Cancer Support and Caregivers Who Are Trail Blazers!

[IttyBittyFem]

Originally Posted by Daryn

My latest results are back and this test is normal. I am so thankful.

Just WONDERFUL news Daryn. . Congratulations! . Thanks for sharing with us.

[sweetcali]

I have Stage 4 non-small cell lung cancer and am currently under the care of hospice. I have found this to be a seriously bizarre journey. What I have found most bizarre is that people already have me dead. They will ask Mike how I am doing but they don't ask me. There were only 2 people that would call and check in on me when I was going through chemo the rest got angry because apparently I wasn't communicating enough. The whole journey is just weird. I find it really odd that they got angry with me when I was undergoing chemo treatment and I couldn't put 2 words together let alone type. Yet they were angry with me for not communicating. Ummmm...hello.....you try having every cell in your body killed off, drugs shoved into your body, swell up like a balloon and then then try to act as if everything is just fine. LOL It ain't gonna happen.

The whole thing is just bizarre.

sweetcali

[Spirit Dancer]

All i can say is that is so wrong (((((((((cali)))))))))))and it happens entierly too much.

Originally Posted by sweetcali

I have Stage 4 non-small cell lung cancer and am currently under the care of hospice. I have found this to be a seriously bizarre journey. What I have found most bizarre is that people already have me dead. They will ask Mike how I am doing but they don't ask me. There were only 2 people that would call and check in on me when I was going through chemo the rest got angry because apparently I wasn't communicating enough. The whole journey is just weird. I find it really odd that they got angry with me when I was undergoing chemo treatment and I couldn't put 2 words together let alone type. Yet they were angry with me for not communicating. Ummmm...hello.....you try having every cell in your body killed off, drugs shoved into your body, swell up like a balloon and then then try to act as if everything is just fine. LOL It ain't gonna happen.

The whole thing is just bizarre.

sweetcali

[Andrew, Jr.]

I think the problem is fear. Alot of people just don't know what to say or do around those who have cancer. You get alot of talk, but no action. Some well-meaning people really do want to do something but are so afraid. The cancer scares them. It changes everything about your life.

I did receive a note from Fiercefemme. The news is not good. She has a rare form of cancer. It has spread. She is starting on chemo. She asks for everyone to pray for her, and her family. I told her I would pass the word on.

I wish everyone peace.

Namaste,
Andrew

[fiercegrrl]

Originally Posted by Andrew, Jr.

I think the problem is fear. Alot of people just don't know what to say or do around those who have cancer. You get alot of talk, but no action. Some well-meaning people really do want to do something but are so afraid. The cancer scares them. It changes everything about your life.

I did receive a note from Fiercefemme. The news is not good. She has a rare form of cancer. It has spread. She is starting on chemo. She asks for everyone to pray for her, and her family. I told her I would pass the word on.

I wish everyone peace.

Namaste,
Andrew

hi to anyone following this thread.
i do have a rare cancer in that i shouldn't be affected with it for a good 40 years from now. i have a form of ovarian cancer that usually affect women in their 40s-60s. my doctor is baffled as to why i, at 26, have ended up with it.
i am incredibly lucky though and there was an angel in the form of a GYN i saw at sliding scale clinich (that mostly works with the LGBTQ community) who called in favors and got me a fantastic doctor and my medical care is being covered (i am uninsured). i owe her thank yous every day.
because if much time had to had been taken to find health care all of the 100's of small tumors that are on the surfaces of my small.large intestine, colon, and diaphram they would be IN those organs and i probably wouldn't have much hope for recovery much less survival. but i'm lucky and they are still on surfaces so i'm trying to focus on that.
and my doctor thinks that since i and young and otherwise healthy that i will fight this. i just might have to fight it many time over my life span.
not what i asked for from life. but i don't have many options but to be fierce and deal with it.

-nicole

[Andrew, Jr.]

Nicole,

You are a fighter. I am praying for you. God bless you, and your family.

Love,
Andrew

[Andrew, Jr.]

How is everyone doing?

Andrew

[Tommi]

Originally Posted by sweetcali

I have Stage 4 non-small cell lung cancer and am currently under the care of hospice. I have found this to be a seriously bizarre journey. What I have found most bizarre is that people already have me dead. They will ask Mike how I am doing but they don't ask me. There were only 2 people that would call and check in on me when I was going through chemo the rest got angry because apparently I wasn't communicating enough. The whole journey is just weird. I find it really odd that they got angry with me when I was undergoing chemo treatment and I couldn't put 2 words together let alone type. Yet they were angry with me for not communicating. Ummmm...hello.....you try having every cell in your body killed off, drugs shoved into your body, swell up like a balloon and then then try to act as if everything is just fine. LOL It ain't gonna happen.

The whole thing is just bizarre.

sweetcali

Post chemo
Get 2 paper plates. Glue a tongue depressor, or a couple of banana popsicle sticks. on each. Put a happy face on one side, and a sleepy face on the other. Trace your fist with middle finger extended on the other plate, and a bigger smile on the other side..
banana popsicles always make me feel better

[PearlsNLace]

Andrew, is there anything that we can do for you, here on the Planet, to help you through this time?

When I had my lump removed a couple years back, it was humor that kept me going, and a whole lot of PMs.

THinking of you today, and this week.


PnL

[Spirit Dancer]

Originally Posted by sweetcali

I have Stage 4 non-small cell lung cancer and am currently under the care of hospice. I have found this to be a seriously bizarre journey. What I have found most bizarre is that people already have me dead. They will ask Mike how I am doing but they don't ask me. There were only 2 people that would call and check in on me when I was going through chemo the rest got angry because apparently I wasn't communicating enough. The whole journey is just weird. I find it really odd that they got angry with me when I was undergoing chemo treatment and I couldn't put 2 words together let alone type. Yet they were angry with me for not communicating. Ummmm...hello.....you try having every cell in your body killed off, drugs shoved into your body, swell up like a balloon and then then try to act as if everything is just fine. LOL It ain't gonna happen.

The whole thing is just bizarre.


sweetcali

Sweet Cali
I highlighted in red, exactly what we are going through, My heart goes out to you and all the others who are suffering and fighting this battle. At times it seems as if the loved one and caregiver are fighting alone. Its tough when your friends cannot fathom how very taxing Chemo and Steroids are on you.
It takes only a minute to phone and say I thought of you today.
So today I want you to know I thought of you and the others who grace this thread and silently said a prayer.

[fiercegrrl]

i am having surgery this week as well. another massive incision and a few days in the hospital.
this time around there is not going to be the constant help of my mom. not since she decided it was ok to steal most off my pain killers, anxiety and sleeping meds.
so my poor brain that's like swiss cheese these days is trying to play a strategic game of who can come be with me in the hospital and when and for how many hours. it's surprising to me that my friends are actually saying they can't help because they have already made plans. everyone always tells me to let them know when i need help. and when i finally work myself up to actually asking for it i hear no. and people wonder why i resist asking for help.
and to top off the fun of surgery my next round of chemo will be probably be administered while im in the hospital. that's just adding insult to injury.

when all this is done i want a fucking vacation. i want a hotel room with 1000 thread count sheets, a chocolate on my pillow every night, and a view of the ocean.

*sigh*