Cancer Support and Caregivers Who Are Trail Blazers! - Page 44

Tommi · 01-06-2013, 10:30 AM

Aryon,
Good luck on the good fight and surgery on Monday. Drop in and say hi soon as you can ,

Tommi

deb_U_taunt · 01-14-2013, 08:46 PM

BOO!!! I think we lost Aryon's thread. Any updates?

Thank you,
Deb

deb_U_taunt · 01-16-2013, 06:22 PM

Its that time again. I meet my new oncologist Tuesday and get blood work for tumor markers. I gotta say, I hate the stress of wait and see. My mom wants to go with, but told her I was fine going alone. Why did I say that??? WTF is wrong with me.

clay · 01-16-2013, 06:59 PM

Saw my Gynie Oncol. Fri...got yearly check up....all is good there.
Am having that "issue" again....5 days now of occult blood......the pain is back in my back (vicinity of liver/kidney area).....have lost 25 lbs since emd November til now....
So, am being referred back to the Gastro for a Camera colonoscopy.
THIS, too, shall pass....it just suckin' fucks....esp. going through this alone...
I will beat whatever this is, too...hell yeaaaaas, I will....
Universe: I put this out in a positive bubble..you know what I need and whom I need....I trust....I believe....

Good luck deb...I'm with ya darling...and I know you are with me in spirit.

deb_U_taunt · 01-17-2013, 05:31 PM

Quote:

Originally Posted by clay

Saw my Gynie Oncol. Fri...got yearly check up....all is good there.
Am having that "issue" again....5 days now of occult blood......the pain is back in my back (vicinity of liver/kidney area).....have lost 25 lbs since emd November til now....
So, am being referred back to the Gastro for a Camera colonoscopy.
THIS, too, shall pass....it just suckin' fucks....esp. going through this alone...
I will beat whatever this is, too...hell yeaaaaas, I will....
Universe: I put this out in a positive bubble..you know what I need and whom I need....I trust....I believe....

Good luck deb...I'm with ya darling...and I know you are with me in spirit.

Let us know how your tests go. You will be fine.

clay · 01-17-2013, 06:25 PM

Quote:

Originally Posted by deb_U_taunt

Let us know how your tests go. You will be fine.

sure will...thanks hon

mustangjeano · 01-18-2013, 12:14 AM

Quote:

Originally Posted by clay

sure will...thanks hon

Deb and Clay, my thoughts and prayers are with you both. Waiting to hear how you both are. Jeano

Lucian · 01-18-2013, 01:03 AM

Quote:

Originally Posted by deb_U_taunt

BOO!!! I think we lost Aryon's thread. Any updates?

Thank you,
Deb

Hi Deb...here ya go.

Update from Aryons Partner...............["Aryon Cole update, JAN 17, 2013 - 9:40 pm UK time: Aryon is doing well and all seems ok for the moment. Aryon is scheduled to go home tomorrow (FRI) and I suspect will post on FB at some point after, of course, UK time

"]

deb_U_taunt · 01-18-2013, 08:16 AM

Quote:

Originally Posted by Lucian

Hi Deb...here ya go.

Update from Aryons Partner...............["Aryon Cole update, JAN 17, 2013 - 9:40 pm UK time: Aryon is doing well and all seems ok for the moment. Aryon is scheduled to go home tomorrow (FRI) and I suspect will post on FB at some point after, of course, UK time

"]

Thank you for the update, Lucian

Glad to hear Aryon is going home and doing okay.

Lucian · 01-20-2013, 01:35 PM

Since Aryons thread disappeared when there was the server problems i wanted to update you all here.

Aryon is back in the hospital. Please keep those good thoughts and prayers coming.........Lucian

Update from Angelika......"Aryon Cole update JAN 20, 2013 - 4 pm UK time: Aryon is back in the Hospital. An internal infection has developed. Aryon is receiving antibiotics. I will update everyone as things change, etc. Please DO NOT call or text Aryon at this time. Wait until Aryon is back home. If you have Duncan's phone number, please text or call Duncan for updates, or alternatively, you can reach me here on FB. Thank you."

Tommi · 01-20-2013, 01:40 PM

Lucian · 01-20-2013, 01:55 PM

Just letting you all know i started a new thread for Aryon.

deb_U_taunt · 01-22-2013, 06:26 PM

I got blood work done today and they are going to push for genetic testing again. I sure would like to know for my sisters, daughter, niece and for treatment options and clinical trials.
I really like the new oncologist, he is a straight to the point kinda guy. I had the usual tumor mark blood work, plus x-rays and bone scans (Thursday) and will get results on Friday. I really don't like the waiting. I am still having neuropathy issues and some pain in my back and hips (why I am having the bone scan).
I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

Tommi · 01-22-2013, 06:40 PM

Quote:

Originally Posted by deb_U_taunt

I got blood work done today and they are going to push for genetic testing again. I sure would like to know for my sisters, daughter, niece and for treatment options and clinical trials.
I really like the new oncologist, he is a straight to the point kinda guy. I had the usual tumor mark blood work, plus x-rays and bone scans (Thursday) and will get results on Friday. I really don't like the waiting. I am still having neuropathy issues and some pain in my back and hips (why I am having the bone scan).
I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

Hi deb,
New Doc sounds like "just what the doctor ordered"
I do the sand thing real well. plus, I live near the beach

Aches and pains ~ maybe you have a touch of rhemutizzzz, as my Gramma would say.

deb_U_taunt · 01-22-2013, 06:46 PM

Quote:

Originally Posted by Tommi

Hi deb,
New Doc sounds like "just what the doctor ordered"
I do the sand thing real well. plus, I live near the beach

Aches and pains ~ maybe you have a touch of rhemutizzzz, as my Gramma would say.

And arthritis runs in the family, it just freaked me out a bit for him to remind me one of the ways it comes back is leukemia. And keeping my head in the sand is what got me in this mess.

Tommi · 01-22-2013, 06:51 PM

Quote:

Originally Posted by deb_U_taunt

And arthritis runs in the family, it just freaked me out a bit for him to remind me one of the ways it comes back is leukemia. And keeping my head in the sand is what got me in this mess.

Well, I am so glad you have a Doc guiding you through the medical maze. .. Best wishes on this new adventure.
My Onchologist, is a life saver.

DapperButch · 01-22-2013, 07:05 PM

Quote:

Originally Posted by deb_U_taunt

I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

Saying I know exactly what you mean is an understatement.

Quote:

Originally Posted by deb_U_taunt

And keeping my head in the sand is what got me in this mess.

Same here. I kept my head in the sand by ignoring times of rectal bleeding when I went to the bathroom...for over a year. Then I ignored daily diarrhea for several months, pumping myself up with over the counter meds to keep it from happening. I finally did something about it when I couldn't get through a meal without having to jump up from the table due to having diarrhea.

What do you do now to keep yourself healthy? What does not keeping your head in the sand mean to you?

I have an appointment tomorrow with my oncologist to go over my CAT scan. I am a bit nervous about that.

Genetic testing? I did that. I will look back in the thread and see if you started talking about it in an earlier post to get more information. If you didn't, could you explain here?

I think that my neuropathy is less than it was. In my hands, anyway. I was surprised that it decreased even after a year of being done with chemo, as evidently, it is the first year out that determines the long term effects. My feet, however, have not improved, but I know that mine is a hell of a lot less than some other peoples, so for that I am thankful.

Please keep us updated.

KCBUTCH · 01-22-2013, 07:14 PM

Thank you all for everything you do-I've been fighting for family and friends for years, loss after loss. I most recently lost a dear friend only days ago after her fight wore out and it was time for her to go home.

I just wanted to take a moment to show my gratitude-none of you I know but that matters little.

Lucian · 01-22-2013, 08:17 PM

I'm a survivor from 1994. I was very lucky in that it was caught early. But even luckier in that i was having a procedure done for something else when they found it. Had i not been having another medical problem. It would have been a lot longer till it would have been found i'm sure.

I've had many loved ones affected by cancer over the years too.

I met my Buddy Aryon who was very involved in Relay For Life as a survivor Hymself. With hym and others i too got more involved over the past four years. Where as in the past i had only done a few walks.

I've had loss of loved ones in my life, and others that are doing good.

I have to honestly say. I never thought my buddy Aryon would be diagnosed again. Once hy made it past that ten year mark. I don't know..I just didn't expect it.

I..like i'm sure all of you, just want to see cancer eradicated. So many people are affected themselves or have friends, family, partners that end up fighting this battle. I just hope with all i have that soon, nobody will ever have to fight that battle anymore.

I'll be keeping all of you in my thoughts and prayers.

Those who can get involved with Relay For Life. Please do. Every penny helps.

julieisafemme · 01-22-2013, 09:06 PM

This is all hard to hear. I am praying for all of you survivors and hoping all the tests come back clean Deb and Dapper. My Mom is on hospice now for lung cancer with brain, spine and liver mets. I just spent the weekend with her to give my older sister a break from 24/7 caregiving. We are so blessed in that my Mom is living now in one half of a duplex owned by my brother. Her rent, utilities are paid for by him. He came and helped me take her to get an eye exam and some new glasses the other day at Costco. She loved being out and shopping!

My other sister lives in the other side of the duplex. She is an amazing cook and whatever my Mom wants for dinner she makes. They look at cooking magazines and watch cooking shows and then my Mom says "I want this for dinner"! I am the cleaner. I scrub and organize and take care of keeping the house in order. It takes a village to raise a child but it also takes a village to help someone transition!

I worry about my own health and my partner's. Mortality is a bitch! I am in a limbo state right now. I am not the best partner, Mom or rattie caregiver. My own house is a mess. It is hard. I am though so grateful that I have this time with my Mom.

01-16-2013, 06:59 PM	#864
clay Practically Lives Here How Do You Identify?: Butch (Silver Fox) Dom Daddi Preferred Pronoun?: 50 Shades of Clay Darker & Deeper Relationship Status: married to my forever Join Date: May 2011 Location: salt air & sandy beaches Posts: 13,136 My Photo Gallery Thanks: 97,020 Thanked 31,675 Times in 7,748 Posts Rep Power: 21474864	Saw my Gynie Oncol. Fri...got yearly check up....all is good there. Am having that "issue" again....5 days now of occult blood......the pain is back in my back (vicinity of liver/kidney area).....have lost 25 lbs since emd November til now.... So, am being referred back to the Gastro for a Camera colonoscopy. THIS, too, shall pass....it just suckin' fucks....esp. going through this alone... I will beat whatever this is, too...hell yeaaaaas, I will.... Universe: I put this out in a positive bubble..you know what I need and whom I need....I trust....I believe.... Good luck deb...I'm with ya darling...and I know you are with me in spirit. __________________ To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault

01-20-2013, 01:35 PM	#870
Lucian Junior Member How Do You Identify?: Butch/Trans mindset without body modification. Preferred Pronoun?: He/Him Relationship Status: Not looking Join Date: Jan 2013 Location: S.W. Pennsylvania Posts: 58 My Photo Gallery Thanks: 61 Thanked 132 Times in 34 Posts Rep Power: 1622874	Since Aryons thread disappeared when there was the server problems i wanted to update you all here. Aryon is back in the hospital. Please keep those good thoughts and prayers coming.........Lucian Update from Angelika......"Aryon Cole update JAN 20, 2013 - 4 pm UK time: Aryon is back in the Hospital. An internal infection has developed. Aryon is receiving antibiotics. I will update everyone as things change, etc. Please DO NOT call or text Aryon at this time. Wait until Aryon is back home. If you have Duncan's phone number, please text or call Duncan for updates, or alternatively, you can reach me here on FB. Thank you." __________________ I think a hero is any person really intent on making this a better place for all people. ~ Maya Angelou ~

01-20-2013, 01:55 PM	#872
Lucian Junior Member How Do You Identify?: Butch/Trans mindset without body modification. Preferred Pronoun?: He/Him Relationship Status: Not looking Join Date: Jan 2013 Location: S.W. Pennsylvania Posts: 58 My Photo Gallery Thanks: 61 Thanked 132 Times in 34 Posts Rep Power: 1622874	Just letting you all know i started a new thread for Aryon. __________________ I think a hero is any person really intent on making this a better place for all people. ~ Maya Angelou ~

01-22-2013, 07:14 PM	#878
KCBUTCH Senior Member How Do You Identify?: Undaunted QUEER Dom, Daddy Preferred Pronoun?: MYSELF, Syr, Hy, or friend prefered Relationship Status: Cautious, indifferent... Join Date: Jan 2013 Location: Below the foothills above the beach Posts: 1,848 My Photo Gallery Thanks: 4,240 Thanked 3,305 Times in 884 Posts Rep Power: 21474850	thank you Thank you all for everything you do-I've been fighting for family and friends for years, loss after loss. I most recently lost a dear friend only days ago after her fight wore out and it was time for her to go home. I just wanted to take a moment to show my gratitude-none of you I know but that matters little. __________________ "If you want to know the secrets of the Universe, think in terms of energy, frequency and vibration"-Nikola Tesla

01-22-2013, 08:17 PM	#879
Lucian Junior Member How Do You Identify?: Butch/Trans mindset without body modification. Preferred Pronoun?: He/Him Relationship Status: Not looking Join Date: Jan 2013 Location: S.W. Pennsylvania Posts: 58 My Photo Gallery Thanks: 61 Thanked 132 Times in 34 Posts Rep Power: 1622874	I'm a survivor from 1994. I was very lucky in that it was caught early. But even luckier in that i was having a procedure done for something else when they found it. Had i not been having another medical problem. It would have been a lot longer till it would have been found i'm sure. I've had many loved ones affected by cancer over the years too. I met my Buddy Aryon who was very involved in Relay For Life as a survivor Hymself. With hym and others i too got more involved over the past four years. Where as in the past i had only done a few walks. I've had loss of loved ones in my life, and others that are doing good. I have to honestly say. I never thought my buddy Aryon would be diagnosed again. Once hy made it past that ten year mark. I don't know..I just didn't expect it. I..like i'm sure all of you, just want to see cancer eradicated. So many people are affected themselves or have friends, family, partners that end up fighting this battle. I just hope with all i have that soon, nobody will ever have to fight that battle anymore. I'll be keeping all of you in my thoughts and prayers. Those who can get involved with Relay For Life. Please do. Every penny helps. __________________ I think a hero is any person really intent on making this a better place for all people. ~ Maya Angelou ~

01-06-2013, 10:30 AM	#861
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,338 Times in 5,970 Posts Rep Power: 21474860	Aryon, Good luck on the good fight and surgery on Monday. Drop in and say hi soon as you can , Tommi

01-14-2013, 08:46 PM	#862
deb_U_taunt Senior Member How Do You Identify?: ........ Join Date: May 2011 Location: ....... Posts: 1,748 My Photo Gallery Thanks: 5,324 Thanked 5,256 Times in 1,361 Posts Rep Power: 21474852	BOO!!! I think we lost Aryon's thread. Any updates? Thank you, Deb

01-16-2013, 06:22 PM	#863
deb_U_taunt Senior Member How Do You Identify?: ........ Join Date: May 2011 Location: ....... Posts: 1,748 My Photo Gallery Thanks: 5,324 Thanked 5,256 Times in 1,361 Posts Rep Power: 21474852	Its that time again. I meet my new oncologist Tuesday and get blood work for tumor markers. I gotta say, I hate the stress of wait and see. My mom wants to go with, but told her I was fine going alone. Why did I say that??? WTF is wrong with me.

01-20-2013, 01:40 PM	#871
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,338 Times in 5,970 Posts Rep Power: 21474860

01-22-2013, 06:26 PM	#873
deb_U_taunt Senior Member How Do You Identify?: ........ Join Date: May 2011 Location: ....... Posts: 1,748 My Photo Gallery Thanks: 5,324 Thanked 5,256 Times in 1,361 Posts Rep Power: 21474852	I got blood work done today and they are going to push for genetic testing again. I sure would like to know for my sisters, daughter, niece and for treatment options and clinical trials. I really like the new oncologist, he is a straight to the point kinda guy. I had the usual tumor mark blood work, plus x-rays and bone scans (Thursday) and will get results on Friday. I really don't like the waiting. I am still having neuropathy issues and some pain in my back and hips (why I am having the bone scan). I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

01-22-2013, 09:06 PM	#880
julieisafemme Member How Do You Identify?: Femme Woman Preferred Pronoun?: She Relationship Status: Married to Greyson Join Date: Nov 2009 Location: In the present Posts: 828 My Photo Gallery Thanks: 3,156 Thanked 3,434 Times in 660 Posts Rep Power: 21474852	This is all hard to hear. I am praying for all of you survivors and hoping all the tests come back clean Deb and Dapper. My Mom is on hospice now for lung cancer with brain, spine and liver mets. I just spent the weekend with her to give my older sister a break from 24/7 caregiving. We are so blessed in that my Mom is living now in one half of a duplex owned by my brother. Her rent, utilities are paid for by him. He came and helped me take her to get an eye exam and some new glasses the other day at Costco. She loved being out and shopping! My other sister lives in the other side of the duplex. She is an amazing cook and whatever my Mom wants for dinner she makes. They look at cooking magazines and watch cooking shows and then my Mom says "I want this for dinner"! I am the cleaner. I scrub and organize and take care of keeping the house in order. It takes a village to raise a child but it also takes a village to help someone transition! I worry about my own health and my partner's. Mortality is a bitch! I am in a limbo state right now. I am not the best partner, Mom or rattie caregiver. My own house is a mess. It is hard. I am though so grateful that I have this time with my Mom. __________________ Happiness Bubbling!