friends are actually saying they can't help because they have already made plans. everyone always tells me to let them know when i need help. and when i finally work myself up to actually asking for it i hear no. and people wonder why i resist asking for help.
and to top off the fun of surgery my next round of chemo will be probably be administered while im in the hospital. that's just adding insult to injury.

when all this is done i want a fucking vacation. i want a hotel room with 1000 thread count sheets, a chocolate on my pillow every night, and a view of the ocean.

*sigh*

Tommi · 02-06-2010, 08:54 PM

Quote:

Originally Posted by Andrew, Jr.

Dear Fiercegirrl,

I understand your fears, pain, and everything else. I have been thru this twice with my late sister, Jo, and my Godfather. Cancer sucks. I also had cervical cancer, but no doctor would do anything until I was opened up. Then all hell broke loose. Everything I said made sense - finally. Sometimes you have to talk and talk and talk, and get 2nd, 3rd, and 4th opinions until you can slay that dragon.

If I can be of any support, please let me know.

You are in my prayers.

Love,
Andrew

Quote:

Originally Posted by fiercegrrl

i'm 26 and over the past few days i've found out that i most likely have ovarian cancer. i meet with an oncologist team in a couple of days. and i know that major surgery will be happening as soon as possible. until they get the tumor(s) out i won't know if it's cancer. but i'll be losing my reproductive organs and possible part of my intestines in the process.
i'm so scared and nervous.

Staying in touch with each other is a good thing. When it seems like you are all alone..then bing.."You have Mail"...

come back when you can and be fierce..

Tommi

01-22-2010, 07:31 AM	#1
fiercegrrl In Memory Of How Do You Identify?: fierce femme grrl Preferred Pronoun?: beautiful, pumpkin, princess, sweet pea, babygirl Relationship Status: i don't think it's in the stars for me. Join Date: Nov 2009 Location: washington DC Posts: 133 My Photo Gallery Thanks: 34 Thanked 292 Times in 83 Posts Rep Power: 2486279	sigh... i'm 26 and over the past few days i've found out that i most likely have ovarian cancer. i meet with an oncologist team in a couple of days. and i know that major surgery will be happening as soon as possible. until they get the tumor(s) out i won't know if it's cancer. but i'll be losing my reproductive organs and possible part of my intestines in the process. i'm so scared and nervous. __________________ "and you can use my skin. to bury secret sins."

02-06-2010, 08:01 PM	#5
Andrew, Jr. Timed Out How Do You Identify?: Me Preferred Pronoun?: He Relationship Status: Unavailable Join Date: Nov 2009 Location: Over the Rainbow in a House Posts: 5,072 My Photo Gallery Thanks: 16,004 Thanked 5,249 Times in 2,216 Posts Rep Power: 0	WooHoo! Dear Fiercegirrl, I am so happy with the results. Please rest. All in time. We will chat later on. Love, Andrew

05-23-2010, 08:22 PM	#13
fiercegrrl In Memory Of How Do You Identify?: fierce femme grrl Preferred Pronoun?: beautiful, pumpkin, princess, sweet pea, babygirl Relationship Status: i don't think it's in the stars for me. Join Date: Nov 2009 Location: washington DC Posts: 133 My Photo Gallery Thanks: 34 Thanked 292 Times in 83 Posts Rep Power: 2486279	i am having surgery this week as well. another massive incision and a few days in the hospital. this time around there is not going to be the constant help of my mom. not since she decided it was ok to steal most off my pain killers, anxiety and sleeping meds. so my poor brain that's like swiss cheese these days is trying to play a strategic game of who can come be with me in the hospital and when and for how many hours. it's surprising to me that my friends are actually saying they can't help because they have already made plans. everyone always tells me to let them know when i need help. and when i finally work myself up to actually asking for it i hear no. and people wonder why i resist asking for help. and to top off the fun of surgery my next round of chemo will be probably be administered while im in the hospital. that's just adding insult to injury. when all this is done i want a fucking vacation. i want a hotel room with 1000 thread count sheets, a chocolate on my pillow every night, and a view of the ocean. sigh __________________ "and you can use my skin. to bury secret sins."

01-22-2010, 08:19 AM	#2
Andrew, Jr. Timed Out How Do You Identify?: Me Preferred Pronoun?: He Relationship Status: Unavailable Join Date: Nov 2009 Location: Over the Rainbow in a House Posts: 5,072 My Photo Gallery Thanks: 16,004 Thanked 5,249 Times in 2,216 Posts Rep Power: 0	Dear Fiercegirrl, I understand your fears, pain, and everything else. I have been thru this twice with my late sister, Jo, and my Godfather. Cancer sucks. I also had cervical cancer, but no doctor would do anything until I was opened up. Then all hell broke loose. Everything I said made sense - finally. Sometimes you have to talk and talk and talk, and get 2nd, 3rd, and 4th opinions until you can slay that dragon. If I can be of any support, please let me know. You are in my prayers. Love, Andrew

01-29-2010, 04:28 PM	#3
Daryn Timed Out How Do You Identify?: genderqueer leaning male Preferred Pronoun?: he/ze Relationship Status: open to persuasion..... Join Date: Nov 2009 Location: OR Posts: 185 My Photo Gallery Thanks: 209 Thanked 281 Times in 81 Posts Rep Power: 0	My latest results are back and this test is normal. I am so thankful.

01-29-2010, 10:32 PM	#4
Andrew, Jr. Timed Out How Do You Identify?: Me Preferred Pronoun?: He Relationship Status: Unavailable Join Date: Nov 2009 Location: Over the Rainbow in a House Posts: 5,072 My Photo Gallery Thanks: 16,004 Thanked 5,249 Times in 2,216 Posts Rep Power: 0	Daryn, WOOHOO!! CONGRATULATIONS!

02-19-2010, 01:32 AM	#7
sweetcali BFP Angel How Do You Identify?: Femme Relationship Status: Yes I have a status. Join Date: Nov 2009 Location: I ride a cowboy in Rodeo in the communist nation of the isle of cali. Posts: 334 My Photo Gallery Thanks: 310 Thanked 246 Times in 98 Posts Rep Power: 3700738	I have Stage 4 non-small cell lung cancer and am currently under the care of hospice. I have found this to be a seriously bizarre journey. What I have found most bizarre is that people already have me dead. They will ask Mike how I am doing but they don't ask me. There were only 2 people that would call and check in on me when I was going through chemo the rest got angry because apparently I wasn't communicating enough. The whole journey is just weird. I find it really odd that they got angry with me when I was undergoing chemo treatment and I couldn't put 2 words together let alone type. Yet they were angry with me for not communicating. Ummmm...hello.....you try having every cell in your body killed off, drugs shoved into your body, swell up like a balloon and then then try to act as if everything is just fine. LOL It ain't gonna happen. The whole thing is just bizarre. sweetcali

02-19-2010, 07:59 AM	#9
Andrew, Jr. Timed Out How Do You Identify?: Me Preferred Pronoun?: He Relationship Status: Unavailable Join Date: Nov 2009 Location: Over the Rainbow in a House Posts: 5,072 My Photo Gallery Thanks: 16,004 Thanked 5,249 Times in 2,216 Posts Rep Power: 0	I think the problem is fear. Alot of people just don't know what to say or do around those who have cancer. You get alot of talk, but no action. Some well-meaning people really do want to do something but are so afraid. The cancer scares them. It changes everything about your life. I did receive a note from Fiercefemme. The news is not good. She has a rare form of cancer. It has spread. She is starting on chemo. She asks for everyone to pray for her, and her family. I told her I would pass the word on. I wish everyone peace. Namaste, Andrew

05-22-2010, 08:15 AM	#11
PearlsNLace Member How Do You Identify?: queer Preferred Pronoun?: They/Them & her/she Relationship Status: Lucky, very lucky Join Date: Nov 2009 Location: Portlandia, Oregon Posts: 427 My Photo Gallery Thanks: 875 Thanked 1,286 Times in 315 Posts Rep Power: 6505517	Andrew, is there anything that we can do for you, here on the Planet, to help you through this time? When I had my lump removed a couple years back, it was humor that kept me going, and a whole lot of PMs. THinking of you today, and this week. PnL