Fibromyalgia

Lady Jewel · 11-12-2009, 06:15 PM

Bump...I cant be the only one here with Fibro.

NikiNik · 11-12-2009, 06:22 PM

I have it too.. Though in the last year or so it hasn't bothered me as much as it use to. I firmly belive that my aches and pains are not nearly as bad because my head is in a better place than it use to be. Actually a lot of my health problems are a lot better.

Lady Jewel · 11-12-2009, 06:28 PM

Yes, your emotional state DOES have a big effect on Fibro.

Genlte hugs,
Jewel

Quote:

Originally Posted by NikiNik

I have it too.. Though in the last year or so it hasn't bothered me as much as it use to. I firmly belive that my aches and pains are not nearly as bad because my head is in a better place than it use to be. Actually a lot of my health problems are a lot better.

christie · 11-12-2009, 07:28 PM

*raising hand*

I am in what is probably my worst fibro flare in over 10 years.

Not a happy camper,
C

NikiNik · 11-12-2009, 07:35 PM

Quote:

Originally Posted by christie0918

*raising hand*

I am in what is probably my worst fibro flare in over 10 years.

Not a happy camper,
C

Sorry to hear that sweetie.. I feel your pain and hope that you get to feeling better soon.

Rook · 11-12-2009, 08:48 PM

My mother was diagnosed with Fibro in the early 90s when they were still saying it wasn't a Sure thing type disease....
They're suspecting I have it, from time to time I get 'flares' that closely resemble the symptoms....
'specially when I'm stressed, or the weather's not optimal
But then, I try hard not to let things stress me too much because then I trigger asthma, and Cluster headaches, depending how bad the stress level is....

There's a medication out for Fibromyalgia, but when the commercial reads all the side effects, it's unreal...
The "cure" is worse than the sickness....

Lady Jewel · 11-12-2009, 10:22 PM

Awww honey, Im so sorry. Sleep is the single most important thing for us fibro sufferers. And please be kind to yourself my friend. I know its not easy. Has anyone tried Cymbalta? Ive been on it since it came out. It doesnt help the pain, but it helps the fibro fog and some other symptoms that I have.

I need to unburden my soul about something that I am very very scared about. I had some labwork done a few weeks ago and got the results today. I tested postive for an autoimmune disease that require further labwork and tests. It could be lupus. Who knows. Im scared to death. Those of you who know me, know I have already been put thru the ringer these past 7 years healthwise. I know that I will get thru this just like I have everything else. But Im scared. And tired. Ive had my fill. I try and have a positive attitude and not complain. So Im sorry if it comes off like that.

Im glad we started this thread and can support each other.

Gentle hugs,
Jewel

Quote:

Originally Posted by christie0918

*raising hand*

I am in what is probably my worst fibro flare in over 10 years.

Not a happy camper,
C

Soft*Silver · 11-13-2009, 03:03 AM

I was diagnosed with Fibro in 1989. I had it mastered until 2007 when I was hit by a semi..twice. After herniating four back discs, it flared up my fibro. I just spent this year trying and succeeding getting the fibro to a point where I could tell the difference between it and the pain from my back injury. I am so well, in fact, I am going back to work. Rest, water therapy, muscle relaxers, a change in diet...did I say rest>? These were my tools...

Lady Jewel · 11-13-2009, 01:09 PM

Good for you softness. I wish you continued success in the Fibro battle. Nice to see you again btw.

Quote:

Originally Posted by softness

I was diagnosed with Fibro in 1989. I had it mastered until 2007 when I was hit by a semi..twice. After herniating four back discs, it flared up my fibro. I just spent this year trying and succeeding getting the fibro to a point where I could tell the difference between it and the pain from my back injury. I am so well, in fact, I am going back to work. Rest, water therapy, muscle relaxers, a change in diet...did I say rest>? These were my tools...

T D · 11-17-2009, 09:30 PM

Quote:

Originally Posted by softness

I was diagnosed with Fibro in 1989. I had it mastered until 2007 when I was hit by a semi..twice. After herniating four back discs, it flared up my fibro. I just spent this year trying and succeeding getting the fibro to a point where I could tell the difference between it and the pain from my back injury. I am so well, in fact, I am going back to work. Rest, water therapy, muscle relaxers, a change in diet...did I say rest>? These were my tools...

Personally I have found that rest is ESSENTIAL! There's just no gettin around it, lots of rest. I finally reached a point where I figured out the signs of an oncoming flareup. I then discovered if I slept as much as my body wanted to sleep that I could at times keep it at bay. I would sometimes sleep 4 hours in the afternoon/evening, get up for a few hours and then go back to bed and sleep all night. The more I did this the less often a flare up would rear it's ugly head.

I wasn't diagnosed until around 2003, but now that I "know" I can see the symptoms going as far back as the early 80's. I lived with progressing pain for at least 20 years until it reached a point that I just couldn't tolerate it any longer. I was missing work because I could barely walk, my hands hurt so bad I could barely use a computer, etc. etc. Pain is an odd thing, it will sneak up on you and the next thing you know you think it's "normal", when in reality it's anything but.

11-12-2009, 08:48 PM	#6
Rook Senior Member How Do You Identify?: A.G - Stone Butch - GenderFuck Preferred Pronoun?: Hym, Hyz...or, just b respectable, it's not that hard.. Join Date: Nov 2009 Location: Columbus Posts: 2,280 My Photo Gallery Thanks: 2,227 Thanked 3,182 Times in 1,287 Posts Rep Power: 21474854	My mother was diagnosed with Fibro in the early 90s when they were still saying it wasn't a Sure thing type disease.... They're suspecting I have it, from time to time I get 'flares' that closely resemble the symptoms.... 'specially when I'm stressed, or the weather's not optimal But then, I try hard not to let things stress me too much because then I trigger asthma, and Cluster headaches, depending how bad the stress level is.... There's a medication out for Fibromyalgia, but when the commercial reads all the side effects, it's unreal... The "cure" is worse than the sickness.... __________________

11-13-2009, 03:03 AM	#8
SoftSilver Infamous Member How Do You Identify?: femme Preferred Pronoun?: she Relationship Status: Married Join Date: Nov 2009 Location: rose cottage Posts: 5,592 My Photo Gallery Thanks: 8,948 Thanked 15,908 Times in 4,062 Posts Rep Power*: 21474857	I was diagnosed with Fibro in 1989. I had it mastered until 2007 when I was hit by a semi..twice. After herniating four back discs, it flared up my fibro. I just spent this year trying and succeeding getting the fibro to a point where I could tell the difference between it and the pain from my back injury. I am so well, in fact, I am going back to work. Rest, water therapy, muscle relaxers, a change in diet...did I say rest>? These were my tools... __________________ Pole bachit, a lis chuye. The field sees, the forest hears

11-12-2009, 06:15 PM	#1
Lady Jewel Member How Do You Identify?: * Preferred Pronoun?: * Relationship Status: * Join Date: Nov 2009 Location: * Posts: 298 My Photo Gallery Thanks: 120 Thanked 322 Times in 124 Posts Rep Power: 791	Bump...I cant be the only one here with Fibro.

11-12-2009, 06:22 PM	#2
NikiNik Junior Member How Do You Identify?: Femme Relationship Status: In a relationship. Join Date: Nov 2009 Location: The OC Posts: 17 My Photo Gallery Thanks: 1 Thanked 5 Times in 4 Posts Rep Power: 16	I have it too.. Though in the last year or so it hasn't bothered me as much as it use to. I firmly belive that my aches and pains are not nearly as bad because my head is in a better place than it use to be. Actually a lot of my health problems are a lot better.

11-12-2009, 07:28 PM	#4
christie Member How Do You Identify?: A Force with which to be reckoned Preferred Pronoun?: just be nice... Relationship Status: I call her Mine Join Date: Nov 2009 Location: Transplanted to the PNW Posts: 1,246 My Photo Gallery Thanks: 2,552 Thanked 2,476 Times in 706 Posts Rep Power: 14753262	raising hand I am in what is probably my worst fibro flare in over 10 years. Not a happy camper, C