Cancer Support and Caregivers Who Are Trail Blazers!

[Teddybear]

Surgery went well just a few bumps in the road. Blood sugar bottomed out and so did blood pressure.

They gave me some orange juice they put sugar in however they didn't stir the sugar in to dissolve so it was real nasty tasting. That was enough to bring my blood pressure up.

I start chemo on Monday since we dont have the DNA results back yet. Keep your fingers crossed we get them soon.

[easygoingfemme]

Teddbear, How are you feeling from the port being put in? Hopefully you're not too uncomfortable. Mine hurt a lot. Fingers crossed you get the test results soon and that Monday goes as alright as it can. Do you know how long your chemo takes to administer?
I suggest bringing something like ginger chews or mints. When they flush your port between things, you can taste the saline and it's gross. I always put a ginger mint in my mouth before they did it to block the taste. Will be thinking of you.

[~ocean]

Originally Posted by easygoingfemme

Teddbear, How are you feeling from the port being put in? Hopefully you're not too uncomfortable. Mine hurt a lot. Fingers crossed you get the test results soon and that Monday goes as alright as it can. Do you know how long your chemo takes to administer?
I suggest bringing something like ginger chews or mints. When they flush your port between things, you can taste the saline and it's gross. I always put a ginger mint in my mouth before they did it to block the taste. Will be thinking of you.

at first my port was easy to deal with ~ then during one chemo treatment a nurse pulled the needle out fast and hard ~ I of course yelled out OUCH she responded with don't be a baby that didn't hurt . It bed for 2 day ~ bruised inside and out ~ and twisted. Every treatment after that the head of nursing at the cancer center had to put the needle in place ~ to this day it hurts, even when the shower water beats down on my skin. (((((( Teddy, easy going, rusted rims, )))))))) 2019 will be a better year.

[~ocean]

ooops bled for 2 days.

[Teddybear]

Originally Posted by ~ocean

ooops bled for 2 days.

I probably would have been in bed for 2 days

[JDeere]

Sending healing vibes to all who are caregiving, going into treatment or recovering.

[Teddybear]

It’s beeen awhile since I have posted an update.

First off I hope everyone had a Merry Christmas and will have a happy New Year.

Me and the chemo are not Compatible. If my insurance company hadn’t denied the immunotherapy back in November I don’t believe I would’ve suffer what I have suffered. I missed 2 treatments before they told us it was denied. Then another 2 weeks to get me back on the schedule.

Thanksgiving day I was at the Er due to now having 2 PE’s. Let tell y’all that was painful. I thought I was having a major heart attack. They fixed me up really quick and sent me home. So far no more blood clots.

Then Christmas Eve I woke up with a small knot in the middle of my chest. On Christmas Day it was bigger and drained some nasty stuff. So the day after it was even bigger and sorer then the last 2 days so I went to the cancer center to see if I needed to go to the Er again they looked at it gave me some instructions and sent me home. I followed the instructions to the T.

I ended up going back yesterday because now it is bigger at least 5 times. They looked at me and it has turned into cellulitis and again I was dehydrated even thought I had drank more than 60 bottles of water in less than a week. So back up in the infusion center for fluids and antibiotics.

Today I have the energy I have after about 4 days post treatment.

While running labs most came back good except the cancer markers test. In less then 3 months they have increased by 120 points. Which isn’t good. Normal range is less that 40. My first test was 335 and now it is 457. Hopefully the new insurance company will go ahead an approved the immunotherapy.

I will fight this. I will do everything possible to beat this. I have everything I have ever wanted and I know it couldn’t have taken me this long to find not to have it last a long time.

I hope each one of y’all are having better luck then we are having with this.

[easygoingfemme]

Originally Posted by ~ocean

at first my port was easy to deal with ~ then during one chemo treatment a nurse pulled the needle out fast and hard ~ I of course yelled out OUCH she responded with don't be a baby that didn't hurt . It bed for 2 day ~ bruised inside and out ~ and twisted. Every treatment after that the head of nursing at the cancer center had to put the needle in place ~ to this day it hurts, even when the shower water beats down on my skin. (((((( Teddy, easy going, rusted rims, )))))))) 2019 will be a better year.

Oh ouch. I can feel that and it didn't even happen to me. I'm sorry that was your experience and that you have ongoing pain from it.

[Teddybear]

Originally Posted by easygoingfemme

Teddbear, How are you feeling from the port being put in? Hopefully you're not too uncomfortable. Mine hurt a lot. Fingers crossed you get the test results soon and that Monday goes as alright as it can. Do you know how long your chemo takes to administer?
I suggest bringing something like ginger chews or mints. When they flush your port between things, you can taste the saline and it's gross. I always put a ginger mint in my mouth before they did it to block the taste. Will be thinking of you.

I am good. The surgeon put what looked like super glue on it instead of stitches. It came off yesterday just like glue would.

I have been good and not lifted or pulled anything so it feels ok.

My treatments are 6 hours the first day then they send me home with a pump for 42 more hours. Then back in 2 weeks if I stay on chemo. If I go to immunotherapy it is once every 3 weeks.

I will be on this the rest of my life which I plan on it being a LONG time