Ask a trans person!

[Julie]

Originally Posted by atomiczombie

Ok so I talked to my doctor (general practitioner) today, and she said I need to be careful about hormones because I have a history of carcinoid tumors. Geez, I had one in my appendix when it was removed 3 years ago. Now she tells me if I go on T they could come back and spread. They aren't cancerous tumors exactly, but they can cause problems. Ugh what do I do if the Endocrinologist doc says I can't go on T??

I read your Carcinoid Tumor diagnosis -- The fact is... Most carcinoid tumors are malignant -- Actually the highest rate of carcinoid is found among men. I would read this site and if you can get your doctor to consult with Dr. Richard Warner in NYC, the leading (USA) carcinoid specialist, I would ask him.

http://www.carcinoid.org/

Truly, this is something which you need to check into, and are you following up with chemistries with your history (oooo i sound like a mother). While it is true, most carcinoids that are in the appendix are benign.

Julie

[atomiczombie]

Originally Posted by InfiniteFemme

I read your Carcinoid Tumor diagnosis -- The fact is... Most carcinoid tumors are malignant -- Actually the highest rate of carcinoid is found among men. I would read this site and if you can get your doctor to consult with Dr. Richard Warner in NYC, the leading (USA) carcinoid specialist, I would ask him.

http://www.carcinoid.org/

Truly, this is something which you need to check into, and are you following up with chemistries with your history (oooo i sound like a mother). While it is true, most carcinoids that are in the appendix are benign.

Julie

If that is the case, then maybe I could go on T for a limited period of time, just until I get the masculinizing effects, then go off. I was thinking of that anyway, to be honest. Since I have no ovaries or uterus, I won't go back to producing estrogen afterwards, so that won't effect the changes that T will make. I gotta talk to my doctor about this.

Oh, and the word Carcinoid can be broken down to mean not cancer, but acts like a cancer: Carc= cancer, noid= acts like, or like but not the same.

Oh, and one more thing: when I had my appendix out, they did a CT scan and found nothing more in my gut. That was 3 years ago.

[Leigh]

I am just poking My head in to say hi to everyone

[Andrew, Jr.]

Hiya Braedon!

When I had my total hysterectomy, I had two tumors that were growing from my bladder down my leg. One was 5 pounds, and the second was 2.5 pounds. The doctor never saw them until she opened me up, then stopped surgery to get an oncologist. My surgery went from an hour and a half to 8 hours long. All of my internal organs moved around from the tumors that were growing. Then came the Oxycotyn. It triggered a heart attack. I went from one thing to another.

I still believe that my tumors were long growing and causing me pain, but the doctors I saw ignored my complaints. In fact, when I saw the last doctor she never wrote down any of my concerns about the pain I was experiencing walking or getting up from a sitting position to a standing position. All she said was I was fat and to loose weight. Sheesh. Now, it all makes sense.

If something isn't right, get it checked out. Doctors are a dime a dozen. If something isn't right, find a doctor who is going to listen and find out what is wrong.

[Julie]

Originally Posted by atomiczombie

If that is the case, then maybe I could go on T for a limited period of time, just until I get the masculinizing effects, then go off. I was thinking of that anyway, to be honest. Since I have no ovaries or uterus, I won't go back to producing estrogen afterwards, so that won't effect the changes that T will make. I gotta talk to my doctor about this.

Oh, and the word Carcinoid can be broken down to mean not cancer, but acts like a cancer: Carc= cancer, noid= acts like, or like but not the same.

Oh, and one more thing: when I had my appendix out, they did a CT scan and found nothing more in my gut. That was 3 years ago.

CT Scans do not generally find carcinoids until they are about 5mm -- there is a special scan called an Octreotide Scan, which detects these hormone producing neuroendocrine tumors. Including chemistry testing such as 5HIAA and ChromograninA. These are the only conclusive testing available in the states for carcinoid. Just be sure you check it out with your doctor and at the very least a carcinoid specialist.

Julie

[atomiczombie]

Originally Posted by InfiniteFemme

CT Scans do not generally find carcinoids until they are about 5mm -- there is a special scan called an Octreotide Scan, which detects these hormone producing neuroendocrine tumors. Including chemistry testing such as 5HIAA and ChromograninA. These are the only conclusive testing available in the states for carcinoid. Just be sure you check it out with your doctor and at the very least a carcinoid specialist.

Julie

Thanks Julie, this info helps me a lot.

[NotAnAverageGuy]

Waving hello to my fellow Trans brothers and sisters