Cancer Support and Caregivers Who Are Trail Blazers!

~ocean · 11-08-2018, 07:22 PM

ooops bled for 2 days.

Teddybear · 11-12-2018, 12:18 AM

Quote:

Originally Posted by ~ocean

ooops bled for 2 days.

I probably would have been in bed for 2 days

JDeere · 11-13-2018, 09:28 PM

Sending healing vibes to all who are caregiving, going into treatment or recovering.

Teddybear · 12-29-2018, 03:34 PM

It’s beeen awhile since I have posted an update.

First off I hope everyone had a Merry Christmas and will have a happy New Year.

Me and the chemo are not Compatible. If my insurance company hadn’t denied the immunotherapy back in November I don’t believe I would’ve suffer what I have suffered. I missed 2 treatments before they told us it was denied. Then another 2 weeks to get me back on the schedule.

Thanksgiving day I was at the Er due to now having 2 PE’s. Let tell y’all that was painful. I thought I was having a major heart attack. They fixed me up really quick and sent me home. So far no more blood clots.

Then Christmas Eve I woke up with a small knot in the middle of my chest. On Christmas Day it was bigger and drained some nasty stuff. So the day after it was even bigger and sorer then the last 2 days so I went to the cancer center to see if I needed to go to the Er again they looked at it gave me some instructions and sent me home. I followed the instructions to the T.

I ended up going back yesterday because now it is bigger at least 5 times. They looked at me and it has turned into cellulitis and again I was dehydrated even thought I had drank more than 60 bottles of water in less than a week. So back up in the infusion center for fluids and antibiotics.

Today I have the energy I have after about 4 days post treatment.

While running labs most came back good except the cancer markers test. In less then 3 months they have increased by 120 points. Which isn’t good. Normal range is less that 40. My first test was 335 and now it is 457. Hopefully the new insurance company will go ahead an approved the immunotherapy.

I will fight this. I will do everything possible to beat this. I have everything I have ever wanted and I know it couldn’t have taken me this long to find not to have it last a long time.

I hope each one of y’all are having better luck then we are having with this.

Teddybear · 01-28-2019, 06:07 PM

This is a hard post to write. So I haven’t taken a cancer treatment since 19 December was put in the hospital on the 30th because of said cancer treatment and had to have surgery on the 31st.

My insurance company the new one has been delaying giving me approval for my new treatment. We were told to weeks ago that my cancer is back active and that we need to start a treatment soon.

Thursday of last week I was rushed back to the ER and was given fluids and sent home because of some lab work. I spoke to my doctors on Friday who said I needed to come back into the hospital and get some more fluids at the infusion center. While there I suffered a pain attacked it almost doubled me over when I was sitting in a chair my doctor came up and talk to me to tell me that my liver which has cancer in it also is inflamed and that we’re almost at the point to where If we don’t start treatment soon we are going to be too far gone to have to be able to do anything.

This is been a very emotional weekend for me and my wife. We had to have that talk of what if it doesn’t happen I don’t start new treatment and I suffer the ravages of this disease. It was the hardest thing I’ve ever had to do in my life coming face-to-face with my morality and the fact that I may end up leaving her alone which is the one thing I don’t want to do.

I had written a nasty gram on my insurance website last week to To which they responded the following morning but because I was back in the hospital I had no chance of answering them until you know close to five as in what information they needed they informed me they couldn’t work on it until Monday I told them they would have their information when I came to work Monday because we all know Facebook gets hacked so I didn’t wanna put anything out there to hang around too long. So they came to work at 8 and at 805 I got a message from them of who was going to be handling my case. At 10:33 I received a call from said person who is handling my case to explain to me exactly what all they needed what all they had and what steps were going to be taken to expedite the approval process. A little over an hour later she called me back to let me know she had everything that she needed and that now the process begins to get approval and then I should have approval by Wednesday afternoon.

Please understand I appreciate everyone’s prayers thoughtfulness healing thoughts white light everything that you’ve sent my way during the last six months that I’ve been battling with this and I asked that you continue that but you also now add my wife for peace and calm Ness during this time as we walk our way through the insurance but our I appreciate everyone’s prayers thoughtfulness and healing thoughts WhiteLight everything that you’ve sent my way during the last six months that I’ve been battling with this and I asked that you continue that but you also now add my wife for peace and calm Ness during this time as we walk our way through the insurance bs.

Thank you for letting me vent thank you for listening and all my love to all of you you are part of my family

Wrang1er · 04-09-2019, 08:05 PM

My mom was unable to get her chemotherapy today due to extremely low neutrophils and potassium.

Tomorrow, I will be taking her to get her head shaved because her hair is falling out.

She's feeling pretty low right now.

homoe · 04-09-2019, 08:10 PM

Quote:

Originally Posted by Wrang1er

My mom was unable to get her chemotherapy today due to extremely low neutrophils and potassium.

Tomorrow, I will be taking her to get her head shaved because her hair is falling out.

She's feeling pretty low right now.

Sending good vibes your mom's way!

Maybe surprise mom tomorrow and get your own head shaved to show solidarity?

clay · 04-09-2019, 09:43 PM

Quote:

Originally Posted by Wrang1er

My mom was unable to get her chemotherapy today due to extremely low neutrophils and potassium.

Tomorrow, I will be taking her to get her head shaved because her hair is falling out.

She's feeling pretty low right now.

Wrang & mom......lots & lots of hugs!

I am sending healing energies & white light for her...and strength for you, my friend! Tell mom I send her my love....as always. You both are in my heart!

Tommi · 04-10-2019, 12:17 PM

I was diagnosed in March of 2004 with endometrial cancer. Had the radical surgery, and went on with life. In 2013, I had a recurrence, adenocarcinoma of the vaginal cuff (not identifying with that) , had internal and external radiation. Met the love of my life 2 weeks before that diagnosis. We married May 2, 2015.

I realized that I no longer think much about cancer . Anniversaries, trigger me, like going in for my annual EXAM from hell.
My wedding anniversary is next month, and I'll schedule my annual exam for sometime after that.

So, Just For Today, I listen to the birds, enjoy the flowers in my yard, and am thankful for...today.

11-08-2018, 07:22 PM	#1
~ocean Infamous Member How Do You Identify?: femme blows a kiss off my finger tips * Preferred Pronoun?: ~ hey girl ~ Relationship Status: ~ single & content ~ Join Date: Nov 2009 Location: Massachusetts ~coastal Posts: 7,905 My Photo Gallery Thanks: 22,958 Thanked 16,015 Times in 4,724 Posts Rep Power: 21474859	ooops bled for 2 days. __________________ ~ Always, ocean

12-29-2018, 03:34 PM	#4
Teddybear Senior Member How Do You Identify?: by my name Preferred Pronoun?: He, him Relationship Status: single Join Date: Jun 2010 Location: Here there everywhere. Posts: 2,097 My Photo Gallery Thanks: 4,620 Thanked 6,233 Times in 1,687 Posts Rep Power: 21474854	It’s beeen awhile since I have posted an update. First off I hope everyone had a Merry Christmas and will have a happy New Year. Me and the chemo are not Compatible. If my insurance company hadn’t denied the immunotherapy back in November I don’t believe I would’ve suffer what I have suffered. I missed 2 treatments before they told us it was denied. Then another 2 weeks to get me back on the schedule. Thanksgiving day I was at the Er due to now having 2 PE’s. Let tell y’all that was painful. I thought I was having a major heart attack. They fixed me up really quick and sent me home. So far no more blood clots. Then Christmas Eve I woke up with a small knot in the middle of my chest. On Christmas Day it was bigger and drained some nasty stuff. So the day after it was even bigger and sorer then the last 2 days so I went to the cancer center to see if I needed to go to the Er again they looked at it gave me some instructions and sent me home. I followed the instructions to the T. I ended up going back yesterday because now it is bigger at least 5 times. They looked at me and it has turned into cellulitis and again I was dehydrated even thought I had drank more than 60 bottles of water in less than a week. So back up in the infusion center for fluids and antibiotics. Today I have the energy I have after about 4 days post treatment. While running labs most came back good except the cancer markers test. In less then 3 months they have increased by 120 points. Which isn’t good. Normal range is less that 40. My first test was 335 and now it is 457. Hopefully the new insurance company will go ahead an approved the immunotherapy. I will fight this. I will do everything possible to beat this. I have everything I have ever wanted and I know it couldn’t have taken me this long to find not to have it last a long time. I hope each one of y’all are having better luck then we are having with this. __________________ I am ME take me as I am or leave me be..

01-28-2019, 06:07 PM	#5
Teddybear Senior Member How Do You Identify?: by my name Preferred Pronoun?: He, him Relationship Status: single Join Date: Jun 2010 Location: Here there everywhere. Posts: 2,097 My Photo Gallery Thanks: 4,620 Thanked 6,233 Times in 1,687 Posts Rep Power: 21474854	This is a hard post to write. So I haven’t taken a cancer treatment since 19 December was put in the hospital on the 30th because of said cancer treatment and had to have surgery on the 31st. My insurance company the new one has been delaying giving me approval for my new treatment. We were told to weeks ago that my cancer is back active and that we need to start a treatment soon. Thursday of last week I was rushed back to the ER and was given fluids and sent home because of some lab work. I spoke to my doctors on Friday who said I needed to come back into the hospital and get some more fluids at the infusion center. While there I suffered a pain attacked it almost doubled me over when I was sitting in a chair my doctor came up and talk to me to tell me that my liver which has cancer in it also is inflamed and that we’re almost at the point to where If we don’t start treatment soon we are going to be too far gone to have to be able to do anything. This is been a very emotional weekend for me and my wife. We had to have that talk of what if it doesn’t happen I don’t start new treatment and I suffer the ravages of this disease. It was the hardest thing I’ve ever had to do in my life coming face-to-face with my morality and the fact that I may end up leaving her alone which is the one thing I don’t want to do. I had written a nasty gram on my insurance website last week to To which they responded the following morning but because I was back in the hospital I had no chance of answering them until you know close to five as in what information they needed they informed me they couldn’t work on it until Monday I told them they would have their information when I came to work Monday because we all know Facebook gets hacked so I didn’t wanna put anything out there to hang around too long. So they came to work at 8 and at 805 I got a message from them of who was going to be handling my case. At 10:33 I received a call from said person who is handling my case to explain to me exactly what all they needed what all they had and what steps were going to be taken to expedite the approval process. A little over an hour later she called me back to let me know she had everything that she needed and that now the process begins to get approval and then I should have approval by Wednesday afternoon. Please understand I appreciate everyone’s prayers thoughtfulness healing thoughts white light everything that you’ve sent my way during the last six months that I’ve been battling with this and I asked that you continue that but you also now add my wife for peace and calm Ness during this time as we walk our way through the insurance but our I appreciate everyone’s prayers thoughtfulness and healing thoughts WhiteLight everything that you’ve sent my way during the last six months that I’ve been battling with this and I asked that you continue that but you also now add my wife for peace and calm Ness during this time as we walk our way through the insurance bs. Thank you for letting me vent thank you for listening and all my love to all of you you are part of my family __________________ I am ME take me as I am or leave me be..

04-10-2019, 12:17 PM	#9
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,337 Times in 5,970 Posts Rep Power: 21474860	Just for today I was diagnosed in March of 2004 with endometrial cancer. Had the radical surgery, and went on with life. In 2013, I had a recurrence, adenocarcinoma of the vaginal cuff (not identifying with that) , had internal and external radiation. Met the love of my life 2 weeks before that diagnosis. We married May 2, 2015. I realized that I no longer think much about cancer . Anniversaries, trigger me, like going in for my annual EXAM from hell. My wedding anniversary is next month, and I'll schedule my annual exam for sometime after that. So, Just For Today, I listen to the birds, enjoy the flowers in my yard, and am thankful for...today.

11-13-2018, 09:28 PM	#3
JDeere Practically Lives Here How Do You Identify?: Transgender Preferred Pronoun?: He/him/his Relationship Status: Single Join Date: Jul 2014 Location: Oklahoma Posts: 17,752 My Photo Gallery Thanks: 31,018 Thanked 28,833 Times in 9,708 Posts Rep Power: 21474865	Sending healing vibes to all who are caregiving, going into treatment or recovering.

04-09-2019, 08:05 PM	#6
Wrang1er Senior Member How Do You Identify?: Me, myself and I Join Date: Sep 2011 Location: Here Posts: 1,526 My Photo Gallery Thanks: 6,112 Thanked 7,043 Times in 1,354 Posts Rep Power: 21474851	My mom was unable to get her chemotherapy today due to extremely low neutrophils and potassium. Tomorrow, I will be taking her to get her head shaved because her hair is falling out. She's feeling pretty low right now.