Cancer Support and Caregivers Who Are Trail Blazers!

[Lucian]

Since Aryons thread disappeared when there was the server problems i wanted to update you all here.

Aryon is back in the hospital. Please keep those good thoughts and prayers coming.........Lucian

Update from Angelika......"Aryon Cole update JAN 20, 2013 - 4 pm UK time: Aryon is back in the Hospital. An internal infection has developed. Aryon is receiving antibiotics. I will update everyone as things change, etc. Please DO NOT call or text Aryon at this time. Wait until Aryon is back home. If you have Duncan's phone number, please text or call Duncan for updates, or alternatively, you can reach me here on FB. Thank you."

[Tommi]

[Lucian]

Just letting you all know i started a new thread for Aryon.

[deb_U_taunt]

I got blood work done today and they are going to push for genetic testing again. I sure would like to know for my sisters, daughter, niece and for treatment options and clinical trials.
I really like the new oncologist, he is a straight to the point kinda guy. I had the usual tumor mark blood work, plus x-rays and bone scans (Thursday) and will get results on Friday. I really don't like the waiting. I am still having neuropathy issues and some pain in my back and hips (why I am having the bone scan).
I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

[Tommi]

Originally Posted by deb_U_taunt

I got blood work done today and they are going to push for genetic testing again. I sure would like to know for my sisters, daughter, niece and for treatment options and clinical trials.
I really like the new oncologist, he is a straight to the point kinda guy. I had the usual tumor mark blood work, plus x-rays and bone scans (Thursday) and will get results on Friday. I really don't like the waiting. I am still having neuropathy issues and some pain in my back and hips (why I am having the bone scan).
I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

Hi deb,
New Doc sounds like "just what the doctor ordered"
I do the sand thing real well. plus, I live near the beach

Aches and pains ~ maybe you have a touch of rhemutizzzz, as my Gramma would say.

[deb_U_taunt]

Originally Posted by Tommi

Hi deb,
New Doc sounds like "just what the doctor ordered"
I do the sand thing real well. plus, I live near the beach

Aches and pains ~ maybe you have a touch of rhemutizzzz, as my Gramma would say.

And arthritis runs in the family, it just freaked me out a bit for him to remind me one of the ways it comes back is leukemia. And keeping my head in the sand is what got me in this mess.

[Tommi]

Originally Posted by deb_U_taunt

And arthritis runs in the family, it just freaked me out a bit for him to remind me one of the ways it comes back is leukemia. And keeping my head in the sand is what got me in this mess.

Well, I am so glad you have a Doc guiding you through the medical maze. .. Best wishes on this new adventure.
My Onchologist, is a life saver.

[DapperButch]

Originally Posted by deb_U_taunt

I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

Saying I know exactly what you mean is an understatement.

Originally Posted by deb_U_taunt

And keeping my head in the sand is what got me in this mess.

Same here. I kept my head in the sand by ignoring times of rectal bleeding when I went to the bathroom...for over a year. Then I ignored daily diarrhea for several months, pumping myself up with over the counter meds to keep it from happening. I finally did something about it when I couldn't get through a meal without having to jump up from the table due to having diarrhea.

What do you do now to keep yourself healthy? What does not keeping your head in the sand mean to you?

I have an appointment tomorrow with my oncologist to go over my CAT scan. I am a bit nervous about that.

Genetic testing? I did that. I will look back in the thread and see if you started talking about it in an earlier post to get more information. If you didn't, could you explain here?

I think that my neuropathy is less than it was. In my hands, anyway. I was surprised that it decreased even after a year of being done with chemo, as evidently, it is the first year out that determines the long term effects. My feet, however, have not improved, but I know that mine is a hell of a lot less than some other peoples, so for that I am thankful.

Please keep us updated.

[clay]

Originally Posted by deb_U_taunt

I got blood work done today and they are going to push for genetic testing again. I sure would like to know for my sisters, daughter, niece and for treatment options and clinical trials.
I really like the new oncologist, he is a straight to the point kinda guy. I had the usual tumor mark blood work, plus x-rays and bone scans (Thursday) and will get results on Friday. I really don't like the waiting. I am still having neuropathy issues and some pain in my back and hips (why I am having the bone scan).
I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

hey sweetheart....let me know as soon as you hear, k? I am with you!!!
There is the Sister Study...my dec. wife's sister went thru it...
before you were diagnosed, sisters had a 1 in 10 chance of having BC. Now they are at 1 in 5 chance of developing it.
So glad you liked your new oncologist, too! That makes a whole world of difference.
Aches/pains do make one worry, but shouldn't be ignored. It is far better to rule them out than to just say ahh WTH, just old age pains....
My wife had neuropathy/chemo fog even at 26 months after initial rads/chemo...feet as well as hands. Her depth perception was way off after her initial 40 rad. tx.'s, too.
Dapper & Deb...I hear ya both. I am majorly concerned with the issues I am having. They began again (have had this since August)...and I demanded the Gastro take a look inside..I seeing him this Friday..to get an order to scope..so far my hgb. is WNL...so that is great. The pain in liver/kidney area comes and goes..
Anyway, it will all be a-ok...I have to believe that. I am with each of you on your journeys...I heart you all.....

[mustangjeano]

Originally Posted by clay

hey sweetheart....let me know as soon as you hear, k? I am with you!!!
There is the Sister Study...my dec. wife's sister went thru it...
before you were diagnosed, sisters had a 1 in 10 chance of having BC. Now they are at 1 in 5 chance of developing it.
So glad you liked your new oncologist, too! That makes a whole world of difference.
Aches/pains do make one worry, but shouldn't be ignored. It is far better to rule them out than to just say ahh WTH, just old age pains....
My wife had neuropathy/chemo fog even at 26 months after initial rads/chemo...feet as well as hands. Her depth perception was way off after her initial 40 rad. tx.'s, too.
Dapper & Deb...I hear ya both. I am majorly concerned with the issues I am having. They began again (have had this since August)...and I demanded the Gastro take a look inside..I seeing him this Friday..to get an order to scope..so far my hgb. is WNL...so that is great. The pain in liver/kidney area comes and goes..
Anyway, it will all be a-ok...I have to believe that. I am with each of you on your journeys...I heart you all.....

Clay buddy, you know I am in your corner. Let us know how your appointment goes on Friday. Jeano

[mustangjeano]

Originally Posted by deb_U_taunt

I got blood work done today and they are going to push for genetic testing again. I sure would like to know for my sisters, daughter, niece and for treatment options and clinical trials.
I really like the new oncologist, he is a straight to the point kinda guy. I had the usual tumor mark blood work, plus x-rays and bone scans (Thursday) and will get results on Friday. I really don't like the waiting. I am still having neuropathy issues and some pain in my back and hips (why I am having the bone scan).
I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

Deb, I'm glad you like your new oncologist and are having the tests. I do know the being tired of worrying about the cancer coming back and have spent my time with my head in the sand. Sending love and prayers to you. Jeano

[deb_U_taunt]

Everyone - so far tests are appearing to look good. I can see them online and they are looking normal, 3 are flagged as high, but just over a normal range. I have NO idea what it actually means. lol One more test tomorrow. I will have to have patience and wait until Friday.

Tommi - I really do like my new oncologist. I DO NOT like the new primary, so dr shopping again for a primary.

Dapper - I am prone to doing the same thing, thinking 'oh hell, it will go away'. I hope your scan comes back clean. Please, let us know how you are doing. I know I stress myself out WAY more than I need to, also. It doesn't change the outcome, so its needless. Right???
The genetics test is for the BRCA gene. Since the cancer was negative for hormone receptors, I have a higher chance of recurrence and it coming back in other areas of my body. If I test positive for the gene it can help with any future treatment plans and my daughter, niece and sisters will have to be screened more often and earlier.
Head in the sand means to me; ignoring changes in my body/health, continuing to not take care of ME.
To keep myself healthy: I eat a very low-fat, high fiber diet. I do not eat soy or processed sugar. I moved closer to family, ended an unhealthy/toxic relationship (I even let hym back in after radiation, after hy left me the day after my 2nd chemo WTF) and am working from home and less hours to lower my stress level.

KC - thank you and so sorry about all the losses you have had. HUGS

Lucian - finding it early is such a blessing I pray Aryon is back out of the hospital soon (of not already) and the infection is gone.

julie - I truly feel it is harder to be the caretaker. You are amazing. It is such a loving, unselfish thing to do for a person. I have never been closer to my best friend and am in awe of what she gave to me. I am grateful every minute to have her in my life.

clay - hope you get an appt for a scope soon and don't have too wait long.

Jeano - I am working hard at not worrying about what hasn't happened. It is hard! It did motivate me to have my affairs in order. I have a safe with wills, user names and passwords, account information. HUGS and LOVE to you, too.

[clay]

good evening everyone:
Dapper...please do let us know what you find out. Know we are all here, sending you much love & support....
deb: I love you my friend! Sending you healing energies and comfort...I am always here for you...
jeano: Yes, I absolutely DO know you are in my corner...you ahve been a strong ally to me as well...and I appreciate you. I send you loving hugs my friend.
julieisa: Much hugs and comfort sent to you. I agree, yours is by far the hardest of the journeys...I walked the steps of caretaker/supporter and being the "patient".
Lucien: welcome and hugs for you buddy!
Aryon: sending you loving and healing thoughts and energies...take care..
Take care of each other and yourselves...I care for each one...

[mustangjeano]

Originally Posted by deb_U_taunt

Everyone - so far tests are appearing to look good. I can see them online and they are looking normal, 3 are flagged as high, but just over a normal range. I have NO idea what it actually means. lol One more test tomorrow. I will have to have patience and wait until Friday.

Tommi - I really do like my new oncologist. I DO NOT like the new primary, so dr shopping again for a primary.

Dapper - I am prone to doing the same thing, thinking 'oh hell, it will go away'. I hope your scan comes back clean. Please, let us know how you are doing. I know I stress myself out WAY more than I need to, also. It doesn't change the outcome, so its needless. Right???
The genetics test is for the BRCA gene. Since the cancer was negative for hormone receptors, I have a higher chance of recurrence and it coming back in other areas of my body. If I test positive for the gene it can help with any future treatment plans and my daughter, niece and sisters will have to be screened more often and earlier.
Head in the sand means to me; ignoring changes in my body/health, continuing to not take care of ME.
To keep myself healthy: I eat a very low-fat, high fiber diet. I do not eat soy or processed sugar. I moved closer to family, ended an unhealthy/toxic relationship (I even let hym back in after radiation, after hy left me the day after my 2nd chemo WTF) and am working from home and less hours to lower my stress level.

KC - thank you and so sorry about all the losses you have had. HUGS

Lucian - finding it early is such a blessing I pray Aryon is back out of the hospital soon (of not already) and the infection is gone.

julie - I truly feel it is harder to be the caretaker. You are amazing. It is such a loving, unselfish thing to do for a person. I have never been closer to my best friend and am in awe of what she gave to me. I am grateful every minute to have her in my life.

clay - hope you get an appt for a scope soon and don't have too wait long.

Jeano - I am working hard at not worrying about what hasn't happened. It is hard! It did motivate me to have my affairs in order. I have a safe with wills, user names and passwords, account information. HUGS and LOVE to you, too.

Deb, reading the good news has really made my day--doing the happy dance right now. Jeano