Cancer Support and Caregivers Who Are Trail Blazers! - Page 62

mustangjeano · 10-07-2014, 12:21 AM

Quote:

Originally Posted by clay

Just saw my oncologist last Thursday. My CEA (tumor marker levels) are WNL (within normal limits).
Dec 9 is my 3 year anniversary of being diagnosed with Stage 1 Colon Cancer. I had major abdominal surgery to remove half my large intestine as well as a total hystero. I did not have to have any chemo or radiation, I was so very lucky!!

So now I can go to every 6 months testing CEA. I am so thrilled to be a survivor.....so many are not.

I like to say I kicked cancer's ass and made her my bitch! My GYN oncologist loved it!!! when I told her that! With such a diagnosis, I think our humor is wonderful medicine!

I know when I was having to drink so much of that nasty prep, the humor from friends here in this thread helped me get through! Thank you each and everyone for walking this journey with me. I <3 you all!

Hey Bro, It made my day to read your good news.

clay · 10-07-2014, 08:15 AM

Quote:

Originally Posted by mustangjeano

Hey Bro, It made my day to read your good news.

Hey Jeano....thank you my friend!!! You are such an amazing ally & supportive friend. Your kind words always warm my heart! Thank you for being my friend!!!

clay · 10-07-2014, 08:23 AM

Quote:

Originally Posted by DapperButch

Congrats on everything staying in the clear!

Don't bring up drinking that prep, I have to do it next month! Ugh.

Hey Dapper:
Okay, I won't...lol. That is the worst part of the whole thing. I mixed my own pre (after searching for the recipe online) of Miralax into 64 oz. Gatorade....it is so much better tasting. I used the orange Gatorade.

Keep us posted my friend!! We are all on this journey together!!

pynkkameleon · 11-27-2014, 08:55 PM

Just a lil note to say how thankful I am for this safe place and for every one of you in it.

~ Blessings, love and light to all

DapperButch · 03-19-2015, 05:43 PM

Quote:

Originally Posted by clay

Hey Dapper:
Okay, I won't...lol. That is the worst part of the whole thing. I mixed my own pre (after searching for the recipe online) of Miralax into 64 oz. Gatorade....it is so much better tasting. I used the orange Gatorade.

Keep us posted my friend!! We are all on this journey together!!

I think that Miralex plus the original Gatorade is the ticket. The most important thing is to keep it cold. Personally, I like the original Lime for this event.

My process includes holding my nose while drinking, and after swallowing, take a drink of coffee immediately.

Everything was in the clear for me when I had my colonoscopy, by the way. Sorry I didn't follow up, guys!

Tommi · 03-20-2015, 01:43 PM

Hello Everyone, I hope you are all well, and enjoying the wonderfullness of spring around the corner.

staying busy, and healthy and happy takes energy. L)

March of 2004 was my first diagnosis of endometrial cancer, followed by total radical hysterectomy, oopherectomy, and 16 lymph nodes surgery. Normal paps for 9 years, then recurrence , months of external and internal radiation therapy,MRIs , etc. Oct. 2013. Now, pap smears every 3 months to watch ***

All in all , it is a good year so far. Doc sgugested I can go to 6 months exams...after the results from last Weds come back. (Just had my follow-up exam/s those nasty pelvic examS ) going from every 3 months to every 6 months, checking for recurrence would be nice

So, on the happy side of life, it just keeps getting better.
We went to a fabulous 3 day mini vacation in a log cabin in the mountains and communed with nature, light snow, birds squirrels. and wonderful fireplace.

Looking forward. Biz trips to Montreal next week, then to Phoenix, then San Diego. Then first week in April, to Tampa and going to introduce the fiance to the bio-famiy. Then in May we are getting married. More Biz trips, then BFP Reunion, and Nov. her bucket list trip to Galapagos Islands. WE ARE GOING TO VACATION ON OLIVIA CRUISE TO THE GALAPAGOS.

She works full time in a high tech, demanding professional career...And as her parents Caregiver for over 10 years. cares for her parents from Friday night to Monday morning, has a lady with them in the day time. then comes home cooks dinner and spends the evening with the folks. .

kaijira's Mom, has slipped into the final stages of Alzheimer's, her dad , just hanging on watches TV 12 hours a day watching his wife of 60 years disappear before our eyes. They still toddle off to bed together every night after TV. Celebrated 60 years anniversary, and soon the Mom's 81st birthday/

So, I know this is just the place that I can post what's going on, and you all get it, as we do so , every now and then.

One day at a time, sober and clean for over 30 + years, I get my high from living life to it's fullest.

.

clay · 04-01-2015, 11:53 AM

Have to get US of abdomen.......seems some blood levels are elevated! Of course, I am positive results will all be negative.....if not, I will don my gloves and make cancer my bitch should it rear its ugly head again! I got this!

clay · 04-01-2015, 12:02 PM

absolutely post here, Tommi! For yes. We do get it and understand it. Everyone here has had their own journey....united we stand...that is why I love this thread! I am very thankful for the support, encouragement, and kindness on my own journey 3 years ago.....countyfem was my hero during that time! She was such an amazing caregiver to me...a complete stranger and she is a lifelong friend! I just felt a shout out to her was warranted!

DapperButch · 04-01-2015, 06:25 PM

Quote:

Originally Posted by clay

absolutely post here, Tommi! For yes. We do get it and understand it. Everyone here has had their own journey....united we stand...that is why I love this thread! I am very thankful for the support, encouragement, and kindness on my own journey 3 years ago.....countyfem was my hero during that time! She was such an amazing caregiver to me...a complete stranger and she is a lifelong friend! I just felt a shout out to her was warranted!

Yes, what happened to her? She like dropped off the face of the earth (BFP) after you got well.

mustangjeano · 04-02-2015, 12:08 AM

Quote:

Originally Posted by clay

Have to get US of abdomen.......seems some blood levels are elevated! Of course, I am positive results will all be negative.....if not, I will don my gloves and make cancer my bitch should it rear its ugly head again! I got this!

Holding good thoughts for you and awaiting your news my friend. Jeano

DapperButch · 04-02-2015, 06:55 AM

Quote:

Originally Posted by clay

Have to get US of abdomen.......seems some blood levels are elevated! Of course, I am positive results will all be negative.....if not, I will don my gloves and make cancer my bitch should it rear its ugly head again! I got this!

When are you getting this done?

clay · 04-02-2015, 08:10 AM

Quote:

Originally Posted by mustangjeano

Holding good thoughts for you and awaiting your news my friend. Jeano

thank you jeano! You are wonderfully supportive!

Tommi · 04-22-2015, 02:29 PM

sliding into 3rd...base...

and Clay , what's the latest Bro?

Anyway, the Oncologist has extended my every 3 month recurrence check up ( you know the kind) to every 6 months for a year,. So, that is good news.

then after that it goes back to Stirrups once a year.

I have been sick as a pup for weeks. IN BED--* ALONE****with some kind of nasty germ that took me down,.Upper respiratory infection that was so bad I went to the doctor about it. Couldn't breathe , swallow, ribs felt like they were broken, coughed till , well, it was nasty.

Doc said, you probably caught some kind of virus while traveling ( flights to Montreal, Toronto, all over USA .MY BRAIN...screamed EBOLA...nope, just bronchial pneumonia kind of thing. and guess my immune system isn't what it used to be.

Hummingbirds chirping about their feeder, colorful landscape, , looking out the front window at my beautiful spring garden in bloom.

Wish you all well.

clay · 04-22-2015, 04:15 PM

Quote:

Originally Posted by Tommi

sliding into 3rd...base...

and Clay , what's the latest Bro?

Anyway, the Oncologist has extended my every 3 month recurrence check up ( you know the kind) to every 6 months for a year,. So, that is good news.

then after that it goes back to Stirrups once a year.

I have been sick as a pup for weeks. IN BED--* ALONE****with some kind of nasty germ that took me down,.Upper respiratory infection that was so bad I went to the doctor about it. Couldn't breathe , swallow, ribs felt like they were broken, coughed till , well, it was nasty.

Doc said, you probably caught some kind of virus while traveling ( flights to Montreal, Toronto, all over USA .MY BRAIN...screamed EBOLA...nope, just bronchial pneumonia kind of thing. and guess my immune system isn't what it used to be.

Hummingbirds chirping about their feeder, colorful landscape, , looking out the front window at my beautiful spring garden in bloom.

Wish you all well.

Hey Tommi......my US was all clear! Thanks for asking. Take care....

DapperButch · 07-11-2015, 11:22 AM

Hey,guys.

Looks like I never updated you. In Jan 2015, I got my colonoscopy (I suppose it had been a year out since the last one), and I had a pretty big polyp. It was benign, but he was concerned how big it had gotten so fast. He said I needed to get another in six months. Sooo, guess what time it is? Yep, 6 months later. Fun. I am playing phone tag right now with scheduling

It is also time for my CAT scan so that is scheduled for the end of July.

I will keep you all updated.

I hope that everyone is healthy.

Daisy Chain · 07-11-2015, 02:19 PM

Hello to all,

I am thankful for being directed to this thread.

I have spent some time reading back learning of other peoples journeys and the support you offer each other.

I was very very happy to hear so many of you coming out the other side and living full, happy and healthy lives.

I will share a little of my own story later.

Wishing you all gentle days.

Daisy

clay · 07-11-2015, 02:34 PM

Welcome Ms. daisy! Glad you came in to post! Everyone here has made journeys! The folks here are so warm & kind! You will receive a very warm welcome! Feel free to post as little or as much as you want! We are great listeners and give wonderful hugs! I am thankful to be meeting you...and offer a hand of friendship....any time! Sending you gentlest of hugs....take care beautiful friend! I am so happy you are here! Clay.... next week!

Quote:

Originally Posted by Daisy Chain

Hello to all,

I am thankful for being directed to this thread.

I have spent some time reading back learning of other peoples journeys and the support you offer each other.

I was very very happy to hear so many of you coming out the other side and living full, happy and healthy lives.

I will share a little of my own story later.

Wishing you all gentle days.

Daisy

clay · 07-11-2015, 02:37 PM

Quote:

Originally Posted by DapperButch

Hey,guys.

Looks like I never updated you. In Jan 2015, I got my colonoscopy (I suppose it had been a year out since the last one), and I had a pretty big polyp. It was benign, but he was concerned how big it had gotten so fast. He said I needed to get another in six months. Sooo, guess what time it is? Yep, 6 months later. Fun. I am playing phone tag right now with scheduling

It is also time for my CAT scan so that is scheduled for the end of July.

I will keep you all updated.

I hope that everyone is healthy.

hey Dapper! Good luck with your colonoscopy and CT scan! I have to get one soon also! Let us know my friend...hugs! Clay

TruTexan · 07-12-2015, 01:57 AM

Hello all, I wish each and everyone of you a healthy happy journey.

Tommi · 07-13-2015, 01:45 PM

Wheeeee

Life goes on.

We got married May 2, 2015. . No time for cancer. Time for each other, time to travel, time for her folks who are in the sunset of their lives. Time to blend 2 pet families, and households of furniture. What a wonderful woman, what an amazing two years since we met.

No time for thinking about that recurrence the month we met. Enjoying the sexiest apron clad cook that feeds me healthy stuff, and waits on me hand and foot, without even realizing how wonderful she is. I want for nothing but time, lots more time.

11-27-2014, 08:55 PM	#1224
pynkkameleon Member How Do You Identify?: Queer Femme Preferred Pronoun?: Girly ones Relationship Status: Riding off into the sunset with my Cowboi Join Date: Feb 2012 Location: Texas Posts: 130 My Photo Gallery Thanks: 1,279 Thanked 484 Times in 98 Posts Rep Power: 7809054	Just a lil note to say how thankful I am for this safe place and for every one of you in it. ~ Blessings, love and light to all __________________ ~Vonni~ *Don't define your world in black and white..* *There is so much hiding amongst the greys* *❤❤❤❤❤*

03-20-2015, 01:43 PM	#1226
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,337 Times in 5,970 Posts Rep Power: 21474860	Cancer, care taking and 60 years of love, One Day at a Time Hello Everyone, I hope you are all well, and enjoying the wonderfullness of spring around the corner. staying busy, and healthy and happy takes energy. L) March of 2004 was my first diagnosis of endometrial cancer, followed by total radical hysterectomy, oopherectomy, and 16 lymph nodes surgery. Normal paps for 9 years, then recurrence , months of external and internal radiation therapy,MRIs , etc. Oct. 2013. Now, pap smears every 3 months to watch *** All in all , it is a good year so far. Doc sgugested I can go to 6 months exams...after the results from last Weds come back. (Just had my follow-up exam/s those nasty pelvic examS ) going from every 3 months to every 6 months, checking for recurrence would be nice So, on the happy side of life, it just keeps getting better. We went to a fabulous 3 day mini vacation in a log cabin in the mountains and communed with nature, light snow, birds squirrels. and wonderful fireplace. Looking forward. Biz trips to Montreal next week, then to Phoenix, then San Diego. Then first week in April, to Tampa and going to introduce the fiance to the bio-famiy. Then in May we are getting married. More Biz trips, then BFP Reunion, and Nov. her bucket list trip to Galapagos Islands. WE ARE GOING TO VACATION ON OLIVIA CRUISE TO THE GALAPAGOS. She works full time in a high tech, demanding professional career...And as her parents Caregiver for over 10 years. cares for her parents from Friday night to Monday morning, has a lady with them in the day time. then comes home cooks dinner and spends the evening with the folks. . kaijira's Mom, has slipped into the final stages of Alzheimer's, her dad , just hanging on watches TV 12 hours a day watching his wife of 60 years disappear before our eyes. They still toddle off to bed together every night after TV. Celebrated 60 years anniversary, and soon the Mom's 81st birthday/ So, I know this is just the place that I can post what's going on, and you all get it, as we do so , every now and then. One day at a time, sober and clean for over 30 + years, I get my high from living life to it's fullest. . Last edited by Tommi; 03-20-2015 at 01:48 PM.

04-01-2015, 11:53 AM	#1227
clay Practically Lives Here How Do You Identify?: Butch (Silver Fox) Dom Daddi Preferred Pronoun?: 50 Shades of Clay Darker & Deeper Relationship Status: married to my forever Join Date: May 2011 Location: salt air & sandy beaches Posts: 13,136 My Photo Gallery Thanks: 97,020 Thanked 31,664 Times in 7,748 Posts Rep Power: 21474864	Have to get US of abdomen.......seems some blood levels are elevated! Of course, I am positive results will all be negative.....if not, I will don my gloves and make cancer my bitch should it rear its ugly head again! I got this! __________________ To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault

04-01-2015, 12:02 PM	#1228
clay Practically Lives Here How Do You Identify?: Butch (Silver Fox) Dom Daddi Preferred Pronoun?: 50 Shades of Clay Darker & Deeper Relationship Status: married to my forever Join Date: May 2011 Location: salt air & sandy beaches Posts: 13,136 My Photo Gallery Thanks: 97,020 Thanked 31,664 Times in 7,748 Posts Rep Power: 21474864	absolutely post here, Tommi! For yes. We do get it and understand it. Everyone here has had their own journey....united we stand...that is why I love this thread! I am very thankful for the support, encouragement, and kindness on my own journey 3 years ago.....countyfem was my hero during that time! She was such an amazing caregiver to me...a complete stranger and she is a lifelong friend! I just felt a shout out to her was warranted! __________________ To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault

04-22-2015, 02:29 PM	#1233
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,337 Times in 5,970 Posts Rep Power: 21474860	Touching base sliding into 3rd...base... and Clay , what's the latest Bro? Anyway, the Oncologist has extended my every 3 month recurrence check up ( you know the kind) to every 6 months for a year,. So, that is good news. then after that it goes back to Stirrups once a year. I have been sick as a pup for weeks. IN BED--* ALONE****with some kind of nasty germ that took me down,.Upper respiratory infection that was so bad I went to the doctor about it. Couldn't breathe , swallow, ribs felt like they were broken, coughed till , well, it was nasty. Doc said, you probably caught some kind of virus while traveling ( flights to Montreal, Toronto, all over USA .MY BRAIN...screamed EBOLA...nope, just bronchial pneumonia kind of thing. and guess my immune system isn't what it used to be. Hummingbirds chirping about their feeder, colorful landscape, , looking out the front window at my beautiful spring garden in bloom. Wish you all well.

07-11-2015, 11:22 AM	#1235
DapperButch Roadster Guy How Do You Identify?: FTM, Stone Butch Preferred Pronoun?: He Join Date: Nov 2009 Location: Northeast Posts: 7,745 My Photo Gallery Thanks: 26,545 Thanked 26,809 Times in 5,771 Posts Rep Power: 21474858	Checking in Hey,guys. Looks like I never updated you. In Jan 2015, I got my colonoscopy (I suppose it had been a year out since the last one), and I had a pretty big polyp. It was benign, but he was concerned how big it had gotten so fast. He said I needed to get another in six months. Sooo, guess what time it is? Yep, 6 months later. Fun. I am playing phone tag right now with scheduling It is also time for my CAT scan so that is scheduled for the end of July. I will keep you all updated. I hope that everyone is healthy. __________________ -Dapper Are you educated or indoctrinated?

07-11-2015, 02:19 PM	#1236
Daisy Chain Member How Do You Identify?: Femme Preferred Pronoun?: she Relationship Status: Hy calls me Hys Kitten Join Date: May 2015 Location: 2nd star to the right and straight on til morning Posts: 729 My Photo Gallery Thanks: 1,814 Thanked 1,809 Times in 447 Posts Rep Power: 0	Hello to all, I am thankful for being directed to this thread. I have spent some time reading back learning of other peoples journeys and the support you offer each other. I was very very happy to hear so many of you coming out the other side and living full, happy and healthy lives. I will share a little of my own story later. Wishing you all gentle days. Daisy

07-12-2015, 01:57 AM	#1239
TruTexan Senior Member How Do You Identify?: lesbian butch Preferred Pronoun?: She Relationship Status: Single Join Date: Aug 2013 Location: in a one horse town in a large state, in the U.S. Posts: 3,952 My Photo Gallery Thanks: 6,112 Thanked 5,266 Times in 1,633 Posts Rep Power: 21474852	Hello all, I wish each and everyone of you a healthy happy journey. __________________

07-13-2015, 01:45 PM	#1240
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,337 Times in 5,970 Posts Rep Power: 21474860	Cancer has to get dropped into the ocean bottom. I am too busy. Wheeeee Life goes on. We got married May 2, 2015. . No time for cancer. Time for each other, time to travel, time for her folks who are in the sunset of their lives. Time to blend 2 pet families, and households of furniture. What a wonderful woman, what an amazing two years since we met. No time for thinking about that recurrence the month we met. Enjoying the sexiest apron clad cook that feeds me healthy stuff, and waits on me hand and foot, without even realizing how wonderful she is. I want for nothing but time, lots more time.