Cancer Support and Caregivers Who Are Trail Blazers!

DapperButch · 05-02-2012, 03:57 PM

Quote:

Originally Posted by Debby

I have been keeping busy, taking dogs to the park, spending time with nieces and working. I knew the time would be coming for me to have to take another break from my life. Last Wednesday I had a double mastectomy, with no reconstruction. (I didn't want to go through any further surgeries). I am doing okay, the first week was a bit rough, but I added to my own misery by trying to do a load of laundry. I have learned my lesson and am taking it easy again. I go to the Dr tomorrow and hoping to have the drains removed. Dr said one to two weeks and still getting fluid, so not sure if I am stuck for another week. I also hope to get the pathology report tomorrow. I am home from work until June 4th, so I will be back online. I missed everyone.

Hey, there, buddy. Good to see you. It is amazing how quickly you are up around and moving after a double masectomy. The dog park??? Take it easy...you will have time to play before June 4th!

I'll be thinkin' about ya!

deb_U_taunt · 05-04-2012, 08:47 AM

Quote:

Originally Posted by DapperButch

Hey, there, buddy. Good to see you. It is amazing how quickly you are up around and moving after a double masectomy. The dog park??? Take it easy...you will have time to play before June 4th!

I'll be thinkin' about ya!

OH NO...those were things I was keeping myself busy doing knowing I was going to be home for a few weeks after surgery. So far since surgery I have been home whiniing and taking pain pills. Went to the Dr yesterday and he removed 2 of the 4 drains. Tuesday he said he will remove the other 2.

DapperButch · 05-04-2012, 04:43 PM

Quote:

Originally Posted by Debby

OH NO...those were things I was keeping myself busy doing knowing I was going to be home for a few weeks after surgery. So far since surgery I have been home whiniing and taking pain pills. Went to the Dr yesterday and he removed 2 of the 4 drains. Tuesday he said he will remove the other 2.

Now that sounds more like it!

clay · 05-09-2012, 08:02 AM

Hey everyone...just dropped by to say I saw my surgical oncologist yesterday, and my CEA (tumor cell count in my blood) is "less than 1" and I will get these done every 3 months, for life now. My scans didn't show any new cancers either.....whoohoooo!!!
I DO have a ventral hernia...soooo I am being referred to a surgical specialist who does nothing but these hernias, laparoscopically. I will see her in about 3 months.
As far as the pain I have in my right flank, and under my liver....we will continue to watch, and see if it is "surgical incison healing".
The malaise & fatigue are slightly improved...will take time as that surgery, which was done just 5 months ago today...was with a huge toll on my body, having TWO major abd. surgeries consecutively. My prenatal vitamins and extra iron, as well as B12 shots monthly for life, will help this eventually. I am so very thankful!!! for being as healthy as I am.....thank the Universe & goddesses!!!
My doctor says every time we get a good CEA result, I am getting to be a "longer term" survivor of colon cancer!!!! THis was very reassuring to me...smiles..
Thank all of you...for always thinking of me, keeping me in prayers, holding me close, and walking this path. I heart you all...love..Clay

firegal · 05-09-2012, 08:44 AM

Long time Ms Vonnie,

Vonnie sorry to hear about your friend.

I agree on how you feel about "C"

Von my lil sis was diagnosed with stage 4, 3 years ago. Experimental drugs/chemo has blessed us with having her here in our lives.She is slowly becoming more and more fragile.

her partner is the most caring wonderfull lady. Yes my lil sis is gay too! her partner moves heaven and earth for my sis.

Hugs to you Von!

Terry

pynkkameleon · 05-09-2012, 02:31 PM

Terry,

I'm so sorry to hear about your sister and her ongoing battle with this disease. Your family has been through so much. She is clearly a fighter like you, and is surrounded by a wonderful group of supportive and loving caregivers. I pray that the treatment she receives will continue to give her more time.

My "numbers" are holding steady right now. I'm due for the dreaded scans again but they don't hold as much power over me as they did a year or even 6 months ago. A good thing I think. I've recently hit little milestones worth celebrating, including my two year mark. Yay! All continuous reminders to cherish each moment of every day and the people that surround and support me.

It's really good to hear from you. It seems forever since we last caught up. You should see how big the twins have gotten. Ten years old now and keeping this Mama on her toes! They grow up way too fast.

Please keep me posted on how you and your sister are doing. I'll be keeping you all in my thoughts.

Big hugs!

pynkkameleon · 05-09-2012, 02:48 PM

Clay,

I'm so glad to hear that your Onco visit went well! Bummer about the hernia but at least it can be dealt with laparoscopically.

It's amazing how much surgery can sap a persons energy, especially when they are back to back like that.

Sending my own woohoo's for you and my thank you's as well. You do so much to support, encourage and lift us all up.

Many hugs!

05-09-2012, 08:02 AM	#4
clay Practically Lives Here How Do You Identify?: Butch (Silver Fox) Dom Daddi Preferred Pronoun?: 50 Shades of Clay Darker & Deeper Relationship Status: married to my forever Join Date: May 2011 Location: salt air & sandy beaches Posts: 13,136 My Photo Gallery Thanks: 97,020 Thanked 31,675 Times in 7,748 Posts Rep Power: 21474864	UPDATE Hey everyone...just dropped by to say I saw my surgical oncologist yesterday, and my CEA (tumor cell count in my blood) is "less than 1" and I will get these done every 3 months, for life now. My scans didn't show any new cancers either.....whoohoooo!!! I DO have a ventral hernia...soooo I am being referred to a surgical specialist who does nothing but these hernias, laparoscopically. I will see her in about 3 months. As far as the pain I have in my right flank, and under my liver....we will continue to watch, and see if it is "surgical incison healing". The malaise & fatigue are slightly improved...will take time as that surgery, which was done just 5 months ago today...was with a huge toll on my body, having TWO major abd. surgeries consecutively. My prenatal vitamins and extra iron, as well as B12 shots monthly for life, will help this eventually. I am so very thankful!!! for being as healthy as I am.....thank the Universe & goddesses!!! My doctor says every time we get a good CEA result, I am getting to be a "longer term" survivor of colon cancer!!!! THis was very reassuring to me...smiles.. Thank all of you...for always thinking of me, keeping me in prayers, holding me close, and walking this path. I heart you all...love..Clay __________________ To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault

05-09-2012, 08:44 AM	#5
firegal Senior Member How Do You Identify?: Butch Preferred Pronoun?: Don't let the gal part of my screen name fool ya I,m ALL butch! Join Date: Jan 2011 Location: Tacoma,Washington Posts: 2,907 My Photo Gallery Thanks: 15,853 Thanked 11,706 Times in 2,469 Posts Rep Power: 21474853	... Long time Ms Vonnie, Vonnie sorry to hear about your friend. I agree on how you feel about "C" Von my lil sis was diagnosed with stage 4, 3 years ago. Experimental drugs/chemo has blessed us with having her here in our lives.She is slowly becoming more and more fragile. her partner is the most caring wonderfull lady. Yes my lil sis is gay too! her partner moves heaven and earth for my sis. Hugs to you Von! Terry

05-09-2012, 02:31 PM	#6
pynkkameleon Member How Do You Identify?: Queer Femme Preferred Pronoun?: Girly ones Relationship Status: Riding off into the sunset with my Cowboi Join Date: Feb 2012 Location: Texas Posts: 130 My Photo Gallery Thanks: 1,279 Thanked 484 Times in 98 Posts Rep Power: 7809054	Terry, I'm so sorry to hear about your sister and her ongoing battle with this disease. Your family has been through so much. She is clearly a fighter like you, and is surrounded by a wonderful group of supportive and loving caregivers. I pray that the treatment she receives will continue to give her more time. My "numbers" are holding steady right now. I'm due for the dreaded scans again but they don't hold as much power over me as they did a year or even 6 months ago. A good thing I think. I've recently hit little milestones worth celebrating, including my two year mark. Yay! All continuous reminders to cherish each moment of every day and the people that surround and support me. It's really good to hear from you. It seems forever since we last caught up. You should see how big the twins have gotten. Ten years old now and keeping this Mama on her toes! They grow up way too fast. Please keep me posted on how you and your sister are doing. I'll be keeping you all in my thoughts. Big hugs! __________________ ~Vonni~ *Don't define your world in black and white..* *There is so much hiding amongst the greys* *❤❤❤❤❤*

05-09-2012, 02:48 PM	#7
pynkkameleon Member How Do You Identify?: Queer Femme Preferred Pronoun?: Girly ones Relationship Status: Riding off into the sunset with my Cowboi Join Date: Feb 2012 Location: Texas Posts: 130 My Photo Gallery Thanks: 1,279 Thanked 484 Times in 98 Posts Rep Power: 7809054	Clay, I'm so glad to hear that your Onco visit went well! Bummer about the hernia but at least it can be dealt with laparoscopically. It's amazing how much surgery can sap a persons energy, especially when they are back to back like that. Sending my own woohoo's for you and my thank you's as well. You do so much to support, encourage and lift us all up. Many hugs! __________________ ~Vonni~ *Don't define your world in black and white..* *There is so much hiding amongst the greys* *❤❤❤❤❤*