Differently Abled (fly your freak flag high)

SuperFemme · 02-17-2010, 03:52 PM

Andrew,

I think many of us feel the isolation that you do.

We met about seven years ago (can you believe it's been that long?) when you shared your brain injury with me. When I read your posts I read them with a special understanding that only a person with TBI can have.

You are NOT alone.

Hey? When you have seizures do your dogs sit on you? When I wake up my min pin has his face covering mine.

The people that TRULY love me and get me? They say nothing when I tell them the same story like 1000 times because I don't remember I told it in the first place. They understand my swiss cheese brain and love me BECAUSE of it, not in spite of it.

I've seen lots of people go to bat for you, and I know that you have friends. I think the biggest blessing you could strive for is to not isolate yourself. Does that make sense?

When I get embarassed, impassioned and make mistakes my first inclination is to isolate. Instead, I have learned to laugh at myself and accept that it's just who I am now. Don't get me wrong, I have strong moments of self doubt and anger. I just refuse to stay in that head space.

hugs,

adele

Daywalker · 02-17-2010, 03:58 PM

Quote:

Originally Posted by SuperFemme

Andrew,

I think many of us feel the isolation that you do.

We met about seven years ago (can you believe it's been that long?) when you shared your brain injury with me. When I read your posts I read them with a special understanding that only a person with TBI can have.

You are NOT alone.

Hey? When you have seizures do your dogs sit on you? When I wake up my min pin has his face covering mine.

The people that TRULY love me and get me? They say nothing when I tell them the same story like 1000 times because I don't remember I told it in the first place. They understand my swiss cheese brain and love me BECAUSE of it, not in spite of it.

I've seen lots of people go to bat for you, and I know that you have friends. I think the biggest blessing you could strive for is to not isolate yourself. Does that make sense?

When I get embarassed, impassioned and make mistakes my first inclination is to isolate. Instead, I have learned to laugh at myself and accept that it's just who I am now. Don't get me wrong, I have strong moments of self doubt and anger. I just refuse to stay in that head space.

hugs,

adele

I laugh at Me all the time.

It has saved mah Gifted life more times than not.

I used to say
"If you cannot laugh at yourself, others will do it for you"

Beating them to the punch is unintentional, but a pleasure all the same.

I have more to share, very soon...promise.

Andrew, Jr. · 02-17-2010, 04:07 PM

Adele,

Yes, I do remember! I close my eyes and I see you. I remember our hug. It was fabulous. Like Indiana Jones and his woman friend (I can't think of her name).

As for Dino, yes. After my seizures, he is on my head, and starring at me. Eye to eye. I can't get over it. He is just my everything.

I am always laughing at myself. You have no idea. It is like an adventure with me every day. Nothing is normal in my life. But what I mean is like the everyday sort of thing with other people. They just have no idea. None. I just had someone call me a retard in the grocery store because I asked him 3 times for the aisle no. for oranges. There is none. Who knew? You would have thought I was shopping for milk, eggs, and tp, and God knows what else there was. We were having a snow storm.

SuperFemme · 02-17-2010, 04:16 PM

Quote:

Originally Posted by Andrew, Jr.

Adele,

Yes, I do remember! I close my eyes and I see you. I remember our hug. It was fabulous. Like Indiana Jones and his woman friend (I can't think of her name).

As for Dino, yes. After my seizures, he is on my head, and starring at me. Eye to eye. I can't get over it. He is just my everything.

I am always laughing at myself. You have no idea. It is like an adventure with me every day. Nothing is normal in my life. But what I mean is like the everyday sort of thing with other people. They just have no idea. None. I just had someone call me a retard in the grocery store because I asked him 3 times for the aisle no. for oranges. There is none. Who knew? You would have thought I was shopping for milk, eggs, and tp, and God knows what else there was. We were having a snow storm.

Right? I LOSE it in the grocery store. Somebody finally clued me into the fact that you can get a map of the grocery store from customer service. Then again, that would require me remembering to make my list in accordance with the map. Which I never do. Which means I criss-cross the store about twenty times.

God forbid I have to do something OUT of my routine. ACK! Then there are the things that are simple for most. Cooking for example. I tend to start fires. Remembering to rinse the conditioner out of my hair BEFORE I get out of the shower. Not using Benadryl cream for toothpaste. Taking the plastic cover OFF my razor before shaving.

I'm a laugh a minute. BUT I've learned to tell the guy I'm asking for the aisle oranges are on that I am disabled the first time around. Then we can laugh at me together the fifth time I ask.

Ha!

Andrew, Jr. · 02-17-2010, 09:48 PM

Adele,

You know what, I used Rosie's hairspray for deod. today. My underarm hairs had no idea of what was going on.

And brushing my teeth with Benedryl is typical in my house. We just go with the flow here.

As for my routines, I have to stay with them. If I go off my routines, I have more anxiety than Mt. Everest.

Oh, yeah, I just go with the flow. I just wish society was more compassionate towards folks like us here in this thread. It seems that society is going backyards instead of forewards. And the lack of compassion is growing each day. Look at handicapped parking spots. That is just a nightmare. So many are willing to start a fight over parking spots. How much more petty can we get than that?

Rockinonahigh · 02-18-2010, 04:20 PM

I laugh at myself a lot for the same reason Mr.Day dose,cause if I dont they will, being profoundly deff on one hand is a blessing and on the other a royal pain in the ass.I have learned to deal with the hearing world far better than it has with me.Acctually not hearing other peoples bs is a good thing,with my aids on its way to much to process so lots of times I dont have them on.G-d help me when the vertago hits and im like a saterday night drunk.Since I quit

rideing my balance is worse at times....then there is the stuttering that with as much therapy I have had over the years pops up now and then.All in all I just keep going on cause its the way my world is,the peeps that count are ok with it,the ones who arent..well its there prob not mine.
Rock

02-17-2010, 03:52 PM	#1
SuperFemme Timed Out How Do You Identify?: Permanently Banned 10/24/2010 Preferred Pronoun?: She. Relationship Status: Married (one of 18,000) Join Date: Nov 2009 Location: Atascadero, CA Posts: 4,933 My Photo Gallery Thanks: 2,309 Thanked 7,108 Times in 2,327 Posts Rep Power: 0	Andrew, I think many of us feel the isolation that you do. We met about seven years ago (can you believe it's been that long?) when you shared your brain injury with me. When I read your posts I read them with a special understanding that only a person with TBI can have. You are NOT alone. Hey? When you have seizures do your dogs sit on you? When I wake up my min pin has his face covering mine. The people that TRULY love me and get me? They say nothing when I tell them the same story like 1000 times because I don't remember I told it in the first place. They understand my swiss cheese brain and love me BECAUSE of it, not in spite of it. I've seen lots of people go to bat for you, and I know that you have friends. I think the biggest blessing you could strive for is to not isolate yourself. Does that make sense? When I get embarassed, impassioned and make mistakes my first inclination is to isolate. Instead, I have learned to laugh at myself and accept that it's just who I am now. Don't get me wrong, I have strong moments of self doubt and anger. I just refuse to stay in that head space. hugs, adele

02-17-2010, 04:07 PM	#3
Andrew, Jr. Timed Out How Do You Identify?: Me Preferred Pronoun?: He Relationship Status: Unavailable Join Date: Nov 2009 Location: Over the Rainbow in a House Posts: 5,072 My Photo Gallery Thanks: 16,004 Thanked 5,249 Times in 2,216 Posts Rep Power: 0	Adele, Yes, I do remember! I close my eyes and I see you. I remember our hug. It was fabulous. Like Indiana Jones and his woman friend (I can't think of her name). As for Dino, yes. After my seizures, he is on my head, and starring at me. Eye to eye. I can't get over it. He is just my everything. I am always laughing at myself. You have no idea. It is like an adventure with me every day. Nothing is normal in my life. But what I mean is like the everyday sort of thing with other people. They just have no idea. None. I just had someone call me a retard in the grocery store because I asked him 3 times for the aisle no. for oranges. There is none. Who knew? You would have thought I was shopping for milk, eggs, and tp, and God knows what else there was. We were having a snow storm.

02-17-2010, 09:48 PM	#5
Andrew, Jr. Timed Out How Do You Identify?: Me Preferred Pronoun?: He Relationship Status: Unavailable Join Date: Nov 2009 Location: Over the Rainbow in a House Posts: 5,072 My Photo Gallery Thanks: 16,004 Thanked 5,249 Times in 2,216 Posts Rep Power: 0	Adele, You know what, I used Rosie's hairspray for deod. today. My underarm hairs had no idea of what was going on. And brushing my teeth with Benedryl is typical in my house. We just go with the flow here. As for my routines, I have to stay with them. If I go off my routines, I have more anxiety than Mt. Everest. Oh, yeah, I just go with the flow. I just wish society was more compassionate towards folks like us here in this thread. It seems that society is going backyards instead of forewards. And the lack of compassion is growing each day. Look at handicapped parking spots. That is just a nightmare. So many are willing to start a fight over parking spots. How much more petty can we get than that?

02-18-2010, 04:20 PM	#6
Rockinonahigh Senior Member How Do You Identify?: stone butch Preferred Pronoun?: makes no diffrence,I know who I am. Relationship Status: single,maybe looking if the right person comes along. Join Date: Dec 2009 Location: shreveport,Louisiana Posts: 4,907 My Photo Gallery Thanks: 4,682 Thanked 14,933 Times in 3,938 Posts Rep Power: 21474856	I laugh at myself a lot for the same reason Mr.Day dose,cause if I dont they will, being profoundly deff on one hand is a blessing and on the other a royal pain in the ass.I have learned to deal with the hearing world far better than it has with me.Acctually not hearing other peoples bs is a good thing,with my aids on its way to much to process so lots of times I dont have them on.G-d help me when the vertago hits and im like a saterday night drunk.Since I quit rideing my balance is worse at times....then there is the stuttering that with as much therapy I have had over the years pops up now and then.All in all I just keep going on cause its the way my world is,the peeps that count are ok with it,the ones who arent..well its there prob not mine. Rock