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#1 |
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My mother isn't doing well. She started having abdominal pain shortly before Covid-19 struck. After that, I was unable to go in with her for chemo, oncologist appointments and tests. Although I continued speaking to them on the phone it made everything more difficult and continues to do do. In May they said she had a partial bowel blockage and she was in the hospital for 9 days. Her tumors are growing and pressing against her small intestine and colon. They did a biopsy and found that her cancer has a breast cancer mutation. Which means there is one chemo that is used for breast cancer that may possibly work. IF it gets approved. It could be denied because my mother has ovarian cancer. The oncologist said if it doesn't get approved or doesn't work she would have approximately 3-6 months. She had a drainage gtube put in Thursday morning. She seemed to be doing better on Friday but terrible yesterday and today.
I'm trying to make sure I'm doing everything possible to help her feel comfortable and feel better. I worry I may not do something correctly and she may suffer due to that. I'm more than a little stressed. My mother and I have not always had the best relationship but it breaks my heart to see her suffering and in pain. I'm trying to stay positive. I'm hoping things fall into place and she gets better. I'm just confused and having trouble pinpointing what went wrong so quickly. She's been fighting this since July 2015 and for the most part kicking cancer's ass. I'd appreciate if you read this if you would send prays, good juju... whatever you believe in for my momma. |
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#2 | |
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We have been holding your mom up in prayer since I read this. I know how difficult it can be to care for someone who we havent had the best of relationships with. I am sure you are doing everything you can to help her and to be there for her. Continued prayers
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#3 |
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So I have been battling getting a wheelchair because I felt it would mean I had given up and letting cancer win. Not the case I finally realize that refusing to get a chair has taken my freedom away from me. I am dependent upon a motorized cart at the stores I go to to be available when I go. If not then I have to turn around and go back to the car. Then I am done for the day.
It has robbed Norma and I from doing things together because she hates to see me in pain so she just doesn't ask to go. Got the chair Friday and go tomorrow to get the lift for my car. My wife and I are looking forward to our life together where we enjoy doing things.
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#4 | |
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Thank you so much. I know you understand. I've read your posts and I've been thinking of you. I just haven't been able to find the words lately. Good move on the chair. I'll be waiting for an update about you and your wife's first outing. Take care of you and again, thank you. ~W |
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#5 | |
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The lift has ratchet straps however I dont have the strength to turn the knob to ratchet it down so I had to get new ratchet straps that arent like ones you have to turn like a knob. Got it strapped down and off we went to Lowes. I was able to get the chair unloaded, run around the store and then back on the lift without too much problems like yesterday. We know the more we use it the easier it will be. We are planning a trip in a couple of months once we get some stuff done around here.
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#6 |
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I have experienced, lived, survived many heartfelt and saddened outcomes for many here. There truly is no outcome that will ever return any of us OR our loved ones to a previous time without cancer. Our world/s: are forever changed.
Having this space for expression/s is welcomed and cherished. We all are connected by those of us who share a common space with one another. Caregiver/survivor or both...being able to share this space IS comforting. At the end of my visit to this thread, I am reminded that I am not alone. I am thankful for everyone who has a few minutes to be here. I am humbled how many share a personal moment. Ks- |
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#7 |
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Mom had an echocardiogram which came back normal. This means she can start chemo on the 30th.
I hope she'll be strong enough to go. She's so sick right now. Barely eating or drinking. She gets weaker each day. I'm hoping to some how get her feeling better by Tuesday. I'm also hoping the chemo works and works quickly. |
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Do you know how to make or have access to bone stock? It can be so nutrient dense and easy to digest, it might help her build up some strength. It's not hard to make. I'd be happy to talk you through it if you need a hand. |
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#9 | |
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#10 | |
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Wrang, how is your mother doing? How are you? |
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#11 | |
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The chemo was approved. It's Herceptin. She's scheduled for an echocardiogram on the 24th. The problem is I don't know that'll she be strong enough to even attempt it. Last night she told me she doesn't want to suffer. This morning she told me to have my older sister to come after work to plan the funeral. As for me... I read the post earlier and since then have been trying to figure that out. The only thing I can come up with is that I don't know. There's just so much. So many feelings at once. I don't want her to suffer. I'm still hoping something changes and she gets the chemo and it works but things aren't looking that way. I have taken to sleeping in the living room on the floor near the couch. I think it comforts her and that in turn helps me. I don't want her to be alone. Anyway, I'm rambling, still trying to figure out how I am doing. I'm going to think about it some more. Maybe I'll pin something down. I appreciate you asking, easy. I hope you and yours are happy, healthy and safe. ~W |
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#12 | |
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#13 | |
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I feel like you've been here since the beginning. I can't express how much your support has meant. Your love and light is accepted and returned to you, my friend. Thank you! |
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#14 |
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Prayers for all in this thread. May you have peace, comfort and relief from pain both physical and emotional.
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#15 |
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Wrang, that all sounds really difficult. I'm glad you're able to be there with your mom now and even sleeping on the floor next to her. That's absolutely comforting to you both. I did the same a few times when my mom had cancer and she stayed with me a few times when I was in chemo and really having a hard time of it. It's a very helpless feeling when you can't take the pain away but you can be a loving presence and that's what you are doing.
Herceptin isn't as rough as some other chemos but still, if she's not strong enough for it, I don't know how much it could benefit or hurt and that's a horrible decision to make. Take care of yourself as you can. Drink water. Take deep breaths. I'll be thinking of you. |
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#16 |
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Well had my biopsy on my right kidney last tuesday. Waiting to hear from someone. Nobody likes the waiting. This time i want to wait a little longer. I found out if I get a early call then somethin is up. I dont feel an urgency this time with this. I feel ok and nothing has changed where i would be concerned. Just dont want that stuff back. I dont want to loose my hair and 60 pounds again. Had a tough time gettin through that.
When I got the news bout my kidney I went head first balls to the wall in my yards. Did 3 straight days nonstop then crashed. Took a step back and realized that wasnt going to help me. Mom told me to slow down and of course I didnt listen to her. Was thinkin if I got that biopsy I would not be able to do anything. Wanted to get things done so I wouldnt get to far behind. Had to take at least 3 days off. Sweeping off my sidewalk was a bad idea. Hurting that night. Dont want to call but might call tuesday. That will be a week. Gotta get some sleep. As always thank you for reading and caring. I love you all. Fighting the Fight in The Planet.!! s
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#17 | |
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Sending up prayers and positive thoughts for you
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#18 | |
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(((((( hugs for you )))))) using your muscles around your kidney after surgery ~ sweeping !!! hellooooooo !!! rest ,rest, and get more rest ! ![]()
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#19 |
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Wrangler, I've "known " you off and on over several years and from here and from there.
I've always found you thoughtful and kind and I have no doubt this is the legacy of your Mom. The video tribute is both beautiful and moving and I thank you for posting it.
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#20 | |
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