Cancer Support and Caregivers Who Are Trail Blazers!

SweetJane · 12-10-2011, 05:04 PM

Countyfemme,
I'm glad you're there with Clay. Thanks for keeping us posted. She still has a long journey ahead but you're there to help.

ArkansasPiscesGrrl · 12-10-2011, 08:04 PM

Quote:

Originally Posted by SweetJane

Countyfemme,
I'm glad you're there with Clay. Thanks for keeping us posted. She still has a long journey ahead but you're there to help.

I agree, Jane, I am also very grateful that Countryfemme is there for Clay! She really is an angel!

Countyfem · 12-11-2011, 08:17 AM

Rough night, wheww poor Clay fluid buldup in her stomach couldn't get a good breath and they didn't tube her till this morning after the doc saw her...once the tube was in she felt soooo much better...she is finally resting and we hope she is moved to a private room today. Her pain lvl is great she hasn't had to "hit" the little extra button, they still have her on the epiy and it is working really well for her. I feel so bad for her and there's not much I can do but keep watch and hold her hand when she needs it I really feel kinda useless

Will update later! Thanks so much for all the support!

ArkansasPiscesGrrl · 12-11-2011, 04:21 PM

Quote:

Originally Posted by Countyfem

Rough night, wheww poor Clay fluid buldup in her stomach couldn't get a good breath and they didn't tube her till this morning after the doc saw her...once the tube was in she felt soooo much better...she is finally resting and we hope she is moved to a private room today. Her pain lvl is great she hasn't had to "hit" the little extra button, they still have her on the epiy and it is working really well for her. I feel so bad for her and there's not much I can do but keep watch and hold her hand when she needs it I really feel kinda useless

Will update later! Thanks so much for all the support!

Countryfemme, holding Clay's hand when she needs it and just BEING there is more than you could ever know. Truly an angel you are!

I had a hospital stay once, I was in the most incredible abdominal pain I could imagine, the docs could find nothing to pinpoint the why, so I just suffered. My partner at the time was a nurse, for God sake. She could not bring herself there to visit at all during the 5 days I was there. I should have known by that, yanno?

Countyfem · 12-11-2011, 06:11 PM

Ok the nurses are going to be soooo ready to be rid of my ass, I rode them HARD today....but if i don't feel things are as they should be I'm going to speak up! I had them in here three times before they finally admitted the N/G wasn't pulling the fluid that it is mean to do and fixed it.
And can I say that Clay is one stubborn butch! Has taken all my fem wiles to get her to do what she needs to do lol I really hope tonight is better for her...lord I hope so.

SweetJane · 12-11-2011, 07:40 PM

Quote:

Originally Posted by Countyfem

Ok the nurses are going to be soooo ready to be rid of my ass, I rode them HARD today....but if i don't feel things are as they should be I'm going to speak up! I had them in here three times before they finally admitted the N/G wasn't pulling the fluid that it is mean to do and fixed it.
And can I say that Clay is one stubborn butch! Has taken all my fem wiles to get her to do what she needs to do lol I really hope tonight is better for her...lord I hope so.

Countyfemme,
You keep riding their butts!!!! Clay can't speak for herself (we'll she could but...is loopy from meds). And someone needs to be her advocate. I'm glad you're there!

DapperButch · 12-12-2011, 06:02 AM

Quote:

Originally Posted by Countyfem

Rough night, wheww poor Clay fluid buldup in her stomach couldn't get a good breath and they didn't tube her till this morning after the doc saw her...once the tube was in she felt soooo much better...she is finally resting and we hope she is moved to a private room today. Her pain lvl is great she hasn't had to "hit" the little extra button, they still have her on the epiy and it is working really well for her. I feel so bad for her and there's not much I can do but keep watch and hold her hand when she needs it I really feel kinda useless

Will update later! Thanks so much for all the support!

I am wondering which tube you mean? The in the nose down the throat or the drainage tube from the bowel area?

Countyfem · 12-12-2011, 08:54 AM

Quote:

Originally Posted by DapperButch

I am wondering which tube you mean? The in the nose down the throat or the drainage tube from the bowel area?

Its the N/G (nasogastric) nose to stomach, she had a fairly uneventful night, couple times she vomited when the nurse was flushing her line as she was already backed up and they push 4-6 oz of saline on top of that..her major complaint at the moment.. every time she wakes up she gets the hiccups!
They decided to leave the epi in one more day, I'm glad of that as her bowels are still not responding. Longer they can keep her off the narcotics the better. She rarely hits the pain meds, which is good, but I fear that will change once the epi is gone.
They are going to get her up and back in a chair today,I'm hoping she'll get to moving around more, that's what she needs to be doing to stimulate the bowel activity. Hurts like hell but I keep telling her she has to work thru it and it'll get better.

Tommi · 12-12-2011, 09:03 AM

Quote:

Originally Posted by Countyfem

Ok the nurses are going to be soooo ready to be rid of my ass, I rode them HARD today....but if i don't feel things are as they should be I'm going to speak up! I had them in here three times before they finally admitted the N/G wasn't pulling the fluid that it is mean to do and fixed it.
And can I say that Clay is one stubborn butch! Has taken all my fem wiles to get her to do what she needs to do lol I really hope tonight is better for her...lord I hope so.

Glad to see you are wide eyed and busy tailed about what you see.

It is a vicious circle, with the surgery, then the meds which slow down all the internal workings, but she really needs the pain meds as often as she can have em. Which all in all helps it all work out in the end, and they will end the heavy meds. once she is able.

I watched my best buddy go through something similar, and you being at the bedside and observant is a blessing for Clay, and rough on you.

Clay prolly won't remmeber much of it later. Spoonful of sugar for the hiccups.

JustJo · 12-12-2011, 10:11 AM

Hi everyone,

The new TPN pump has been figured out, after 4 calls to the nurse and a few panic moments. She's on it 12 hours a day now rather than 24 because they're trying to "stimulate her appetite".

I got her to eat 5 times yesterday but quantities are very, very small. And, I'm in a bit of an internal tussle because the thing she seems to handle the best is greek yogurt....right when I have concerns about dairy products. Joy.

She has napped a few times...slept 12 hours last night...and is much more comfortable in the warmth of south Florida...so that's all good. Her first appointment with the new doctor is this afternoon...so it'll be interesting to see what's said. I am now inserting myself into all doctor visits....enough of this being in the dark.

Rockinonahigh · 12-12-2011, 11:26 AM

Quote:

Originally Posted by Countyfem

Ok the nurses are going to be soooo ready to be rid of my ass, I rode them HARD today....but if i don't feel things are as they should be I'm going to speak up! I had them in here three times before they finally admitted the N/G wasn't pulling the fluid that it is mean to do and fixed it.
And can I say that Clay is one stubborn butch! Has taken all my fem wiles to get her to do what she needs to do lol I really hope tonight is better for her...lord I hope so.

Im thankfull u r there for Clay,stay on the nurses about his care anytime u feel its needed.This isnt an easy road he is on so he will be grumpy but it looks like u are handleing it fine...bless u girl for being who u r.

JustJo · 12-12-2011, 06:40 PM

It was a rough afternoon.

Took Mom to see the new doctor...who was more honest and clear than her previous doctors have been. He was very supportive, but also frank that this type of cancer doesn't get better. They can keep her alive on chemo...but as soon as the chemo stops...the cancer will keep coming back. If the chemo stops, she probably has a few months.

JustJo · 12-14-2011, 09:50 AM

So...I just got my hands on the results of my mother's last CT scan....holy cow.

She's been keeping way too many secrets.

Countyfem · 12-14-2011, 11:00 AM

Great night, almost 6 hours sleep! Walking the halls has commenced, pain is managed. She's starting to feel froggy again!

Novelafemme · 12-14-2011, 11:26 AM

{{{{Jo}}}}} Oh dear

YAY CLAY!!!

DapperButch · 12-14-2011, 06:52 PM

Quote:

Originally Posted by Countyfem

Great night, almost 6 hours sleep! Walking the halls has commenced, pain is managed. She's starting to feel froggy again!

Tell that woman I said it is about time she got up out of that bed!

chai~ · 12-19-2011, 03:29 PM

"cancer free" has such a MAGICAL ring to it, doesn't it!!!!!!
bless bless bless~~~

12-11-2011, 08:17 AM	#3
Countyfem Member How Do You Identify?: Stone Femme Preferred Pronoun?: she/her Join Date: Oct 2011 Location: NC Posts: 244 My Photo Gallery Thanks: 469 Thanked 932 Times in 211 Posts Rep Power: 9455032	Clay update Rough night, wheww poor Clay fluid buldup in her stomach couldn't get a good breath and they didn't tube her till this morning after the doc saw her...once the tube was in she felt soooo much better...she is finally resting and we hope she is moved to a private room today. Her pain lvl is great she hasn't had to "hit" the little extra button, they still have her on the epiy and it is working really well for her. I feel so bad for her and there's not much I can do but keep watch and hold her hand when she needs it I really feel kinda useless Will update later! Thanks so much for all the support!

12-12-2011, 10:11 AM	#10
JustJo Infamous Member How Do You Identify?: pushy broad Preferred Pronoun?: she Relationship Status: Follow your heart; it knows things your mind cannot explain. Join Date: Jan 2010 Location: Southeast corner Posts: 5,633 My Photo Gallery Thanks: 24,417 Thanked 25,406 Times in 4,660 Posts Rep Power: 21474857	Hi everyone, The new TPN pump has been figured out, after 4 calls to the nurse and a few panic moments. She's on it 12 hours a day now rather than 24 because they're trying to "stimulate her appetite". I got her to eat 5 times yesterday but quantities are very, very small. And, I'm in a bit of an internal tussle because the thing she seems to handle the best is greek yogurt....right when I have concerns about dairy products. Joy. She has napped a few times...slept 12 hours last night...and is much more comfortable in the warmth of south Florida...so that's all good. Her first appointment with the new doctor is this afternoon...so it'll be interesting to see what's said. I am now inserting myself into all doctor visits....enough of this being in the dark. __________________ I'm not tall enough to ride emotional roller coasters

12-12-2011, 06:40 PM	#12
JustJo Infamous Member How Do You Identify?: pushy broad Preferred Pronoun?: she Relationship Status: Follow your heart; it knows things your mind cannot explain. Join Date: Jan 2010 Location: Southeast corner Posts: 5,633 My Photo Gallery Thanks: 24,417 Thanked 25,406 Times in 4,660 Posts Rep Power: 21474857	It was a rough afternoon. Took Mom to see the new doctor...who was more honest and clear than her previous doctors have been. He was very supportive, but also frank that this type of cancer doesn't get better. They can keep her alive on chemo...but as soon as the chemo stops...the cancer will keep coming back. If the chemo stops, she probably has a few months. __________________ I'm not tall enough to ride emotional roller coasters

12-14-2011, 09:50 AM	#13
JustJo Infamous Member How Do You Identify?: pushy broad Preferred Pronoun?: she Relationship Status: Follow your heart; it knows things your mind cannot explain. Join Date: Jan 2010 Location: Southeast corner Posts: 5,633 My Photo Gallery Thanks: 24,417 Thanked 25,406 Times in 4,660 Posts Rep Power: 21474857	So...I just got my hands on the results of my mother's last CT scan....holy cow. She's been keeping way too many secrets. __________________ I'm not tall enough to ride emotional roller coasters

12-10-2011, 05:04 PM	#1
SweetJane Member How Do You Identify?: stone femme Preferred Pronoun?: she Relationship Status: always solo Join Date: Sep 2011 Location: New Mexico Posts: 368 My Photo Gallery Thanks: 380 Thanked 815 Times in 198 Posts Rep Power: 4309957	Countyfemme, I'm glad you're there with Clay. Thanks for keeping us posted. She still has a long journey ahead but you're there to help.

12-11-2011, 06:11 PM	#5
Countyfem Member How Do You Identify?: Stone Femme Preferred Pronoun?: she/her Join Date: Oct 2011 Location: NC Posts: 244 My Photo Gallery Thanks: 469 Thanked 932 Times in 211 Posts Rep Power: 9455032	Ok the nurses are going to be soooo ready to be rid of my ass, I rode them HARD today....but if i don't feel things are as they should be I'm going to speak up! I had them in here three times before they finally admitted the N/G wasn't pulling the fluid that it is mean to do and fixed it. And can I say that Clay is one stubborn butch! Has taken all my fem wiles to get her to do what she needs to do lol I really hope tonight is better for her...lord I hope so.

12-14-2011, 11:00 AM	#14
Countyfem Member How Do You Identify?: Stone Femme Preferred Pronoun?: she/her Join Date: Oct 2011 Location: NC Posts: 244 My Photo Gallery Thanks: 469 Thanked 932 Times in 211 Posts Rep Power: 9455032	Great night, almost 6 hours sleep! Walking the halls has commenced, pain is managed. She's starting to feel froggy again!

12-14-2011, 11:26 AM	#15
Novelafemme Timed Out - TOS Drama How Do You Identify?: ........ Join Date: Nov 2009 Location: ........ Posts: 2,402 My Photo Gallery Thanks: 4,981 Thanked 8,925 Times in 1,834 Posts Rep Power: 0	{{{{Jo}}}}} Oh dear YAY CLAY!!!

12-19-2011, 03:29 PM	#17
chai~ Member How Do You Identify?: Self possessed Aquarian Preferred Pronoun?: Don't call me baby~ Relationship Status: Deliciously single and loving it. Join Date: Apr 2010 Location: lotus land Posts: 1,173 My Photo Gallery Thanks: 1,937 Thanked 3,382 Times in 864 Posts Rep Power: 21474853	"cancer free" has such a MAGICAL ring to it, doesn't it!!!!!! bless bless bless~~~