Cancer Support and Caregivers Who Are Trail Blazers!

JustJo · 12-24-2011, 12:30 PM

Quote:

Originally Posted by claybaby

hey JustJo...hugs right back at ya....you & mom are in our thoughts & prayers...do you have a Hospice Center there? Those RN's are awesome and the oncologists have a "protocol" or "regimen" of drugs and having Hospice involved insures your getting, having, and with access 24/7 to ANY med she may need. She needs to have an rx for Zofran (generic is: ondansetron) 4 mg. disintegrating tablets...to use every 4 hrs.....as needed....for the nausea...AND sounds like she would be an ideal candidate for Oxycontin...and it comes in liquid...the Morphine is horrible. I initially had a pump of Dilaudid IV for pain and an epidual with pain cotrol meds in it....and had to switch to MS (morphine) which I HATED to take..I only pushed my "button" for that med a total of 20 times in the whole 12 days I had it...smiles....(HIGH tolerance) to pain..smiles...
Anyway I am certainly not trying to prescribe or "manage" BUT offer you some suggestions..smiles....I am a nurse....smiles....
Take care..and YOU are doing an awesome job....give yourself a pat on the back...Clay

Thank Clay.

She is on the Zofran, which helps a little but not completely.
Hospice can't/won't do anything until she rejects all chemo treatment...and she's not quite ready to do that yet.

Her current/new oncologist down here is proposing modifying her chemo to something that will be less hard on her and only every 3 weeks (since she can't be cured anyway)....and she wants to see if that helps her quality of life.

Right now we're just one step at a time...but it's an uphill battle.

DapperButch · 12-25-2011, 04:33 PM

Merry Christmas and Happy Holidays to all survivors, caregivers, supporters, and those fighting and recovering from cancer!

May we all have a healthy New Year!

Novelafemme · 12-27-2011, 04:35 PM

I'm so happy to log on and see that most everyone is doing so well! {{{Jo}}} My thoughts are with you and your mom. I would only hope that were I in her shoes things would be made as painless and restful as possible. How are YOU holding up?

I spoke with my sister today and she is doing amazingly well. Her doctor even made a comment this morning that he hasn't seen anyone respond to the chemo protocol she is currently on quite so well as Lisa has. She is two lbs. shy of her normal weight and is feeling wonderful. I was originally going to fly out there with the girls in February but cancelled that trip since it was rapidly getting crazy expensive. Then last week I found a round trip ticket to/from Tucson to LaGuardia for $197!!! So, I fly out on the 24th and will surprise her by showing up to her fourth chemo treatment.

I am terrible with secrets so it's gonna be hell keeping it to myself!!

I am going in for a second opinion on the polyps I recently had removed. Grrrr. And ONLY because I am being forced to! I guess it's better to be safe than sorry, but I am so over being poked and prodded!

CLAY!!! So happy to hear you are doing well. I owe you a phone call one of these days.

12-25-2011, 04:33 PM	#2
DapperButch Roadster Guy How Do You Identify?: FTM, Stone Butch Preferred Pronoun?: He Join Date: Nov 2009 Location: Northeast Posts: 7,745 My Photo Gallery Thanks: 26,545 Thanked 26,809 Times in 5,771 Posts Rep Power: 21474858	Happy Holidays! Merry Christmas and Happy Holidays to all survivors, caregivers, supporters, and those fighting and recovering from cancer! May we all have a healthy New Year! __________________ -Dapper Are you educated or indoctrinated?

12-27-2011, 04:35 PM	#3
Novelafemme Timed Out - TOS Drama How Do You Identify?: ........ Join Date: Nov 2009 Location: ........ Posts: 2,402 My Photo Gallery Thanks: 4,981 Thanked 8,925 Times in 1,834 Posts Rep Power: 0	I'm so happy to log on and see that most everyone is doing so well! {{{Jo}}} My thoughts are with you and your mom. I would only hope that were I in her shoes things would be made as painless and restful as possible. How are YOU holding up? I spoke with my sister today and she is doing amazingly well. Her doctor even made a comment this morning that he hasn't seen anyone respond to the chemo protocol she is currently on quite so well as Lisa has. She is two lbs. shy of her normal weight and is feeling wonderful. I was originally going to fly out there with the girls in February but cancelled that trip since it was rapidly getting crazy expensive. Then last week I found a round trip ticket to/from Tucson to LaGuardia for $197!!! So, I fly out on the 24th and will surprise her by showing up to her fourth chemo treatment. I am terrible with secrets so it's gonna be hell keeping it to myself!! I am going in for a second opinion on the polyps I recently had removed. Grrrr. And ONLY because I am being forced to! I guess it's better to be safe than sorry, but I am so over being poked and prodded! CLAY!!! So happy to hear you are doing well. I owe you a phone call one of these days.