Cancer Support and Caregivers Who Are Trail Blazers!

girlin2une · 07-14-2015, 09:14 PM

thank you everyone.
steph

Luv · 08-02-2015, 11:20 PM

Has anyone here had to deal with bone marrow cancer either yourself or someone you know? ,What can you share with me? Moms 82 and a few weeks before had congestive heart failure

Daisy Chain · 08-03-2015, 03:53 AM

Hello Luv,

I`m so sorry to hear of your Mom. Personally no, I am in remission from blood cancer and dont know anyone who has battled bone marrow cancer.

Keep dropping by here though....someone may do. The people here are very kind and encouraging I have found so it will be a good resource for comfort and support and hopefully more information.

Sending you and your Mom love and strength.

Daisy

Quote:

Originally Posted by Luv

Has anyone here had to deal with bone marrow cancer either yourself or someone you know? ,What can you share with me? Moms 82 and a few weeks before had congestive heart failure

Tommi · 08-03-2015, 08:42 AM

Quote:

Originally Posted by Luv

Has anyone here had to deal with bone marrow cancer either yourself or someone you know? ,What can you share with me? Moms 82 and a few weeks before had congestive heart failure

Hello Luv,

The thing with cancer, it affects folks in different ways. One really great resource is the Oncology office of her doctor. Usually have a family liaison to help you and give you advice, diets, cautions, etc.

With the CHF and new Medications in her life, all things considered, being well nourished, hydrated and warm is a plus. If chemo/radiation is proposed ask them the best and worse outcomes for Mom.

If biopsy confirmed, histology of cells identified, MRI results, Cancer lab work is all done , get the Primary Doc and Oncologist talking to each other. American Cancer Society has free guides and booklets on line that you can order.

Fatigue, pain, loss of appetite, inability to get up and down easily, extreme caution on traveling, stairs, etc. , as bones fractures aren't something to add on top of it.

Give her fresh flowers to look at.
and a soft fuzzy teddy bear to hold tight against her achy parts when no one I'd there to hug her.

Much love and positive protective bubbles to you and Mom.

DapperButch · 09-03-2015, 04:16 PM

Hey, guys, I had a colonoscopy today, and I am in the clear!

Only one 3mm polyp, so the next one is in one year!

Daisy Chain · 09-03-2015, 04:22 PM

Thats WONDERFUL NEWS !!!!!!!!!!!

So So pleased for you !!

*big smiles* Daisy

Quote:

Originally Posted by DapperButch

Hey, guys, I had a colonoscopy today, and I am in the clear!

Only one 3mm polyp, so the next one is in one year!

clay · 09-03-2015, 06:31 PM

Quote:

Originally Posted by DapperButch

Hey, guys, I had a colonoscopy today, and I am in the clear!

Only one 3mm polyp, so the next one is in one year!

YAY! This is great news DB! Thanks for sharing!

Daisy Chain · 09-08-2015, 02:09 PM

Hello all, hope everyone is doing well and enjoying happy healthy days.

I went for my 4th antibody therapy treatment today, 4th of 12 every 2 months for 2 years, then I`m on my own !

Its usually given by drip which takes 4 hours to go through but its changed now to a 5 minute injection !!

Problem was I had to wait for the drug to arrive at daycare and it also took 40mins and several goes to get a canula in me as and I quote...`my veins are crap, theres just nothing there, they are so fine, they like to hide, oh its blown again and they dont even have any bounce !`....after heat packs, hot water hand washing and a few good slaps we got there ! If only I could have the pre meds, in tablet form I would be in and out.

Anyhow I`m not whining, just sharing. I still think I am privileged to live in a country where care is available, its not for some, and I can go home at the end of it, always a plus !

I would say this though, I`m always a little melancholy to go there, it takes me back to my `ill place` which I manage to keep on the sidelines of my life on the whole. And also brings thoughts of others whom I have sat alongside having treatment and who are no longer with us. Which in turn makes me value every day more.

Anyway, chin up buttercup !

Love to you all, Daisy

Tommi · 09-21-2015, 04:40 PM

Just checkin in. Reading everyone's posts. A valuable reminder, we are still here, and some, like Daisy Chain still doing the active battles.

That "place" we sometimes see but can't find on a map, can visit, but never want to stay. We can't take anyone with us, without road signs, posted limits, or directions.

Knowing that I am here, and find myself not visiting that place so often, and knowing every single day and every single person and smile is most important.

My Minds Book of Good Memories helps to keep me on the right road, and my plans for the future point to a map on my wall. Sierra Club world map is posted on my kitchen wall, with post it notes of today and tomorrow things to do, places to go. Next week Cleveland, November Galapagos.

Around me are happy pictures, we celebrated my first real tattoo at Benihana's (after my pelvic radiation dot tattoo's, I got Kanji Master script, on my arm, and in my signature below), Our 2nd year anniversary, which was almost two years to the day, after my re-diagnosis, and our Honeymoon Photo in May, also at Benihana's. That is our Friday night dinner place, we celebrate something on those nights, it is my way of marking the road behind, and knowing, that ahead there are Friday nights I will be celebrating my life. In the last two years we have celebrated life, Pictures of two beautiful couples that were married, and in whose wedding we were proud to be part of.

Roses and plumeria blooming all around the house, all year long, to remind me of the natural beauty and smells of this wonderful planet.

All this helps keep me in the place I want to be. Looking out the window, I see the need to refill the hummingbird feeder, so my cat can chatter through the glass, and the little birds can twitter about happy to have a drink in shade, in this horrible hundred degree heat.

I have places to go and things to do. I even forgot about, missed the 6 month follow-up oncologists appointment, now post-poned till mid Oct. and I didn't panic. Maybe because I was dealing with a broken foot, a trip to see the Steelers and my sister I hadn't seen in 25+ years. Taking the wife to meet my estranged family. What a hoot that was, and they welcomed her with open arms.

Since that "place" took me by such surprise, that May of 2004, I am happy to visit BFP and know we are still here, can keep coming back, and understand , those moments, those nights and days, and the life of those interrupted.

.

Love ,
Tommi

09-03-2015, 04:16 PM	#5
DapperButch Roadster Guy How Do You Identify?: FTM, Stone Butch Preferred Pronoun?: He Join Date: Nov 2009 Location: Northeast Posts: 7,745 My Photo Gallery Thanks: 26,545 Thanked 26,810 Times in 5,772 Posts Rep Power: 21474858	UPDATE Hey, guys, I had a colonoscopy today, and I am in the clear! Only one 3mm polyp, so the next one is in one year! __________________ -Dapper Are you educated or indoctrinated?

09-21-2015, 04:40 PM	#9
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,337 Times in 5,970 Posts Rep Power: 21474860	Melancholy Ville, just beyond... Just checkin in. Reading everyone's posts. A valuable reminder, we are still here, and some, like Daisy Chain still doing the active battles. That "place" we sometimes see but can't find on a map, can visit, but never want to stay. We can't take anyone with us, without road signs, posted limits, or directions. Knowing that I am here, and find myself not visiting that place so often, and knowing every single day and every single person and smile is most important. My Minds Book of Good Memories helps to keep me on the right road, and my plans for the future point to a map on my wall. Sierra Club world map is posted on my kitchen wall, with post it notes of today and tomorrow things to do, places to go. Next week Cleveland, November Galapagos. Around me are happy pictures, we celebrated my first real tattoo at Benihana's (after my pelvic radiation dot tattoo's, I got Kanji Master script, on my arm, and in my signature below), Our 2nd year anniversary, which was almost two years to the day, after my re-diagnosis, and our Honeymoon Photo in May, also at Benihana's. That is our Friday night dinner place, we celebrate something on those nights, it is my way of marking the road behind, and knowing, that ahead there are Friday nights I will be celebrating my life. In the last two years we have celebrated life, Pictures of two beautiful couples that were married, and in whose wedding we were proud to be part of. Roses and plumeria blooming all around the house, all year long, to remind me of the natural beauty and smells of this wonderful planet. All this helps keep me in the place I want to be. Looking out the window, I see the need to refill the hummingbird feeder, so my cat can chatter through the glass, and the little birds can twitter about happy to have a drink in shade, in this horrible hundred degree heat. I have places to go and things to do. I even forgot about, missed the 6 month follow-up oncologists appointment, now post-poned till mid Oct. and I didn't panic. Maybe because I was dealing with a broken foot, a trip to see the Steelers and my sister I hadn't seen in 25+ years. Taking the wife to meet my estranged family. What a hoot that was, and they welcomed her with open arms. Since that "place" took me by such surprise, that May of 2004, I am happy to visit BFP and know we are still here, can keep coming back, and understand , those moments, those nights and days, and the life of those interrupted.. Love , Tommi Last edited by Tommi; 09-21-2015 at 04:46 PM.

07-14-2015, 09:14 PM	#1
girlin2une Senior Member How Do You Identify?: submissive queer stone femme Preferred Pronoun?: she, her Join Date: Jul 2014 Location: Canada Posts: 3,827 My Photo Gallery Thanks: 3,752 Thanked 3,845 Times in 856 Posts Rep Power: 21474851	thank you everyone. steph

08-02-2015, 11:20 PM	#2
Luv Member How Do You Identify?: .... Relationship Status: .. Join Date: Mar 2010 Location: ..... Posts: 753 My Photo Gallery Thanks: 1,199 Thanked 1,217 Times in 367 Posts Rep Power: 12549741	Has anyone here had to deal with bone marrow cancer either yourself or someone you know? ,What can you share with me? Moms 82 and a few weeks before had congestive heart failure

09-08-2015, 02:09 PM	#8
Daisy Chain Member How Do You Identify?: Femme Preferred Pronoun?: she Relationship Status: Hy calls me Hys Kitten Join Date: May 2015 Location: 2nd star to the right and straight on til morning Posts: 729 My Photo Gallery Thanks: 1,814 Thanked 1,809 Times in 447 Posts Rep Power: 0	Hello all, hope everyone is doing well and enjoying happy healthy days. I went for my 4th antibody therapy treatment today, 4th of 12 every 2 months for 2 years, then I`m on my own ! Its usually given by drip which takes 4 hours to go through but its changed now to a 5 minute injection !! Problem was I had to wait for the drug to arrive at daycare and it also took 40mins and several goes to get a canula in me as and I quote...`my veins are crap, theres just nothing there, they are so fine, they like to hide, oh its blown again and they dont even have any bounce !`....after heat packs, hot water hand washing and a few good slaps we got there ! If only I could have the pre meds, in tablet form I would be in and out. Anyhow I`m not whining, just sharing. I still think I am privileged to live in a country where care is available, its not for some, and I can go home at the end of it, always a plus ! I would say this though, I`m always a little melancholy to go there, it takes me back to my `ill place` which I manage to keep on the sidelines of my life on the whole. And also brings thoughts of others whom I have sat alongside having treatment and who are no longer with us. Which in turn makes me value every day more. Anyway, chin up buttercup ! Love to you all, Daisy