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Old 10-04-2011, 10:30 AM   #1
deb_U_taunt
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Originally Posted by Yellow band View Post
Hi CatalinaRose.......

I'm certainly not saying it doesn't work....it doesn't work for me. Cold accelerates neurapoathy for ME! Even if I am pretty warm, i/e like summer time warm...and walk into a/c....that will set it off. Dapper was saying cold sets his off too.

It seems to be different for every one.
No cold for me either. I get cold and I just ache. Massage and heat for me. I am hoping that the pain gets better soon. I can't stand or walk for long, but it hasn't been long since my last chemo.
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Old 10-09-2011, 05:48 PM   #2
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Tomorrow I start daily radiation for 6 weeks. I keep hearing its not so bad, it just makes ya tired. I am still nervous.
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Old 10-10-2011, 01:07 PM   #3
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Tomorrow I start daily radiation for 6 weeks. I keep hearing its not so bad, it just makes ya tired. I am still nervous.

{{{Debby}}} No radiation here but my sister and bf both had it as part of their thyroid treatment protocols. We are having dinner with a chemo buddy on Saturday and she did radiation before starting chemo and said she really didn't notice any side effects at all.

I will say a prayer for you that all goes well. <3
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Old 10-11-2011, 06:05 AM   #4
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Tomorrow I start daily radiation for 6 weeks. I keep hearing its not so bad, it just makes ya tired. I am still nervous.
Big hugs to you Debby....I hope it all goes well.

Wanted to come in and give you all an update....

Mom is home (I know....surprise!), with lots of help including a visiting nurse daily, a CNA/home aide for 3 or 4 hours and a friend spending most of the rest of the time. She's glad to be out of the hospital after spending virtually the whole summer there...and even though it's temporary.

She's still waiting out the timeframe for the Avastin to clear her system...once it does they'll go look and see what this other mass is and make a determination about next steps. If no other procedure is needed, she'll come down to me in Florida at that point. If another surgery is needed, then she'll be back in the hospital for that and until she recovers.

They cut her loose since she was able to demonstrate the ability to manage her own TPN (which is in a backpack arrangement), and they're monitoring her blood pressure and hydration very closely. Her weight is up to 112....still very thin, but much better than the 96 in her clothes that got her admitted last time. And she's eating....all soft foods and in small quantities....but she's handling soups, yogurt, cooked cereals, soft fruit, etc.

In the meantime, chemo continues every 2 weeks, and will through the rest of the year.

She's decided to sell her house, and is home talking to realtors and boxing up things she wants to send to me, my sister and our kids. I'm glad she's come to this herself rather than being hustled into it by my sister....and she feels good about it rather than pressured and rushed. Her decision, come to with counseling....is that the remaining item on her "bucket list" is that she's always wanted to live in NYC, have a little apartment, and enjoy all of the cultural "stuff" that she enjoys so much when we've been there for short periods. So....assuming she recovers....she may transform herself into a snow bird, spending winters with me and the rest of the year in a short term furnished rental in NYC. It feels right to her, so that's the plan.
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Old 10-11-2011, 06:48 AM   #5
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JustJo,

This is good news. So glad she is doing well enough to be home, and to move on in her own terms. I am so glad she is able to talk about the future with you.
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Old 10-11-2011, 04:58 PM   #6
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Surgery update!

So my surgery has been moved from next Friday (the 21st) to tomorrow at 3:30. I've been in so much pain and have lost so much weight that my doctor doesn't want to wait any longer.

I'm off to begin the dreaded bowl-prep. Fun-Fun!
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Old 10-11-2011, 06:52 PM   #7
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I was told the same. What is the name of the multivitamin you are taking now? I would like to start taking vitamins again.
Hi, Debby. I missed this until the other day and then wanted to contact my dietician before responding.

The multi that I am taking is manufactured by the doc I saw in Chicago. After blood work they determine dosage. I thought it was a "one fits all" multi vitamin (or "one fits all cancer survivors"), but it is not.

I would ask your oncologist if he/she has any thoughts.

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Originally Posted by CatalinaRose View Post
Surgery update!

So my surgery has been moved from next Friday (the 21st) to tomorrow at 3:30. I've been in so much pain and have lost so much weight that my doctor doesn't want to wait any longer.

I'm off to begin the dreaded bowl-prep. Fun-Fun!
Ugh, the dreaded bowl prep. Please let us know how it goes.

Jo - thank you for the update. It sounds like several positive things are happening (how mom is feeling, her weight, coming to conclusion about the house). You must be feeling some relief.
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