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12-15-2013, 02:48 PM
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Has anyone every had to fight to get proper care for their loved one... whether in a home or a school? I fear this is the path I am headed down right now, and I am not sure how much of a fight its worth... Or how much of a fight I can handle.
My son is in 4th grade... he has severe behavior needs due to autism, adhd, and an impulse disorder... and I found out this last week that they are restraining him unneccessarily, and doing it improperly at that. I don't know how much of a fight this is going to be... and I am wondering if it will even be worth it, or if I should just find somewhere else for him to go to school...
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12-15-2013, 03:53 PM
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#2 | |
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So sorry to hear you're having a difficult time with your son's school. How difficult for you, and him. I'm not sure how much help I can be; I live in Britain and I'm guessing you're in the states. However, if you lived here, this is what would happen. An educational psychologist would be involved who has a good understanding of the educational needs of children with adhd, asd and associated behavioural difficulties. They would co-ordinate a consistent approach, in consultation with yourself, and follow this up throughout your child's schooling. Does his school have one of those? Failing that, you could go back to the psychologist that diagnosed him. If he's on meds you may have contact with that person anyway, and ask them to help by contacting the school. If it's all too much and nobody is listening, in Britain you could contact a social worker to fight those battles for you. It's all so stressful but will be so worth it once your son is more settled. Best of luck with it and let me know how you get on. Rxx |
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12-15-2013, 06:12 PM
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I'm sorry about all that Jenn. I wish I had answers for you. I would contact maybe someone with the Disabilities dept in your state , maybe they can steer you in the right direction?
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12-16-2013, 07:53 AM
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Breathe in breathe out
Searching for a Medicaid bed in a facility that is rated at least above average to well above average for the HL's dad. It also has to be relatively close to where we live so it makes our daily trips easier.
Who would have thought finding a bed in a facility with the combination of moderately close by, quality care that takes Medicaid would be so difficult in a metropolitan area of 5.6 million people. The clock is ticking on the rehab center. In 3 days his Medicare will be up for the short term rehab facility. They told us we had 60 more days on Monday then on Friday after 5pm told us he had to be out Wednesday or we have to pay $142.00 a day. (We can't afford that). Considering how hard it is to find the elusive Medicaid bed, we should have started sooner, immediately even. Now we know I guess.
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12-16-2013, 10:40 PM
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Sorry to hear of the troubles with finding a facility that works for your family, venus. I hope you find one.
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12-21-2013, 06:46 PM
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Being a caregiver to my mom is stressful. Now my birth father is not in so hot a shape. He's got diabetes and he's got blood in his urine, an open sore on his foot he's got meds for thank goodness, and a 30% usage of only the upper part of his heart, and he's not been feeling well and is anemic. I worry about him, he lives with my 93 yr old grandmother...his mom. She gets around really well, but I just hope I'm not in for some more bad news about my dad. We've been trying to have a relationship the past 2.5 yrs now since I honestly didn't know much about him when I was a kid and only visited him for short time when I turned 21. I don't wanna lose my dad anytime soon and I hope the tests my dad is taking will give reassurance that what he is going through is nothing serious. He lives 5 hrs from me just south of Austin. I don't have funds to take a trip to go see him but I do call him often. Keep him in your prayers please. Thanks.
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12-21-2013, 06:53 PM
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Hugs to you Tru, I'll be keeping you and your dad in my thoughts.
Rxx |
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