The Mythical *Pass* for Differently-Abled People

[SuperFemme]

Snow, thanks for your amazing post, and I'll be back to address that in a moment.

I hope that I am conveying what I want to in this thread, and from the responses so far? I think I am...

Do I think the people in my world/life should know what TBI looks like? Yes. I do because we care about and love each other. So understanding each other is super important.

I do think it's up to me (in large part) to educate those in my immediate world. In a very honest way. That way when I tell people that I love 17 times in a half hour conversation that a dog chased me down the street today they don't light themselves on fire. Instead, they steer me somewhere else.

I made Snowy and Plato NUTS when balloon boy happened. I couldn't stop talking about it, being angry about it and looking for new information about it. I don't know how to stop myself when I perseverate. Which is awful.

Definition?: perseverate - psychology: repeat a response after the cessation of the original stimulus; "The subjects in this study perseverated"

Now, when I start to perseverate they grab me and say "Balloon Boy". Which is my cue that I'm doing my thing again. It's up to me to stop it though, otherwise I find myself alone while everyone else goes out and does something fun that does not involve "Balloon Boy".

I suffered seizures for a long time, but haven't had one in about a year now. Certain foods and activities brought seizures on. I didn't want anyone policing me and walking around next to me with a pillow just in case I went down. Over time I learned how to really work at NOT doing things that caused seizures.

So why am I sharing all this personal stuff? Because believe me, it puts me in a very vulnerable place. I know how mean people can be, and how sometimes things are funny. That aren't.

I just really want people who are NOT differently-abled to know that their love and empathy is appreciated. Knowing that people care is the best feeling in the world. Caveat? Letting me do things over and over again and feeling sorry for me harms me. It does not help me.

I understand the intentions behind feeling protective of someone with a different-ability, and I think it's great. What I find problematic is not holding us accountable for ourselves. It is disempowering to suggest a differently abled person cannot learn to self moderate.

I guess I don't want to be read differently. If that means giving someone who makes an asswipe statement the same consideration that you'd give a person with a different ability then so be it. That just means we're spreading the same amount of compassion around to everyone. Which is never a bad thing, right?

But I don't want special consideration. Because I have to live in the same world as the rest of you. With the same rules and laws. If I make a mistake, a police officer isn't going to give me special consideration. I'm going to get in the same kind of trouble as everyone else.

So to give the false security that rules do NOT apply to me is truly in the end, something that disables me further.

[SuperFemme]

I also want to give a shout out to June: Who has a special way of letting me know that I am just like everyone else here and must act accordingly. She either mocks me or tells me to get a job. Which I love. For some strange reason it makes me feel secure to know that I am as susceptible to the stink eye as the next person.

edit: as a fine example of brain injury i'd like to confess that I first posted this in the wrong thread. the misogyny/sexism thread. which i am sure made people think: wtf?

THEN I freaked out when it wasn't here, and was sure June deleted it because she found me a job.

[SuperFemme]

Ravfem? I loved your post. I feel like I just really got a peek at who you are, and I am impressed!

Apocalipstic? I want to reiterate again that I am NOT advocating for tough love, or for poor treatment of people who are differently-abled.

I think we all have different cognitive levels and that should be the first consideration when holding people accountable. I think using compassion, love and patience is always the right way to go, and I am not asking this community to dogpile on differently-abled people who break the rules.

What I *am* asking for is for people to consider what giving special treatment to somebody means. For everyone involved.

[ravfem]

Originally Posted by SuperFemme

I also want to give a shout out to June: Who has a special way of letting me know that I am just like everyone else here and must act accordingly. She either mocks me or tells me to get a job. Which I love. For some strange reason it makes me feel secure to know that I am as susceptible to the stink eye as the next person.

edit: as a fine example of brain injury i'd like to confess that I first posted this in the wrong thread. the misogyny/sexism thread. which i am sure made people think: wtf?

THEN I freaked out when it wasn't here, and was sure June deleted it because she found me a job.

ok first, this made me giggle.

Seriously though, i agree completely that when i am treated like everyone else, i really, really appreciate that and i admit that i immediately respect the person more because of it. It's like they are letting me know that no, i'm not special (well...not in that way anyway ), and that they respect me enough to treat me fairly, on the same level as "normal" people.

i've had people be afraid to touch my left arm/hand. Depending on my mood, that either hurts or pisses me off.

OH!! and another thing!! i soooooo much prefer it when people who have questions ask me, not the people who know me! Ask away!! i would love to educate you a little!!

[christie]

Originally Posted by SuperFemme

I understand the intentions behind feeling protective of someone with a different-ability, and I think it's great. What I find problematic is not holding us accountable for ourselves. It is disempowering to suggest a differently abled person cannot learn to self moderate.

I guess I don't want to be read differently. If that means giving someone who makes an asswipe statement the same consideration that you'd give a person with a different ability then so be it. That just means we're spreading the same amount of compassion around to everyone. Which is never a bad thing, right?

But I don't want special consideration. Because I have to live in the same world as the rest of you. With the same rules and laws. If I make a mistake, a police officer isn't going to give me special consideration. I'm going to get in the same kind of trouble as everyone else.

So to give the false security that rules do NOT apply to me is truly in the end, something that disables me further.

SF -

I snipped your post for brevity.

I wanted to clarify that my viewing my son's experience through a different lens (or viewing a DA's post thru a different lens) doesn't mean that I don't hold him (or them) to the same standard. If anything, in my son's case, he is held to a higher standard with me. Its my job to ensure he has the skill set necessary for the world with the same rules/laws/expectations as those without his challenges.

I use the *lens* as part of my process in trying to figure out how he thinks. How he came to whatever place he is in - because for me, if I can figure out his perspective (which is usually so very different than mine) then I have a starting point to address the specific issue.

I don't think this is coddling him or giving him the false sense of security you mention. This is, through lots of trial and error, what works best for him. I don't expect others to go through the same interaction process with him, but more that he has the skills to self monitor/reflect rather than standing in the midst of a heated interaction with someone and not have a clue as to how he got there. He doesn't get to be an asswipe any more than anyone else does - probably less because I never want him to use his challenges as a crutch/excuse or pass.

[SuperFemme]

Originally Posted by christie0918

SF -

I snipped your post for brevity.

I wanted to clarify that my viewing my son's experience through a different lens (or viewing a DA's post thru a different lens) doesn't mean that I don't hold him (or them) to the same standard. If anything, in my son's case, he is held to a higher standard with me. Its my job to ensure he has the skill set necessary for the world with the same rules/laws/expectations as those without his challenges.

I use the *lens* as part of my process in trying to figure out how he thinks. How he came to whatever place he is in - because for me, if I can figure out his perspective (which is usually so very different than mine) then I have a starting point to address the specific issue.

I don't think this is coddling him or giving him the false sense of security you mention. This is, through lots of trial and error, what works best for him. I don't expect others to go through the same interaction process with him, but more that he has the skills to self monitor/reflect rather than standing in the midst of a heated interaction with someone and not have a clue as to how he got there. He doesn't get to be an asswipe any more than anyone else does - probably less because I never want him to use his challenges as a crutch/excuse or pass.

I think I mixed up a post with responding to what you wrote about and speaking to my own (adeles) feelings/experiences.

I didn't at all mean to imply that you coddle you son. If I did I want to apologize to you, because that would be an awful thing to say. I smiled when you said "Bratboy" and knew from what you wrote that you are all kinds of great as a mother.

I totally am for giving consideration to *where* a person is coming from, but not so much for allowing challenges as a crutch/excuse (which you worded so well, thanks).

I think I wish we could give everyone consideration because it is not just different abledness that causes a post to read bad. It could be a bad day, a break up, a death in the family or a million other things that leads to an asswipe post.

I hope I explained this better?

[christie]

Originally Posted by SuperFemme

I think I mixed up a post with responding to what you wrote about and speaking to my own (adeles) feelings/experiences.

I didn't at all mean to imply that you coddle you son. If I did I want to apologize to you, because that would be an awful thing to say. I smiled when you said "Bratboy" and knew from what you wrote that you are all kinds of great as a mother.

I totally am for giving consideration to *where* a person is coming from, but not so much for allowing challenges as a crutch/excuse (which you worded so well, thanks).

I think I wish we could give everyone consideration because it is not just different abledness that causes a post to read bad. It could be a bad day, a break up, a death in the family or a million other things that leads to an asswipe post.

I hope I explained this better?

Please don't think I thought you were saying I coddled my son. What I know is that just as unique as the DA's are - so are the nonDA's! What works for us isn't necessarily going to work with another Aspie/ODD/ADHD/(pick an acronym!) Just as you and those close to you have done, I think we all find what works in interactions - DA or not.

I like to think that I am a great mother - or at least the greatest mother I am capable of being! Thanks, tho - your words mean a lot.

I think Snow has a great point in those who continue to blow past the boundaries, time and time again, despite folks having taken the time and energy and patience to try and help the DA understand the disconnect.

I don't know what the answer is - but I find that with Bratboy, ignoring the unwanted behavior usually gets results. The moment I explode with, "STOP TAPPING ME ON THE FUCKING ARM", he takes that 179IQd DA brain and records it for future reference that that is a weakness and must be exploited at every possible turn.

I also find this works well with the overly needy dog. Cesar Millan has something going with the communicating with energy as opposed to words. Maybe we have to find the language the other person understands. Maybe, there is no common language and we need to resort to energy.

[Plato]

Originally Posted by christie0918

SF -
.... If anything, in my son's case, he is held to a higher standard with me. Its my job to ensure he has the skill set necessary for the world with the same rules/laws/expectations as those without his challenges.

I use the *lens* as part of my process in trying to figure out how he thinks. How he came to whatever place he is in - because for me, if I can figure out his perspective (which is usually so very different than mine) then I have a starting point to address the specific issue.

I don't think this is coddling him or giving him the false sense of security you mention. This is, through lots of trial and error, what works best for him. He doesn't get to be an asswipe any more than anyone else does - probably less because I never want him to use his challenges as a crutch/excuse or pass.

This is an example of awesome parenting, imo, and NOT head-patting AT ALL!!

[christie]

Originally Posted by Plato

This is an example of awesome parenting, imo, and NOT head-patting AT ALL!!

Thank you for your kind words, but I didn't post it to have any sort of recognition. I wanted to talk about how I process with DA's and how it might actually not be fair to the nonDA's - because I don't give them the same amount of energy in trying to figure out their reality.

Am I being preferrential in some way - holding the DA to the same expectation as a nonDA but allowing more processing? Its something for me to look at, for certain.

[SuperFemme]

Originally Posted by christie0918

Thank you for your kind words, but I didn't post it to have any sort of recognition. I wanted to talk about how I process with DA's and how it might actually not be fair to the nonDA's - because I don't give them the same amount of energy in trying to figure out their reality.

Am I being preferrential in some way - holding the DA to the same expectation as a nonDA but allowing more processing? Its something for me to look at, for certain.

As you said, nonDA's have a complete set of things that would garner room for processing as well.

I don't have an exact answer for you. Before we are DA or non DA we are human, susceptible to human error.