Cancer Support and Caregivers Who Are Trail Blazers!

clay · 07-09-2014, 04:10 PM

YAY!!! Doing a happy dance for Tommi!

Enjoy that popcorn, bud!!!! Whoohooo.....

clay · 08-13-2014, 02:22 PM

YAY! My CEA levels are .7!!! My 3 year anniversary is Dec. 9 and I can go for 5 years (unless become symptomatic) before next colonoscopy!! Hip Hip Hooray!!!

I am doing really well and am thankful for that!!!

I did have a "suspicious flat, black spot removed by dermatologist today. I am confident it will be "benign"!!!

Leaving everyone here warm, gentle hugs. Have a great day!!! Much love...Clay

DapperButch · 08-13-2014, 05:23 PM

Quote:

Originally Posted by clay

YAY! My CEA levels are .7!!! My 3 year anniversary is Dec. 9 and I can go for 5 years (unless become symptomatic) before next colonoscopy!! Hip Hip Hooray!!!

I am doing really well and am thankful for that!!!

I did have a "suspicious flat, black spot removed by dermatologist today. I am confident it will be "benign"!!!

Leaving everyone here warm, gentle hugs. Have a great day!!! Much love...Clay

Congrats, Clay! 5 years? Wow, that's the same schedule all adults over age 50 use, isn't it?

clay · 08-13-2014, 06:04 PM

Quote:

Originally Posted by DapperButch

Congrats, Clay! 5 years? Wow, that's the same schedule all adults over age 50 use, isn't it?

Thanks, Dapper!!!

Don't know about that....my previous oncologist said every year for 5 years Post Hemicolectomy!

My newest oncologist follows a different guideline. It is individualized for the most part, I assume!

I am just happy with my progress each subsequent year!!!

LeftWriteFemme · 08-25-2014, 10:36 PM

The rubber met the road when my sponsee was going through the chemo......but with the radiation she seems to be laying the rubber down. She is wiped out and it's only day 5 of a 28 day sentence. I am wracking my brain to think of things to lift her spirits. She is taking the treatments during her lunch hour and then going back to work. She is walking 4 or 5 nights a week to keep her strength up, making plenty of meetings and eating really well. The only think I've thought of so far is to feed her juvenile sense of humor......I will post the clip I sent her today, but if anyone has anymore dignified suggestions please let me know......if you have less dignified suggestions....I'll take those too, I really want to help her stay chipper.

Tommi · 08-26-2014, 01:43 AM

LWF,
Sleep is nice.
Eat lotsa Banana popsicles, fudgesicles, save the sticks , tie them up and make little rafts to float down the street in the rain

Send her Something fun in the daily mail. A crayon a day with a blank piece of paper with a scribble on it. She has to turn the scribble into a picture.

Start a story about her journey, mail it to her, have her write a paragraph or page, and send it back to you, add to it, return it, etc.

Buy her 4 pairs of Funky socks.mix em up, send a mismatched pair one day, another mismatched pair the next week, then a match to one of them, etc.
Then her treatment will be over.

Wish her the best.

clay · 08-26-2014, 07:42 AM

Quote:

Originally Posted by clay

I did have a "suspicious flat, black spot removed by dermatologist today. I am confident it will be "benign"!!!

Leaving everyone here warm, gentle hugs. Have a great day!!! Much love...Clay

It WAS benign. The spot itself is healing slower than I prefer! .......

Tommi · 09-10-2014, 02:31 PM

For over a year, I have learned to really appreciate every single day, and the steadfastness of one hella- caretaker.

I went in for my 11 month post-radiation pelvic exam-follow-up exam at 7:30 AM. I found the 405 freeway roundtrip to be the most harrowing part of my day.

And, for my dear ones day to days. I have watched Alzheimer's steal the memories of the days and nights of her beloved Mom. The last few weeks getting more and more difficult with the daily routines of getting Mom to bathe, to dress and to eat. Her Dad in and out of the hospital over the last year for CHF and other ailments. Numerous agencies of daytime caregivers who come and go.

Evenings after work, and on weekends she cooks full meals, setting down together to eat, and the chit chat of what is seen and heard. Knowing her elderly parents living with her, are safe, at home, loved, and cared for is a journey of true love and devotion. You don't know from day to day where this life journey carries you, just that we are along for the ride, and hope to have both oars in the water, steering as best we can, and enjoying the scenery

DapperButch · 09-10-2014, 05:30 PM

Quote:

Originally Posted by clay

It WAS benign. The spot itself is healing slower than I prefer! .......

I'm so glad to hear this, Clay, Congrats!!!

Tommi · 09-22-2014, 10:49 PM

I held my breath when the Gyneco-Oncologists nurse returned my call this afternoon.

"""Your test results from your Sept 10th tests all came back negative.""" Breathing again, I said thank you, and, see you in 6 months.

One year ago Today I was 1/2 way through radiation therapy for recurring endometrial cancer. �� which came back after a nine year absence. I had just met someone who stood by me night and day and It all okay.

2Nd time around, I feel privileged to call & not wait for that little note in the mail box. ��

I feel every day is a gift all wrapped up new and shiny.

my RickiRacer kitten Just brought me her curly pipe cleaner so I can toss it. She hockey pucks it across the hardwood floors, ricocheting and returning it for another toss. Life is good
Life is all good.

DapperButch · 09-23-2014, 05:38 AM

Quote:

Originally Posted by Tommi

I held my breath when the Gyneco-Oncologists nurse returned my call this afternoon.

"""Your test results from your Sept 10th tests all came back negative.""" Breathing again, I said thank you, and, see you in 6 months.

One year ago Today I was 1/2 way through radiation therapy for recurring endometrial cancer. �� which came back after a nine year absence. I had just met someone who stood by me night and day and It all okay.

2Nd time around, I feel privileged to call & not wait for that little note in the mail box. ��

I feel every day is a gift all wrapped up new and shiny.

my RickiRacer kitten Just brought me her curly pipe cleaner so I can toss it. She hockey pucks it across the hardwood floors, ricocheting and returning it for another toss. Life is good
Life is all good.

Ah, Tommi, so glad to hear, so glad to hear. Congratulations!

I delayed for a couple of weeks in calling to schedule my colonoscopy (I received a note in the mail). Finally made the call on Friday, but haven't heard back. This thread is a good reminder. I think I will call them again.

We all continue to be in this together, so I am glad when someone comes back to update. Congrats again.

clay · 09-23-2014, 07:33 AM

Yay, Tommi!!! Thank you for the update.
My tests are coming up in December, when I will be 3 years post op cancer free!!!
As DB said, this thread is a reminder...for us all...we have come long journeys!!! And to keep those appointments! And to call..and ask! It is our privilege to know ASAP!

Quote:

Originally Posted by Tommi

I held my breath when the Gyneco-Oncologists nurse returned my call this afternoon.

"""Your test results from your Sept 10th tests all came back negative.""" Breathing again, I said thank you, and, see you in 6 months.

One year ago Today I was 1/2 way through radiation therapy for recurring endometrial cancer. �� which came back after a nine year absence. I had just met someone who stood by me night and day and It all okay.

2Nd time around, I feel privileged to call & not wait for that little note in the mail box. ��

I feel every day is a gift all wrapped up new and shiny.

my RickiRacer kitten Just brought me her curly pipe cleaner so I can toss it. She hockey pucks it across the hardwood floors, ricocheting and returning it for another toss. Life is good
Life is all good.

Tommi · 09-23-2014, 02:53 PM

Quote:

Originally Posted by DapperButch

Ah, Tommi, so glad to hear, so glad to hear. Congratulations!

I delayed for a couple of weeks in calling to schedule my colonoscopy (I received a note in the mail). Finally made the call on Friday, but haven't heard back. This thread is a good reminder. I think I will call them again.

We all continue to be in this together, so I am glad when someone comes back to update. Congrats again.

Quote:

Originally Posted by clay

Yay, Tommi!!! Thank you for the update.
My tests are coming up in December, when I will be 3 years post op cancer free!!!
As DB said, this thread is a reminder...for us all...we have come long journeys!!! And to keep those appointments! And to call..and ask! It is our privilege to know ASAP!

Yes. Keep it up..
To ALL Survivors, Caretakers, Caring Family and Friends We can all walk the walk and talk the talk together. This kind of sharing is caring.

A favorite saying from a favorite meeting.."Keep coming back, it works if you work it and it won't if you don't "...

07-09-2014, 04:10 PM	#1
clay Practically Lives Here How Do You Identify?: Butch (Silver Fox) Dom Daddi Preferred Pronoun?: 50 Shades of Clay Darker & Deeper Relationship Status: married to my forever Join Date: May 2011 Location: salt air & sandy beaches Posts: 13,136 My Photo Gallery Thanks: 97,020 Thanked 31,666 Times in 7,748 Posts Rep Power: 21474864	^5, Tommi!!! YAY!!! Doing a happy dance for Tommi! Enjoy that popcorn, bud!!!! Whoohooo..... __________________ To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault

08-13-2014, 02:22 PM	#2
clay Practically Lives Here How Do You Identify?: Butch (Silver Fox) Dom Daddi Preferred Pronoun?: 50 Shades of Clay Darker & Deeper Relationship Status: married to my forever Join Date: May 2011 Location: salt air & sandy beaches Posts: 13,136 My Photo Gallery Thanks: 97,020 Thanked 31,666 Times in 7,748 Posts Rep Power: 21474864	YAY! My CEA levels are .7!!! My 3 year anniversary is Dec. 9 and I can go for 5 years (unless become symptomatic) before next colonoscopy!! Hip Hip Hooray!!! I am doing really well and am thankful for that!!! I did have a "suspicious flat, black spot removed by dermatologist today. I am confident it will be "benign"!!! Leaving everyone here warm, gentle hugs. Have a great day!!! Much love...Clay __________________ To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault

08-25-2014, 10:36 PM	#5
LeftWriteFemme Practically Lives Here How Do You Identify?: Daddy's good girl Join Date: Nov 2009 Location: Jersey Posts: 16,642 My Photo Gallery Thanks: 2,529 Thanked 12,285 Times in 5,184 Posts Rep Power: 21474868	The rubber met the road when my sponsee was going through the chemo......but with the radiation she seems to be laying the rubber down. She is wiped out and it's only day 5 of a 28 day sentence. I am wracking my brain to think of things to lift her spirits. She is taking the treatments during her lunch hour and then going back to work. She is walking 4 or 5 nights a week to keep her strength up, making plenty of meetings and eating really well. The only think I've thought of so far is to feed her juvenile sense of humor......I will post the clip I sent her today, but if anyone has anymore dignified suggestions please let me know......if you have less dignified suggestions....I'll take those too, I really want to help her stay chipper. __________________ Clicking on these dragon eggs will take you to my new erotic novella: Dragon Bait .........Hope you enjoy it! ________________________________________________ Please take a look at my work Click on flashing smilie to see my website To look at my Daddy/girl erotica book Click on pompom girl to see Elbows on the Table, Palms Flat

09-10-2014, 02:31 PM	#8
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,337 Times in 5,970 Posts Rep Power: 21474860	Caregivers deserve so much, and take so little. For over a year, I have learned to really appreciate every single day, and the steadfastness of one hella- caretaker. I went in for my 11 month post-radiation pelvic exam-follow-up exam at 7:30 AM. I found the 405 freeway roundtrip to be the most harrowing part of my day. And, for my dear ones day to days. I have watched Alzheimer's steal the memories of the days and nights of her beloved Mom. The last few weeks getting more and more difficult with the daily routines of getting Mom to bathe, to dress and to eat. Her Dad in and out of the hospital over the last year for CHF and other ailments. Numerous agencies of daytime caregivers who come and go. Evenings after work, and on weekends she cooks full meals, setting down together to eat, and the chit chat of what is seen and heard. Knowing her elderly parents living with her, are safe, at home, loved, and cared for is a journey of true love and devotion. You don't know from day to day where this life journey carries you, just that we are along for the ride, and hope to have both oars in the water, steering as best we can, and enjoying the scenery

09-22-2014, 10:49 PM	#10
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,337 Times in 5,970 Posts Rep Power: 21474860	This morning I called for results 12 days post tests. I held my breath when the Gyneco-Oncologists nurse returned my call this afternoon. """Your test results from your Sept 10th tests all came back negative.""" Breathing again, I said thank you, and, see you in 6 months. One year ago Today I was 1/2 way through radiation therapy for recurring endometrial cancer. �� which came back after a nine year absence. I had just met someone who stood by me night and day and It all okay. 2Nd time around, I feel privileged to call & not wait for that little note in the mail box. �� I feel every day is a gift all wrapped up new and shiny. my RickiRacer kitten Just brought me her curly pipe cleaner so I can toss it. She hockey pucks it across the hardwood floors, ricocheting and returning it for another toss. Life is good Life is all good.

08-26-2014, 01:43 AM	#6
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,337 Times in 5,970 Posts Rep Power: 21474860	LWF, Sleep is nice. Eat lotsa Banana popsicles, fudgesicles, save the sticks , tie them up and make little rafts to float down the street in the rain Send her Something fun in the daily mail. A crayon a day with a blank piece of paper with a scribble on it. She has to turn the scribble into a picture. Start a story about her journey, mail it to her, have her write a paragraph or page, and send it back to you, add to it, return it, etc. Buy her 4 pairs of Funky socks.mix em up, send a mismatched pair one day, another mismatched pair the next week, then a match to one of them, etc. Then her treatment will be over. Wish her the best.