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12-24-2011, 09:51 AM
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#541 |
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Practically Lives Here
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married to my forever 
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You didn't answer me about the chemo?Hey DAPPER: I am so sorry....I did forget to asnwer you about the chemo ? NO...no chemo OR rad. for me..it was ALL gotten with surgery AND I am "officially CANCER FREE"...yayyyyyyy Hugs to you and TF from County & I...smiles
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12-24-2011, 09:58 AM
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#542 | |
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Roadster Guy
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Quote:
WOO HOO [/SIZE]
CONGRATULATIONS!!!!!!
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-Dapper    Are you educated or indoctrinated? |
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12-24-2011, 11:23 AM
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#543 |
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Infamous Member
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Follow your heart; it knows things your mind cannot explain.  Join Date: Jan 2010
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Hi everyone,
We got the picc line replaced yesterday....so long tiring day but all resolved at the end. I also browbeat a prescription for Lortab out of her NY doctor...so she's not completely out of pain meds for the long weekend....and we'll be seeing the pain management specialist early in the week. I'm more and more convinced that we need to get her off the morphine....simply standing up makes her so dizzy that she has to put her head down and hold onto something for a minute or two. Her weight is down a bit since the TPN is only 12 hours instead of 24 now....but she is eating a bit more. I figure I'm managing to get 800 to 1000 calories a day into her. Going off the morphine might help with her appetite and ability to eat. Not what it should be...but an improvement. The Pedialyte also seems to be helping her somewhat...so we're keeping that up. I know I annoy her, handing her food or drink every 2 hours, but she would go all day with virtually nothing if it was left up to her. My pushy broad side is getting a workout. Hugs to you all....glad to hear Clay and Julie's mom are home for the holiday and getting lots of support and care. Merry Christmas to you all! 
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12-24-2011, 12:01 PM
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#544 | |
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Practically Lives Here
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Quote:
Anyway I am certainly not trying to prescribe or "manage" BUT offer you some suggestions..smiles....I am a nurse....smiles.... Take care..and YOU are doing an awesome job....give yourself a pat on the back...Clay
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To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault |
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12-24-2011, 12:13 PM
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#545 |
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Infamous Member
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Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009
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Merry Christmas to all.
 Wishing you the imagination of a child, the wishes of yesteryear, and the magic of the season for tonight and always. Tommi |
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12-24-2011, 12:18 PM
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#546 |
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Practically Lives Here
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a rather funny story
Having been split straight down the middle of my belly from tip of sternum to edge of pubic area....and still with 38 staples in place....
makes it VERY difficult for one to "bend and dress oneself"...so upon accepting generous offers from one countyfem to don my boxers for me... ALAS! I awoke in the middle of the night....and couldn't find the "fly opening" in front....so as I stood and pulled them down...I discovered the fly was in back...sooo....guess ya had to be there to appreciate it..but I know the butches will rotfltao.....I know I did....will I let her doff/don them for me again...YOU BETCHA! She was the prettiest shades of crimson and amethyst I have ever seen when I showed her what she had done...so I am enrolling her in the class on "how to dress a boi" next semester...lmao...I heart you baby!!! you know I do!
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To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault |
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12-24-2011, 12:30 PM
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#547 | |
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Infamous Member
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Quote:
 She is on the Zofran, which helps a little but not completely.Hospice can't/won't do anything until she rejects all chemo treatment...and she's not quite ready to do that yet. Her current/new oncologist down here is proposing modifying her chemo to something that will be less hard on her and only every 3 weeks (since she can't be cured anyway)....and she wants to see if that helps her quality of life. Right now we're just one step at a time...but it's an uphill battle.
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12-25-2011, 04:33 PM
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#548 |
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Roadster Guy
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Happy Holidays!
Merry Christmas and Happy Holidays to all survivors, caregivers, supporters, and those fighting and recovering from cancer!
May we all have a healthy New Year!
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12-27-2011, 04:35 PM
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#549 |
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Timed Out - TOS Drama
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I'm so happy to log on and see that most everyone is doing so well! {{{Jo}}} My thoughts are with you and your mom. I would only hope that were I in her shoes things would be made as painless and restful as possible. How are YOU holding up?
I spoke with my sister today and she is doing amazingly well. Her doctor even made a comment this morning that he hasn't seen anyone respond to the chemo protocol she is currently on quite so well as Lisa has. She is two lbs. shy of her normal weight and is feeling wonderful. I was originally going to fly out there with the girls in February but cancelled that trip since it was rapidly getting crazy expensive. Then last week I found a round trip ticket to/from Tucson to LaGuardia for $197!!! So, I fly out on the 24th and will surprise her by showing up to her fourth chemo treatment. I am terrible with secrets so it's gonna be hell keeping it to myself!!I am going in for a second opinion on the polyps I recently had removed. Grrrr. And ONLY because I am being forced to! I guess it's better to be safe than sorry, but I am so over being poked and prodded! CLAY!!! So happy to hear you are doing well. I owe you a phone call one of these days.
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12-28-2011, 08:55 AM
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#550 |
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Infamous Member
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Hello everyone,
Just a quick Mom update....she's actually doing a bit better. We got her off the morphine and on lortabs (think that's right) and it seems to have helped. The fatigue and dizziness is diminishing and her appetite is much improved. We mix her drinks with half Pedialyte, and the dehydration is also much improved as a result. She still gets (and needs) 12 hours of TPN each night, but we're managing to get about 1,000 - 1,200 calories of real food into her every day, and of a wide variety of things. The nausea is 90% gone....and she's very very slowly beginning to gain a little weight. She still could not live alone at this point (and probably never again), but she is far more comfortable than she was....which makes us both feel better. She actually got up this morning, made herself some hot chocolate, and was enjoying it out on the patio.
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12-28-2011, 09:09 AM
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#551 | |
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Member
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That's great news Jo, I hope you both can enjoy this time together. |
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12-30-2011, 07:08 AM
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#552 |
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Infamous Member
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Good morning all
Sharing some good news....after over a year of having no interest in food and being unable to eat, Mom has turned a big corner. She actually woke up hungry in the middle of the night last night...enough to get up and get a snack. She woke up hungry again this morning....and was making herself peanut butter toast and orange juice while I was still pouring my first cup of coffee. She's slowing gaining weight....and she's eating a huge variety of food frequently through the day. Pretty amazing stuff. When I look at her now, as compared to when she arrived only about 3 weeks ago, her color is better...she is stronger...the dizziness is gone...she's eating all kinds of things throughout the day rather than 1 or maybe 2 cartons of yogurt only....and her dehydration problem is completely resolved (thank goodness for Pedialyte....that stuff is a miracle). Her mood has improved dramatically as a result, now that she is feeling more like herself....and she's talking about how she could do this with chemo every 3 weeks for quite some time....rather than planning and waiting for her death. She knows that the cancer isn't going to get cured....and we're only buying time....but now she's ready to buy it, and enjoy it....and that's good.
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12-30-2011, 09:56 AM
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#553 |
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Member
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Jo
That is terrific news! Take this most precious time and enjoy! (((jo and mom)))
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12-30-2011, 10:17 AM
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#554 |
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Practically Lives Here
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Gentle Blessings and Much love & Happiness for 2012
To EVERYONE here....may each and every one of you be blessed in the New Year. May we all have love abundantly..in so many forms, be gentler with one another, kinder to strangers, and more loving of ourselves..we are ALL BRAVE WARRIORS...whether we march to the Cancer Dance or are a supporter...EVERYONE is VITAL! Just here on the Planet alone...we have seen so many wonderful, incredible miracles happen. I know my own Cancer was MY BLESSING...it brought some incredible people into my life...it opened my eyes...mad em gentler to others....mor eloving of myself...and being there for others...I NEVER once saw my diagnosis as a "death sentence"...for we truly have nothing to fear..except fear itself..and I have seen each and every one of you..face some terrifying diagnoses, scares, challenges, and wheteher a marcher or a drummer...YOU ALL handled it with style, class, grace, and poise, and opened yourselves up to the rest of us...some mighty fine, BRAVE WARRIORS reside in this thread...and I heart you all..YOU are all so fucking BRAVE!!! The battles we faced, fought, and won..and are winning are much worse than any battlefield abroad...these battles occured right in our very souls...BUT we marched on...every time we faltered..someone else was here to guide us, encourage us, and lend a hand up..NO ONE IS LEFT BEHIND here....so...I wish us all health, love, and peace within..we have climbed those mountains now...let's enjoy the friendships and heartships we have made here...I LOVE YOU ALL>>each and every one...whether you are a fighter or a supporter..YOU all fucking rockkkk!!!! xoxoxooxo.....Clay
Big Butch hugs to ALL of you....
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12-30-2011, 04:53 PM
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#555 | |
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Roadster Guy
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Quote:
   
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12-30-2011, 05:54 PM
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#556 |
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Ok more good news! My Mom saw the oncologist and she is doing really well. All her blood tests look great. She told her to go out and enjoy herself. She went to the grocery store and the book store and was so happy to be out. She is still weak and tired but feeling good and no pain! Her appetite is great and she is gaining weight. January 10 is her next round of chemo.
It is amazing to me how well she has done with the chemo. She was against it because of what she saw my Grandma go through. That was over 30 years ago. Things have gotten better with cancer treatment. She was in a lot pain before and not eating and now she has no pain and is eating great. Tomorrow night we will have a little party at her house for the new year. I am so happy and feel so blessed. Jo I am happy your Mom is doing so well! Maybe it was the morphine that made her feel so bad? Happy New Year to you all! Clay I am inspired by your posts and your positive attitude. This thread has made things a little easier. |
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12-30-2011, 07:36 PM
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#557 |
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Practically Lives Here
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julieisafemme...that is awesome...wtg Mom!!!! BIG hugs to you both...just let he rlive her life...how she may choose...and enjoy what she wants...it will all be great for her....thanks for the wonderful post..
Happy New Year to your family also! Keep on a rockin', mom? Does she want a "date" for NYE? smiles.... Hang in there kid.... ((((((((((((((Jo & Mom))))))))))))))) great news as well...may you two be blessed and have a wonderful New Year....hugs.. I heart you all..Clay
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12-30-2011, 10:26 PM
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#558 |
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Member
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Jo and Juie, Thanks for sharing the good news about your Moms. I feel such joy at reading your posts.
Jean
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12-31-2011, 05:50 PM
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#559 |
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Roadster Guy
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Checking in on clay....
How is the recovery going?
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01-01-2012, 01:10 AM
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#560 | |
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Practically Lives Here
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Quote:
Thanks so very much for checking in on me...for all your kind words, wishes, support, and encouragement...I heart you, my friend,....Happy New Year to you & the lovelt TF!!! Clay & County
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To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault |
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