Cancer Support and Caregivers Who Are Trail Blazers!

[julieisafemme]

Originally Posted by claybaby

hey Julieisa...Walgreen's carries a whole product line of BioTene products geared to help with these issues...dry mouth anyway.....and you can get a prescription for a therapeutic mouthwash from your oncologist...jus' sayin'

Yes my Mom has the prescription but she has not filled it yet. Magic Mouthwash I think it is called. She likes popsicles so that works for her. I don't know about the BioTene. I will have to get that for her. She has a bridge that she takes out at night and that was really irritating her mouth. She left it in at night and that helped but that also annoyed her! So now she is back to taking it out again. Thanks for the info Clay and I hope you are feeling well.

[clay]

Originally Posted by julieisafemme

Yes my Mom has the prescription but she has not filled it yet. Magic Mouthwash I think it is called. She likes popsicles so that works for her. I don't know about the BioTene. I will have to get that for her. She has a bridge that she takes out at night and that was really irritating her mouth. She left it in at night and that helped but that also annoyed her! So now she is back to taking it out again. Thanks for the info Clay and I hope you are feeling well.

You are so very welcome, Julieis...and yes, it IS called Magic Mouthwash...I am fine....thanks for asking...give mom a hug...have a great weekend...Clay

[DapperButch]

Originally Posted by julieisafemme

Yes my Mom has the prescription but she has not filled it yet. Magic Mouthwash I think it is called. She likes popsicles so that works for her. I don't know about the BioTene. I will have to get that for her. She has a bridge that she takes out at night and that was really irritating her mouth. She left it in at night and that helped but that also annoyed her! So now she is back to taking it out again. Thanks for the info Clay and I hope you are feeling well.

Julie, just to let you know "Magic Mouthwash" comes in cherry and regular. The pharmacist actually mixes up the product right there. My pharmacist said cherry is the automatic choice, so she had to specifically order the plain for me. I did not want the cherry b/c the way I used the mouth wash was to take a mouthful of it and "hold it" over the sore in my mouth until it was numbed a few minutes before I ate. It only somewhat worked, but it was a way I could eat. I didn't want the cherry flavor b/c it effected the taste of my food. The product really only worked for about 10 minutes.

My chemo was one week on, one week off. The week off was when I had the mouth sores, so I hardly ate. The week on, I didn't have mouth sores, so I ate a lot, in order to bring my weight back up. I did this for 6 months. I actually had to miss work sometimes b/c it would be extremely painful to even talk (I meet with people all day = a lot of talking!).

I was told the baking soda rinse would not help after the mouth sores appeared, but was supposed to keep them from occurring (?). I am glad it helps your mom though, Julie.

Magic mouthwash is supposed to soothe, but unfortunately, not eradicate the mouth sores. My oncologist told me there was nothing else out there and then I saw in "cure" magazine an advertised new product. I suggested to my oncologist that they request free samples from the company, and they did. By the time they got it in, I had finished my last chemo and the mouth sores had gone away. Subsequently, I couldn't be their "guinea pig" for the product as they had hoped. lol I'm sorry that I don't remember the name of the product and it was too new to get up on google. It may be there now (this would have been 9 months ago).

Ok, so I just remembered they gave me a sample of a different product that was also new out. It burned my mouth. They saw the ingredients included alcohol, so they literally tossed it into the trash (alcohol was the reason for the burning, so it is pretty stupid they put it in there).

It is so funny how memories continue to come back here and there about my time in the hospital and memories about chemo. It is weird, as you would think I would remember it all by now.

For all of you caregivers and for people currently fighting cancer, look into getting Cure magazine (tommi put a link in this thread a ways back). It is an interesting and useful read and is free to the two above named groups.

Take care, everyone!

[deb_U_taunt]

[clay]

be interesting to hear their "take" on colon cancer.....heheheh

[deb_U_taunt]

Originally Posted by claybaby

be interesting to hear their "take" on colon cancer.....heheheh

I looked and couldn't find a clip like that.

[Novelafemme]

Hi All,

Just got back from NYC in the wee hours this morning. We spent the bulk of Friday at the NYU Cancer Center with my sister as she went through chemo #4. So different from anything we have experienced. She is getting the R-CHOP drugs for her lymphoma and really hasn't had many of the same side effects. Some hair loss, but she still has her eyebrows and eyelashes. She got up Saturday morning and taught her usual two hour yoga class! Then she met us Sunday for brunch and also walked the 1.5 mile long high line walk way AND BACK! She's pretty amazing! Just a little update on her and to say thanks again for all the support!!