Cancer Support and Caregivers Who Are Trail Blazers!

Dominique · 10-12-2011, 04:00 AM

Quote:

Originally Posted by DapperButch

I meant to come back to this post. Yellow band, do you happen to remember the name of the REI gloves? I have a hard time typing in gloves and I am not looking forward to struggling to type at work again this winter.

Hi Dapper, It's raining and the stinging hands woke me up. I'm typing in the gloves now. They are made by polartech, the brandname is manzella, comes in male and female and for typing and in the house I wear the warm. It's the lightest weight. They are very sharp and do not look like you are wearing an isotoner. Its available in a warmer and warmest. I also have the warmest. ($70.00) I bought them a size bigger and slip the hand gloved in the warm right inside the warmest. They are not bulky. Buy them now, my experience is they sell out quickly. Popular gloves.

I hope this helps you. This has saved me!

Novelafemme · 10-12-2011, 08:14 AM

the hospital just called and moved my surgery up again! now it's at 2pm!

i'm sneaking in a smallish cup of coffee and then taking the kiddos to school.

send good vibes and healing energy this way and i'll see you all soon.

Novelafemme · 10-19-2011, 02:06 PM

Hi Friends!

Got the path report back today and it isn't good. But....I have faith and am gonna take the bull by the horns and tackle this head on.

I'm also gonna take a break from the online world for a while, so if you don't hear from me please feel free to reach me via email: landphair@pharmacy.arizona.edu

so long for now and BE WELL, everyone!!!

DapperButch · 10-19-2011, 04:24 PM

Quote:

Originally Posted by CatalinaRose

Hi Friends!

Got the path report back today and it isn't good. But....I have faith and am gonna take the bull by the horns and tackle this head on.

I'm also gonna take a break from the online world for a while, so if you don't hear from me please feel free to reach me via email: landphair@pharmacy.arizona.edu

so long for now and BE WELL, everyone!!!

Hi, Catalina. I am so sorry.

Please know I am thinking about you and believing that you can beat whatever it is you are up against right now.

Thank you for posting your email so that we can contact you.

DapperButch · 10-27-2011, 08:09 PM

Debby? Catalinarose (I know she may not be here)? JustJo?

Everyone else?

Update for me:

Weather is getting colder, but hands do not seem to be getting worse in direct proportion. I hope this means that the neuropathy is abating. In my feet, no real change, unfortunately.

I continue with the supplements I started taking after the testing I did in Chicago, have done pretty good sticking to a vegan diet, but have done crappy with exercise follow through. I have big sleep problems (falling asleep, even with pills) and find that if I exercise in the morning I drag all day (after 3 weeks in a row of exercise this never did abate..which surprised me), and then after work I am of course wiped out from little sleep ...around 10pm I feel wide awake and can't sleep, and then the process starts all over again. This has been a problem my whole life and I will never have an evening/night job, so....I dunno.

I still have a significant amount of fatigue for being off of chemo for 6 months now, so I don't know what that is about. Granted, I have no information that tells me I shouldn't still be tired, but it doesn't make sense to me that I would still be tired.

I need to call my oncologist's office because I either missed an appointment or didn't call to schedule like I was supposed to, as I know it has been 3 months since I have seen her. Also, I do believe that I am due for a CAT scan.

Dominique · 10-28-2011, 02:37 AM

Quote:

Originally Posted by DapperButch

Weather is getting colder, but hands do not seem to be getting worse in direct proportion. I hope this means that the neuropathy is abating. In my feet, no real change, unfortunately.
.

Good morning Dapper...were you able to get those gloves at REI?

I'd love to see you type the neuropathy is gone!

JustJo · 10-28-2011, 06:53 AM

Hey everyone

Sorry I haven't been in for awhile. Feels like we're in a holding pattern. My mom is home at her own house (now sans car thanks to my sister), which is probably good as she would be driving and shouldn't be at this point.

She has a visiting nurse daily, an aide who comes every other day for a couple hours, and a friend who spends a good chunk of each day with her.

Her weight has dropped a little since leaving the hospital, and she struggles to eat and drink at all. Some days better than others...but too frequently I hear that she managed half a carton of yogurt for the day. She was eating better in the hospital, even though she complained about the quality of the food.

She's on the TPN 24 hours a day...so that's enough food and liquid to sustain her life, but not to thrive. She really does need to eat and drink as well.

The timeframe for the Avastin clearing her system has passed and they are now talking about the plan for seeing what the rest of the mass is. What they find will determine whether she gets on a plane to come here, or has to stay there for another procedure.

She's 2/3 of the way through her chemo...and is now describing it as a race....can she eat and drink enough when she's sick and exhausted and everything tastes like metal to be strong enough to get through it? She has the expectation that, once the chemo is over, she will be able to eat and drink and have no trouble. According to the doctor, that may not be the case...but I'm glad she believes that. It can't hurt.

I know she's happier to be out of the hospital and at her own house, but I'm also worried about the feeling she frequently describes....that she now understands how people long ago just took to their beds, turned their face to the wall, refused to eat or drink, and died. She says she feels like that herself most days.

It's hard to hear.

deb_U_taunt · 10-29-2011, 09:34 AM

Okay, saying this with my mommy voice "make the appt!"

I hope it means your neuropathy is abating, too. Mine is feeling a bit better since starting neurontin and swimming. The swimming in the evenings has helped me sleep, too.

Quote:

Originally Posted by DapperButch

Debby? Catalinarose (I know she may not be here)? JustJo?

Everyone else?

Update for me:

Weather is getting colder, but hands do not seem to be getting worse in direct proportion. I hope this means that the neuropathy is abating. In my feet, no real change, unfortunately.

I continue with the supplements I started taking after the testing I did in Chicago, have done pretty good sticking to a vegan diet, but have done crappy with exercise follow through. I have big sleep problems (falling asleep, even with pills) and find that if I exercise in the morning I drag all day (after 3 weeks in a row of exercise this never did abate..which surprised me), and then after work I am of course wiped out from little sleep ...around 10pm I feel wide awake and can't sleep, and then the process starts all over again. This has been a problem my whole life and I will never have an evening/night job, so....I dunno.

I still have a significant amount of fatigue for being off of chemo for 6 months now, so I don't know what that is about. Granted, I have no information that tells me I shouldn't still be tired, but it doesn't make sense to me that I would still be tired.

I need to call my oncologist's office because I either missed an appointment or didn't call to schedule like I was supposed to, as I know it has been 3 months since I have seen her. Also, I do believe that I am due for a CAT scan.

DapperButch · 11-07-2011, 06:52 PM

Quote:

Originally Posted by Debby

Okay, saying this with my mommy voice "make the appt!"

I go on Wednesday.

P.S. Please note the above post. You are the official "hand holderer" of the thread. We voted on it last week.

10-27-2011, 08:09 PM	#5
DapperButch Roadster Guy How Do You Identify?: FTM, Stone Butch Preferred Pronoun?: He Join Date: Nov 2009 Location: Northeast Posts: 7,745 My Photo Gallery Thanks: 26,545 Thanked 26,811 Times in 5,772 Posts Rep Power: 21474858	Check ins! Debby? Catalinarose (I know she may not be here)? JustJo? Everyone else? Update for me: Weather is getting colder, but hands do not seem to be getting worse in direct proportion. I hope this means that the neuropathy is abating. In my feet, no real change, unfortunately. I continue with the supplements I started taking after the testing I did in Chicago, have done pretty good sticking to a vegan diet, but have done crappy with exercise follow through. I have big sleep problems (falling asleep, even with pills) and find that if I exercise in the morning I drag all day (after 3 weeks in a row of exercise this never did abate..which surprised me), and then after work I am of course wiped out from little sleep ...around 10pm I feel wide awake and can't sleep, and then the process starts all over again. This has been a problem my whole life and I will never have an evening/night job, so....I dunno. I still have a significant amount of fatigue for being off of chemo for 6 months now, so I don't know what that is about. Granted, I have no information that tells me I shouldn't still be tired, but it doesn't make sense to me that I would still be tired. I need to call my oncologist's office because I either missed an appointment or didn't call to schedule like I was supposed to, as I know it has been 3 months since I have seen her. Also, I do believe that I am due for a CAT scan. __________________ -Dapper Are you educated or indoctrinated?

10-28-2011, 06:53 AM	#7
JustJo Infamous Member How Do You Identify?: pushy broad Preferred Pronoun?: she Relationship Status: Follow your heart; it knows things your mind cannot explain. Join Date: Jan 2010 Location: Southeast corner Posts: 5,633 My Photo Gallery Thanks: 24,417 Thanked 25,406 Times in 4,660 Posts Rep Power: 21474857	Hey everyone Sorry I haven't been in for awhile. Feels like we're in a holding pattern. My mom is home at her own house (now sans car thanks to my sister), which is probably good as she would be driving and shouldn't be at this point. She has a visiting nurse daily, an aide who comes every other day for a couple hours, and a friend who spends a good chunk of each day with her. Her weight has dropped a little since leaving the hospital, and she struggles to eat and drink at all. Some days better than others...but too frequently I hear that she managed half a carton of yogurt for the day. She was eating better in the hospital, even though she complained about the quality of the food. She's on the TPN 24 hours a day...so that's enough food and liquid to sustain her life, but not to thrive. She really does need to eat and drink as well. The timeframe for the Avastin clearing her system has passed and they are now talking about the plan for seeing what the rest of the mass is. What they find will determine whether she gets on a plane to come here, or has to stay there for another procedure. She's 2/3 of the way through her chemo...and is now describing it as a race....can she eat and drink enough when she's sick and exhausted and everything tastes like metal to be strong enough to get through it? She has the expectation that, once the chemo is over, she will be able to eat and drink and have no trouble. According to the doctor, that may not be the case...but I'm glad she believes that. It can't hurt. I know she's happier to be out of the hospital and at her own house, but I'm also worried about the feeling she frequently describes....that she now understands how people long ago just took to their beds, turned their face to the wall, refused to eat or drink, and died. She says she feels like that herself most days. It's hard to hear. __________________ I'm not tall enough to ride emotional roller coasters

10-12-2011, 08:14 AM	#2
Novelafemme Timed Out - TOS Drama How Do You Identify?: ........ Join Date: Nov 2009 Location: ........ Posts: 2,402 My Photo Gallery Thanks: 4,981 Thanked 8,925 Times in 1,834 Posts Rep Power: 0	the hospital just called and moved my surgery up again! now it's at 2pm! i'm sneaking in a smallish cup of coffee and then taking the kiddos to school. send good vibes and healing energy this way and i'll see you all soon.

10-19-2011, 02:06 PM	#3
Novelafemme Timed Out - TOS Drama How Do You Identify?: ........ Join Date: Nov 2009 Location: ........ Posts: 2,402 My Photo Gallery Thanks: 4,981 Thanked 8,925 Times in 1,834 Posts Rep Power: 0	Hi Friends! Got the path report back today and it isn't good. But....I have faith and am gonna take the bull by the horns and tackle this head on. I'm also gonna take a break from the online world for a while, so if you don't hear from me please feel free to reach me via email: landphair@pharmacy.arizona.edu so long for now and BE WELL, everyone!!!