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Old 07-13-2010, 04:59 PM   #1
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I don't want a pass, however I do want people to ask questions for clarification. My experience has been that people make assumptions, over and over, and they are wrong.

I don't think most people should have a pass, however there are those whom I believe should. When a brain injury occurs, the functions of the neurons, nerve tracts, or sections of the brain can be effected. If the neurons and nerve tracts are effected, they can be unable or have difficulty carrying messages that tell the brain what to do. This can result in Thinking Changes, Physical Changes, and Personality and Behavioral Changes. These changes can be temporary or permanent. They may cause impairment or complete inability to perform a function. One of these impairments, which may occur concerns social competence, it is one of the most complex tasks our brain encounters, and for some it doesn't happen. If someone lacks skill in this area, it is unreasonable to demand that it occur. Anger and punishment only adds to their frustration, and they only know that they did something wrong, but are left without a clue as to how to fix it. A person can read, write, take care of themselves and not be able to grasp the nuances that many take for granted. Their style of communication may seem inappropriate, when they are angry, scared or excited. I think this kind of person should get a pass.

I'm not sure a pass per say. I think showing this type of person how and why their behavior is inappropriate. There are some who have short term memory loss and will never get their behavior is inappropriate. That doesn't mean they get a pass, they get talked to, shown and yes umpteen times if needed. Look if we can't be compassionate about those who are in this community and who have mental abilities that aren't the same as ours, what does that say about us?
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Old 07-13-2010, 05:24 PM   #2
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Originally Posted by Liam View Post
I don't want a pass, however I do want people to ask questions for clarification. My experience has been that people make assumptions, over and over, and they are wrong.

I don't think most people should have a pass, however there are those whom I believe should. When a brain injury occurs, the functions of the neurons, nerve tracts, or sections of the brain can be effected. If the neurons and nerve tracts are effected, they can be unable or have difficulty carrying messages that tell the brain what to do. This can result in Thinking Changes, Physical Changes, and Personality and Behavioral Changes. These changes can be temporary or permanent. They may cause impairment or complete inability to perform a function. One of these impairments, which may occur concerns social competence, it is one of the most complex tasks our brain encounters, and for some it doesn't happen. If someone lacks skill in this area, it is unreasonable to demand that it occur. Anger and punishment only adds to their frustration, and they only know that they did something wrong, but are left without a clue as to how to fix it. A person can read, write, take care of themselves and not be able to grasp the nuances that many take for granted. Their style of communication may seem inappropriate, when they are angry, scared or excited. I think this kind of person should get a pass.
As a person with severe brain injury I hear what you are saying. In fact I live with what you are saying.

In my brain injury rehab there were a lot of young men. A LOT of them were very sexually inappropriate. Hell, *I* was sexually inappropriate at first too. I would grab nurses rear ends and ask incredibly inappropriate sexual question. I was often kicked out of therapies. By the time I was done I had had 11 different occupational therapists. 11!!!!

At rehab, there was a warning, and then there was either suspension or expulsion from the program. At occupational therapy? Same thing.

Why is that do you think? The very places we are at for help are kicking us out! I used to get soooo angry.

Until I had an "aha" moment. That was as follows: when I am inappropriate with myself there is just me. With my loved ones? There is more lee-way for a pass, but they can walk away. To strangers? Well aha! No nurse deserves to be groped. Or made the object of sexual inappropriateness. The is not just "me" involved any longer when I am inappropriate or don't follow the rules. To put greater value on *me* because I am disabled erases the other human being involved. After being kicked out of 11 occupational therapy programs? I figured out that a little self gratification in my room was probably a WAY better idea than getting kicked out again, and I was running out of options.

I don't think it's fair to place greater equitable value on one human being than another. So if a person is on this site, is differently abled and been talked to and talked to and worked with? And still is sexually inappropriate, or calling names, or any other number of behaviors? Then consequences are in order.

I also think it's dangerous to assume that everyone is NOT differently abled just because you haven't been told otherwise. I have seen one differently abled person do all the things I mentioned above to another differently abled person and never have a clue that that was the case.

So again, I am not asking the site to lose it's compassion. In fact I am not even purporting to tell others what to do.

But I am asking you (specific and general) to not give me Adele a pass where you normally wouldn't give one. Please. It doesn't help me.

I may be a lot of things, but I have NOT been fighting for equality both in the Queer world and the Disabled world to have it taken away from me against my will.

Just like I got a marriage license last year here in CA. If I were to ever break up? I would fully expect to go through the same thing hetero couples go through. Divorce, sharing of property, child support, and spousal support should all be taken into consideration. I don't get to rip up my marriage license and not have the same consequences because "Queer marriage is now illegal".

I don't want to participate on this site, within my own community as anything other than an equal. I don't want differently abled to be the only lens you see me through, or the first thought when debating with me.

I'm willing to do the work, and follow the rules. I'm willing to learn. I can't do that if I never know I am wrong.

I can only truly make this plea for myself, but I would hope that all differently abled people would be treated as equals. Not separate but equal.

Edited to add: I am NOT asking for a lack of compassion, or for people to lose all patience and empathy with me. Or anyone else. Not at all. A pass does not = working with somebody. I've tried really hard to make that clear but feel I've got a big fat fail because I don't feel heard.

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Old 07-13-2010, 05:36 PM   #3
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Equality is great, and people should be held accountable, no matter how many times it needs to happen. With people who are fully capable of doing so. Some just aren't, and they are the ones I will work with, not give a pass to, but work with. I think we are saying the same thing. If we are referring to an individual, who is fully aware that their behavior is inappropriate, then yes they need to be held accountable. Ones rights end at the beginning of another's nose.
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Old 07-14-2010, 12:33 AM   #4
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I don't want a pass, however I do want people to ask questions for clarification. My experience has been that people make assumptions, over and over, and they are wrong.


A common experience that could be avoided and just with a question or two without presumption. Feels like common courtesy and respect for another person and wanting to communicate- not any kind of pass.



I don't think most people should have a pass, however there are those whom I believe should. When a brain injury occurs, the functions of the neurons, nerve tracts, or sections of the brain can be effected. If the neurons and nerve tracts are effected, they can be unable or have difficulty carrying messages that tell the brain what to do. This can result in Thinking Changes, Physical Changes, and Personality and Behavioral Changes. These changes can be temporary or permanent. They may cause impairment or complete inability to perform a function. One of these impairments, which may occur concerns social competence, it is one of the most complex tasks our brain encounters, and for some it doesn't happen. If someone lacks skill in this area, it is unreasonable to demand that it occur. Anger and punishment only adds to their frustration, and they only know that they did something wrong, but are left without a clue as to how to fix it. A person can read, write, take care of themselves and not be able to grasp the nuances that many take for granted. Their style of communication may seem inappropriate, when they are angry, scared or excited. I think this kind of person should get a pass.


I have seen that look on my nephew's face so often- knowing he has made some kind of social faux pas just by how others are reacting to him, but not knowing how to deal with it. He feels very deeply about the possibility of hurting someone and totally frustrated with why he cannot always connect the dots like other people (social nuances and cues). He is very bright. So often, it is presumed that he doesn't care about how he might have hurt someone else.

Now he does a lot better because of treatment and organizations for people with Asperger’s and his own family coming out of denial about Asperger’s and getting help as well. For a long time, his Mom could not face it because of his birth defects and all of the physical limitations and medical procedures he had to deal with along with physical deformity. I think the diagnosis also just got lost within this tangled web, too. We all were damn protective of him.

He feels much more cared about when people just ask him about what he said because it gives him an opportunity to not only clarify, but deal with the social circumstances that have kept him back for so long. He feels like he is being treated like normal (he does use this term) people in many ways! Like he is not getting a pass, but some respect and the chance to work through things with others. Just regular human interaction that many of us take for granted.
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Old 07-14-2010, 07:34 AM   #5
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I have seen that look on my nephew's face so often- knowing he has made some kind of social faux pas just by how others are reacting to him, but not knowing how to deal with it. He feels very deeply about the possibility of hurting someone and totally frustrated with why he cannot always connect the dots like other people (social nuances and cues). He is very bright. So often, it is presumed that he doesn't care about how he might have hurt someone else.

Now he does a lot better because of treatment and organizations for people with Asperger’s and his own family coming out of denial about Asperger’s and getting help as well. For a long time, his Mom could not face it because of his birth defects and all of the physical limitations and medical procedures he had to deal with along with physical deformity. I think the diagnosis also just got lost within this tangled web, too. We all were damn protective of him.

He feels much more cared about when people just ask him about what he said because it gives him an opportunity to not only clarify, but deal with the social circumstances that have kept him back for so long. He feels like he is being treated like normal (he does use this term) people in many ways! Like he is not getting a pass, but some respect and the chance to work through things with others. Just regular human interaction that many of us take for granted.
i agree.

he is not getting a pass.
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Old 07-13-2010, 06:10 PM   #6
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We have all joined a site, that has a set of rules, we all live in a society with sets of rules. Be we either NT or not we have to abide to the rules and boundaries that are set by one another or that have been already set.

yes, this site has rules, and yes, there are individuals here who have set boundaries.

So NT or DA matters not, I could use the fact that english is not my first language and I am dyslexic, then again you are assuming we are all NT no?

assumptions, no - & not 'all'.

We all have a knowing of what is right and wrong, if we do not have that comprehension then we are asking for trouble if allowance is being given time and time again because of someone's illness

Make sense?

not exactly!

i'm not sure that i agree with you on the following: 'we all' have a knowing of what is right and wrong".

actually, some things may not be a matter of right or wrong, they may 'just be' - and without any kind of agenda.

i do like to ask for further clarification whenever i'm unsure on a topic, and hope not be read as being in the wrong, or out to start trouble.

ps- if i fork up, please let me know, and i will apologise.








Last edited by violaine; 07-13-2010 at 06:26 PM.
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