Cancer Support and Caregivers Who Are Trail Blazers!

[deb_U_taunt]

YEEHAW...all the biopsies came back benign!!!! I cried out of joy. I am not ready to do this crap again. So, surgery next month or so to even out my tits and then its just playing 'where's waldo' for the next 5 years, but as long I take ownership of my body (get tests and eat right), there is NO reason I can't live as long as my grandma did.

Jagg, thank you for sending your angels.

[JAGG]

Originally Posted by Debby

YEEHAW...all the biopsies came back benign!!!! I cried out of joy. I am not ready to do this crap again. So, surgery next month or so to even out my tits and then its just playing 'where's waldo' for the next 5 years, but as long I take ownership of my body (get tests and eat right), there is NO reason I can't live as long as my grandma did.

Jagg, thank you for sending your angels.

My angels said you are one awesome and incredible woman. And that cancer knows not to mess with you, they don't ever want to face your wrath again! :-) I'm so happy, that 2 peeps in a row now. I'm shooting for 1000 in a row. Its my year !

[deb_U_taunt]

It is your year! I truly feel this this is going to be a great year.


Cancer must know it wasn't on my to-do list for this year.

1. siding and painting house
2. plant hummingbird garden for nana
3. go to burning man - new decorations for the bike for the trip
4. add to raised garden beds
5. mosaic front porch

Nope, not on the list. lol.

Originally Posted by JAGG

My angels said you are one awesome and incredible woman. And that cancer knows not to mess with you, they don't ever want to face your wrath again! :-) I'm so happy, that 2 peeps in a row now. I'm shooting for 1000 in a row. Its my year !

[julieisafemme]

Hello All! I spent the day with my Mom today. It was the last day of her second round of chemo. She is doing well. Next week she is preparing for radiation. She has a small lesion in the frontal cortex of her brain. It has shrunk from the chemo but they want to try to get rid of it with radiation. She is a little scared about that and so am I.

They will be tapering her off the steroids they have had her on for the brain lesion. She is very worried about this and thinks that it means she will then experience some side effects from the chemo. She has not talked to the doctor about this so she does not have any real facts. Does anyone know about this? I don't know what the results will be of her going off the steroids. The main thing I worry about is the pain coming back.

She has to have 6 rounds of chemo instead of the 3 she initially thought. She is not super happy about that. She will be done in May.

In general she is doing really well and is in good spirits. We just don't know what is coming next and that is anxiety producing!!

I am sending refuah shelimah (complete healing) to you all.

[deb_U_taunt]

I didn't have any additional pain or side effects coming off the steroids, but everyone is different, too. I felt better after no more side effects from the steroids, actually.
With the radiation, she will have a hard time tasting food. I recommend plastic utensils, the stainless seems to have a taste. I know it sounds odd, but it did help to use plastic.

Originally Posted by julieisafemme

Hello All! I spent the day with my Mom today. It was the last day of her second round of chemo. She is doing well. Next week she is preparing for radiation. She has a small lesion in the frontal cortex of her brain. It has shrunk from the chemo but they want to try to get rid of it with radiation. She is a little scared about that and so am I.

They will be tapering her off the steroids they have had her on for the brain lesion. She is very worried about this and thinks that it means she will then experience some side effects from the chemo. She has not talked to the doctor about this so she does not have any real facts. Does anyone know about this? I don't know what the results will be of her going off the steroids. The main thing I worry about is the pain coming back.

She has to have 6 rounds of chemo instead of the 3 she initially thought. She is not super happy about that. She will be done in May.

In general she is doing really well and is in good spirits. We just don't know what is coming next and that is anxiety producing!!

I am sending refuah shelimah (complete healing) to you all.

[Heavenleahangel]

Hello, Everyone; I feel so ackward posting on this thread, but I offically "belong" to this community.
My right foot was swollen and tender so I went to my primary care and was told it's nothing to worry about. After 4 months of not being treated and not getting anywhere, I was deperate and went to a podiatrist. He immediately sent me for a xray, then a nuclear bone scan, then a white blood cell skin tag or scan and was told I actually have cancerous bone cells in my foot and I am going to start a biphosponate chemo infusion called Aredia on Monday the 23rd. I have had family members on chemo, but not this type. I have scoured the websites on what to expect and it is scary.
I don't have a lot of family/close friends to help me through this, but I do have my son I adopted and is 4 years old. I have had him since he was a newborn.
I appreciate any encouragement and if anyone has any experiece with Aredia, I would love to hear it-good or bad. Thanks, Heavenleahangel

[clay]

Originally Posted by Heavenleahangel

Hello, Everyone; I feel so ackward posting on this thread, but I offically "belong" to this community.
My right foot was swollen and tender so I went to my primary care and was told it's nothing to worry about. After 4 months of not being treated and not getting anywhere, I was deperate and went to a podiatrist. He immediately sent me for a xray, then a nuclear bone scan, then a white blood cell skin tag or scan and was told I actually have cancerous bone cells in my foot and I am going to start a biphosponate chemo infusion called Aredia on Monday the 23rd. I have had family members on chemo, but not this type. I have scoured the websites on what to expect and it is scary.
I don't have a lot of family/close friends to help me through this, but I do have my son I adopted and is 4 years old. I have had him since he was a newborn.
I appreciate any encouragement and if anyone has any experiece with Aredia, I would love to hear it-good or bad. Thanks, Heavenleahangel

Hi Heaven...YOU have every right to be here...post away. AND the folks here are so incredibly supportive, so compassionate, and will step right in and walk this walk with you. I, for one, am here for you..just give me a holla..I, too, googled it..and it seems to be as safe as anything else out there. If there is anything I can do...from here anyway as I am still healing...please let me know...you know how to reach me...
It is okay to be afraid, be sacred, and uncertain..we have ALL faced it ourselves..firsthand.
IF I could travel, I would be there for you in a heartbeat...I would....but am not able to at this time. I CAN be here supportive and in spirit for you!!!
YOU are a BRAVE WARRIOR...set your mind to you will beat this.,...make cancer your bitch, just as each of us have...we will walk behind you, hold your hand, give you a hug, and write loving words of support and well wishes to you...we leave NO ONE behind here...EVER!
I know nothing I say right now will sink in BUT just know I am with you, my friend..I have your hand in mine..and I won't let go...hugs..YOU can do this..we will march with you....in spirit..in heart..in sisterhood...love to you, sweet lady..Clay xoxo
FIGHT baby, fight!!!!

[DapperButch]

Heavenleahangel,

I am very sorry that you have received a diagnosis of cancer. I have not heard of this type of chemotherapy. My knowledge base is pretty limited to colon cancer chemotherapy and I have some knowledge of breast cancer treatment.

I am also sorry that you do not have any close friends or family near by. You may want to look into cancer support groups in your area. Wherever it is you are getting your infusion should have this information.

Also, know that we are here and you are welcome to come and post, daily! Even though we have not all been through the same chemotherapy, we may have tips to deal with the various side effects. At the very least, we are here to listen.

The whole thing can be very scary, but know you will get through it.

Take care of you.

Originally Posted by Heavenleahangel

Hello, Everyone; I feel so ackward posting on this thread, but I offically "belong" to this community.
My right foot was swollen and tender so I went to my primary care and was told it's nothing to worry about. After 4 months of not being treated and not getting anywhere, I was deperate and went to a podiatrist. He immediately sent me for a xray, then a nuclear bone scan, then a white blood cell skin tag or scan and was told I actually have cancerous bone cells in my foot and I am going to start a biphosponate chemo infusion called Aredia on Monday the 23rd. I have had family members on chemo, but not this type. I have scoured the websites on what to expect and it is scary.
I don't have a lot of family/close friends to help me through this, but I do have my son I adopted and is 4 years old. I have had him since he was a newborn.
I appreciate any encouragement and if anyone has any experiece with Aredia, I would love to hear it-good or bad. Thanks, Heavenleahangel

[Novelafemme]

Originally Posted by Heavenleahangel

Hello, Everyone; I feel so ackward posting on this thread, but I offically "belong" to this community.
My right foot was swollen and tender so I went to my primary care and was told it's nothing to worry about. After 4 months of not being treated and not getting anywhere, I was deperate and went to a podiatrist. He immediately sent me for a xray, then a nuclear bone scan, then a white blood cell skin tag or scan and was told I actually have cancerous bone cells in my foot and I am going to start a biphosponate chemo infusion called Aredia on Monday the 23rd. I have had family members on chemo, but not this type. I have scoured the websites on what to expect and it is scary.
I don't have a lot of family/close friends to help me through this, but I do have my son I adopted and is 4 years old. I have had him since he was a newborn.
I appreciate any encouragement and if anyone has any experiece with Aredia, I would love to hear it-good or bad. Thanks, Heavenleahangel

Heavenleahangel,

Welcome to the best support group you could ever not want to be a part of! Like Dapper, I'm not too familiar with bone cancers, but I can sure give you a cyber hug when you need one! My partner and I both went through cancer this year and are both doing GREAT! I'm so sorry you are facing this with a little one to care for on your own.Just know there are a lot of fabulous people here who will help lift you up when you feel too tired to make a go at it on your own.

Much love and light,

Novela

[Tommi]

Originally Posted by Heavenleahangel

Hello, Everyone; I feel so ackward posting on this thread, but I offically "belong" to this community. ......I appreciate any encouragement and if anyone has any experiece with Aredia, I would love to hear it-good or bad. Thanks, Heavenleahangel

Hi there,
Cancer makes you scared, and quiet, and lonely and then, it makes you realize there are things you need to do, and you fel feirce and feisty. We all have a story and a walk along the path, and well, our commonality is knowing we really are goint to be okay.

Besides all the Doctor appointments, tests, medication, chemo, radiation , and on and n, you will need to add fun stuff back into your life.

Sending you bear hugs and chocolate truffles. Tmmi

[SweetJane]

Hang in there Heavenleah. We're all praying for you.